Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 1 Year Old Just Diagnosed


bchapa

Recommended Posts

bchapa Newbie

Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

It can cause pain but not always which makes it tricky with a child that young. A lot of people get stomach pain/cramps, but not everyone. Most parents will notice a difference in bowel movements and/or behavior. You'll probably have to go by the symptoms he had that lead you to seek a diagnosis.

cornflakegirl-1980 Newbie
Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.
happygirl Collaborator

Just because no one in your family was diagnosed, doesn't mean that no one in your family has it. 1 in 133 Americans have Celiac and yet 97% of them are undiagnosed. Celiac symptoms range from debilitating to no overt symptoms (called silent Celiac). All first degree relatives of a dx'ed Celiac are recommended to have the full Celiac panel run. It "runs" in families because there is a genetic link to Celiac. The two main Celiac genes are HLA DQ2 and HLA DQ8, which about 30% of the American population has (one or both). Just having the gene alone does NOT mean that you have Celiac. About 98% of diagnosed Celiacs have one or both of these genes.

The statistics for a family member having it are:

Group Prevalence (from a 2003 study by Dr. Alessio Fasano)

First degree relatives 1 in 22

Second-degree relatives 1 in 39

Symptomatic patients 1 in 56

Not-at-risk individuals (overall prevalence) 1 in 133

Check out the book listed in my signature...it is the best resource out there.

ssjrobbins Newbie

Hi!

I just came across your post. I would recommend you go to the Parents of Children and Babies Message Board here on Celiac.com, it is great to talk with other parents about your concerns, questions, etc. My husband and I have two small children and they have both been diagnosed with celiac disease through biopsy. Our oldest is now 4.5 and she was diagnosed about a month before she turned 3. Our youngest is 20 months and he was just diagnosed about 4 weeks ago. It was so much easier with our daughter, even though she was barely 3, she could talk and tell us how she was feeling. Her tummy certainly hurts when she gets even a spec of gluten but more importantly is her behavior. This is very common in children with celiac disease. Their behavior is terrible when they are "glutened". I would really recommend you go to the Parents of the Children and Babies part of this Message Board, I think you will find it most helpful!

Good luck to you and please know....it will get easier!!!

:)

NoGluGirl Contributor
Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.