Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Results And Some Not So Fun Stuff


Lister

Recommended Posts

Lister Rising Star

for those that where conserned about the results that i never posted a update on the answer was a negative *wew* never did figure out what she was really sick with

on a side note i have a question here for anyone thats ever fractured anything

i have a possible double fracture on my right hip (according to the x-rays) but the dx wanted to do a mri to be positive, since i did not have insurance he desided to not do the mri instead he scheduled me to go in next week for a scraping?? WTF DOES THAT MEEN... my roommate says there going to cut the side of my leg open scrape my bones and then stich me back up... is this true... if so i meen i will be in debt for over 6 years but i would rather have the mri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Holy Cow!!! It's about time you showed up. We were all worried when you left us with some unsettling news. Now fuss is over.

I am not sure, but scraping the bone so that it would be smooth to that is could fuse together and mend itself.

Lister, there is medical finances available for those who are not able to pay.

I know we have medical insurance peep out there.

You need an MRI dude, or atleast xrays. I'm glad you're back. Maybe you can fill us in on what's going on later.

Lisa

PS: glad everything was negative. But, not to lecture, use precaution next time. ;)

jerseyangel Proficient

Hi Lister,

Gee, a lot of us have been worried about you! I'm so glad to hear the test was negative--what a relief!!

Sorry, I don't know about the scraping--I hope you can work out some way to get the MRI. Would be best to know exactly what you're dealing with. I know it's tough for you, though.

Anyway, it's good to hear from you again :)

ravenwoodglass Mentor
for those that where conserned about the results that i never posted a update on the answer was a negative *wew* never did figure out what she was really sick with

on a side note i have a question here for anyone thats ever fractured anything

i have a possible double fracture on my right hip (according to the x-rays) but the dx wanted to do a mri to be positive, since i did not have insurance he desided to not do the mri instead he scheduled me to go in next week for a scraping?? WTF DOES THAT MEEN... my roommate says there going to cut the side of my leg open scrape my bones and then stich me back up... is this true... if so i meen i will be in debt for over 6 years but i would rather have the mri

Lister I am so sorry to hear this.

You need to call the doctors office and talk to a nurse as soon as you can. They will explain fully what they are going to do, what you can expect painwise, how long it will take to recover. I can assure you whatever they are doing they will make you comfortable before hand. I would also suggest that you get ahold of your Human Services Depts and see if you qualify for emergency medical assistance. You very well may if this injury prevents you from working and they may even cover next weeks work. Never hurts to check.

I am glad to hear that all was clear on the other front and hope you recover from this soon.

  • 2 weeks later...
CarlaB Enthusiast

Lister, I missed this before. Glad the results turned out favorably!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.