Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Grain Intolerant?


Aeval

Recommended Posts

Aeval Rookie

Hi,

I just joined this forum today and I need some advice. My doctor wants me to go off grains. I have never been tested for Celiac Disease, do not have any of the symptoms and, as far as I know, am not related to anyone who has it. I have recently recovered from adrenal fatigue but my DHEA is still way to low. My doctor thinks going off grains will help. When I ask her why, she says because I have Celtic, Nordic and Germanic ancestry. This doesn't sit well with me as an explanation. I said, "Why don't you test me for an allergy or an intolerance?" She says that she doesn't think I have an allergy or an intolerance. She thinks I have "wheat toxicity" and there's no test for it. She says there's some type of test she can give me after I've been off grains for three months that will show if I have anti-bodies but I have to be off the gluten for a while first. She says if she gives it to me now, no anti-bodies will show up because I've got grains in my system. Or something like that.

So I've been off of grains for 4 days and although my stomach never bothered me before, it seems to bother me now. It feels acid-y and just not quite right.

Has anyone out there ever heard of wheat toxicity? Is it different than intolerance? Is my doctor crazy? Should I run from her office and never look back? Giving up gluten just seems like a big lifestyle change to make for an uncertain reason.

Thanks,

Aeval


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



3boyzmom Newbie

While I've personally never heard of a wheat toxicity, it doesn't mean there isn't such a thing.

The not testing you right now part is what I don't understand. If you are having a reaction to wheat or the protein in wheat called gliadin, then you HAVE to be consuming it for the antibodies to be present. If I were you, I'd get a celiac blood test panel done first:

Open Original Shared Link

This link gives you the low down on all the appropriate testing to look for a gluten intolerance and to see if that intolerance has led to Celiac's disease.

If you wait until you are gluten free, then test, they'll be nothing to test becasue your body will have nothing to react against...

Your doctor's reasoning is flawed... i can't seem to figure out what she is looking for... ???

Maybe you DO need a new doctor! :)

Priscilla

gf4life Enthusiast

I responded to your post about this in the Doctors section.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,582
    • Most Online (within 30 mins)
      7,748

    SusieP
    Newest Member
    SusieP
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.