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Just Back From The Doctor!


SUZ42

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SUZ42 Explorer

Hi.

I just came back from a doctor appt. I can't believe how much they really don't know. It's kind of scary. Anyway, he starts in with the labs (last appt was 4 mo ago) and do I take a vitamin. He prescribed Iron 2X/day. Have I had any scopes done? Yes, last Jan an upper GI and in May a colonoscopy. Well, how much wt did you lose? 40 lbs in 3 months. As of last March. I've gained back a few. This is when I told him about my EnteroLab results. He made a copy for my file. He said do you have diarrhea? No, I'm constipated, my whole life. Well, you know diarrhea is the main thing with celiac. There was a lot I wanted to enterject here, but held my tongue. He said I am about the 3rd person in 15 years he's seen with celiac. Makes me wonder. Anyway, he said since the stool results were positive and since I have the celiac gene, I have celiac. And he wrote it in my chart as celiac sprue. I live in a small town, so docs aren't as cutting edge as elsewhere, but geeze... I go back in 3 months. Sometimes I wonder why I bother.

On a positive note.

I went gluten-free on 3/18 and I already feel a difference. Not bloating after I eat, less gassy. More energy. A general sence of well-being. Can't wait to see how I feel after several months.

Thanks for listening,

Suz


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Do what I do. I take in print outs to eduacate my GP. Only print the improtant facts as they can get too much info and not read it. Since my GP diagnosed me with celiac disease, he has now diagnosed more then 60 patients with the disease. He is still testing many that come in. He now knows that not all Celiacs' become the classic Celiac plus many other relavent facts. Good Luck and at least you now have a diagnosis and can get on with the rest of your life - gluten free, of course - he, he.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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