Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 1 Year Old Just Diagnosed

bchapa

Recommended Posts

bchapa Newbie
bchapa
Posted

Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

It can cause pain but not always which makes it tricky with a child that young. A lot of people get stomach pain/cramps, but not everyone. Most parents will notice a difference in bowel movements and/or behavior. You'll probably have to go by the symptoms he had that lead you to seek a diagnosis.

cornflakegirl-1980 Newbie
cornflakegirl-1980
Posted
Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.
happygirl Collaborator
happygirl
Posted

Just because no one in your family was diagnosed, doesn't mean that no one in your family has it. 1 in 133 Americans have Celiac and yet 97% of them are undiagnosed. Celiac symptoms range from debilitating to no overt symptoms (called silent Celiac). All first degree relatives of a dx'ed Celiac are recommended to have the full Celiac panel run. It "runs" in families because there is a genetic link to Celiac. The two main Celiac genes are HLA DQ2 and HLA DQ8, which about 30% of the American population has (one or both). Just having the gene alone does NOT mean that you have Celiac. About 98% of diagnosed Celiacs have one or both of these genes.

The statistics for a family member having it are:

Group Prevalence (from a 2003 study by Dr. Alessio Fasano)

First degree relatives 1 in 22

Second-degree relatives 1 in 39

Symptomatic patients 1 in 56

Not-at-risk individuals (overall prevalence) 1 in 133

Check out the book listed in my signature...it is the best resource out there.

ssjrobbins Newbie
ssjrobbins
Posted

Hi!

I just came across your post. I would recommend you go to the Parents of Children and Babies Message Board here on Celiac.com, it is great to talk with other parents about your concerns, questions, etc. My husband and I have two small children and they have both been diagnosed with celiac disease through biopsy. Our oldest is now 4.5 and she was diagnosed about a month before she turned 3. Our youngest is 20 months and he was just diagnosed about 4 weeks ago. It was so much easier with our daughter, even though she was barely 3, she could talk and tell us how she was feeling. Her tummy certainly hurts when she gets even a spec of gluten but more importantly is her behavior. This is very common in children with celiac disease. Their behavior is terrible when they are "glutened". I would really recommend you go to the Parents of the Children and Babies part of this Message Board, I think you will find it most helpful!

Good luck to you and please know....it will get easier!!!

:)

NoGluGirl Contributor
NoGluGirl
Posted
Hello all, my 1 year old was diagnosed about a month ago and my wife and I were in complete shock. After the endoscopy came back clear, our doctor mentioned the possibility of celiac when the biopsy was studied.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,113
    • Most Online (within 30 mins)
      7,748
    Mary Kurtz
    Newest Member
    Mary Kurtz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Eating gluten before blood test

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By Scott Adams · Posted

      Your experience is incredibly common and frustrating for many in the celiac and gluten-sensitive community, and it's especially challenging with the added layer of healthcare disparities for people of African descent. A negative endoscopy and blood panel, while the gold standard, are not infallible and can miss cases, particularly if you weren't consuming a significant amount of gluten leading up to the tests (the "gluten challenge"). Your dramatic improvement on a gluten-free diet is the most critical piece of evidence here—your body is giving you the answer the tests could not. The symptoms you're describing now, especially the dyshidrotic eczema and blister bumps, are huge red flags for a gluten-related disorder, and your GP dismissing the possibility of dermatitis herpetiformis without a biopsy is a significant oversight. Requesting a new dermatologist and specifically asking for a skin biopsy next to an active lesion (not on it) is the absolute best next step. In the meantime, documenting your symptoms with photos and a food/symptom diary will build a powerful case for yourself. While the financial burden of a gluten-free diet is very real, your health is the priority; perhaps focusing on naturally gluten-free whole foods like rice, beans, and vegetables, rather than expensive processed substitutes, could be a more sustainable path forward until you can get a definitive opinion.
    • Scott Adams
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By Scott Adams · Posted

      While the initial flu-like symptoms are a known side effect of Imiquimod, it is plausible that triggering your immune system in that way could have caused a long-term shift in your autoimmune response, essentially lowering your threshold for a reaction. Your theory is very valid. Given your history, the most logical first step is to eliminate oats entirely, as even certified gluten-free oats can be a trigger for some celiacs due to a protein called avenin. Treat this as strictly as you would wheat, barley, or rye for at least a few months to see if the recurring episodes subside. It's a tangible variable you can control, and many in the community have found significant relief from persistent symptoms after doing so. I'm sorry the medical professionals you've seen have been dismissive; trusting your own body's signals is so important. I truly hope that cutting out oats brings you the answers and relief you deserve.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      Thank you WW. I will look into all this an appreciate the info!!
    • captaincrab55
      blood pressure meds that are gluten free

      By captaincrab55 · Posted

      Yvonne Ayers Albers,  How did you find out HCTZ contains gluten?   My search shows the Brand Name as gluten-free, while some of the Generic HCTZ may contain Gluten.
×
×
  • Create New...