Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Share Your Best Post-glutening Remedies


melie

Recommended Posts

melie Apprentice

Hi,

After having two hair raising bouts of D, (10 days one time!) from Gluten exposure, I seem to be getting more sensitive to gluten as time goes on (now one year gluten free!) I have never had such severe reactions and would like to know what people do to get back to normal, bowel wise.

Does anyone else have such long and severe reactions to gluten, especially when it wasn't that severe before?

I took some Immodium tablets yesterday for the latest 3 day D jag, seems to be working so far.

I thought this thread would be a good place to write about what you do to get the gluten out of your system, and intestines happy again, other than of course maintaining a strict gluten free diet.

Thanks,

Melie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowergirl Rookie

Hi there, three things does the trick for me after a glutening and D

* a teaspoon of slippery elm mixed with water

* aloe vera juice

* peppermint tea

after that I usually sleep it off for about 3 days and take some dandelion root or milk thistle to help the liver so that my BM's can return to normal.

Flowergirl

darlindeb25 Collaborator

I'm sure my answer will be of no help, yet for me, I just let nature do it's job. I find if I take anything, it usually prolongs the agony. Imodium works at the time, yet I will suffer even more so in a few days. I tend to live with my heating pad and just deal with the accident.

I do think it would be wonderful if they could come up with something that could help when glutened.

melie Apprentice

Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

NoGluGirl Contributor
Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

confused Community Regular
Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

That is me to a tee, and i hate it. The other night it happened and then i let my anxiety kick in, it took me about an hour to calm myself down. My poor family just looks at me like im odd, but they have learned to let me deal with it all on my own, when they try to calm me down, it is worse. Im still recovering from friday, every day is a little better but not much. Or maybe it was cause i licked the back of an envelope last night. I was so mad at myself for that lol

paula

JNBunnie1 Community Regular

You can get glutened from envelopes?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
You can get glutened from envelopes?

I don't know if this is one of the old gluten tales, and I have never seen the ingredients in envelope glue.....but it is not recommended.

KAG Rookie

I get serious gas and constipation from gluten. I also don't tolerate many carbohydrates or legumes either very well. I just recently learned that when you eat something that causes an alergic reaction, you can have inflamation in the intestines and that can cause constipation. Anyway, to get myself back on track I eat the following chicken soup recipe that I got from Jordan Rubin's book about healing your digestive disorders. I eat only this soup for a few days to calm the inflamation in my intestines and then for the next few days I add spinach, zuccini, turnip greens (frozen from a bag), etc. to the soup and I'm back to normal(?).

(I don't use the chicken feet, or the structured water concentrate) Also - when I make this soup (which is just about every other week) I freeze individual portions so if I need any I can just defrost single servings. What's important is to make sure you cook this soup for at least 12 hours.

1 medium whole chicken

JNBunnie1 Community Regular

Huh. And I thought I was paranoid before....... Good thing they make sticky stamps.

NoGluGirl Contributor

Dear Paula,

Yep, that is like with me. My parents do not get it. They probably have Celiac too! They just won't admit it. My mother takes Phenergan, Levsin SL, Equate anti-diarrheal liquid (liquid cork I like to call it) and some other pill for her stomach. She refuses to try the diet. She also could not care less if I get glutened because it does not effect her. I am just being a hypochondriac to her.

Dear JNBunnie1,

Nope, you are not paranoid. You know, I never licked the envelopes anyway. I always taped them. They never stuck well. I was safeguarded from that early!

Dear KAG,

Thanks for the recipe! I put it in my gluten free food file. Dr. Ruben seems to know more about health than most people. He actually mentioned Celiac on the show I saw him on! ;) Now here is a guy I think seems to know what is happening!

Sincerely,

NoGluGirl

KAG Rookie

Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

num1habsfan Rising Star

Yes, my symptoms and reactions and sesativities have gone bad, to the point I dont think it could get worse. You can imagine how i felt when I had to eat gluten 5 days for a test...it took me almost 2 weeks to recover. I get sick from breathing in flour/grains, too.

Unfortunately I dont know what can help, the only solution I have for myself is to be paranoid :lol:

~ lisa ~

snowcoveredheart Apprentice

i just drink peppermint tea for the pain and lemon juice with honey to try and help clear out the badness.... and let nature take its course.

Nantzie Collaborator
You can get glutened from envelopes?

I always used to get nauseous, headachy and really anxious and upset when I paid bills. It made sense when we were barely making ends meet, but once we started making enough money to live within our means, I thought I just hated paying bills for some reason.

Once I learned about gluten being a possible ingredient in the adhesive, SO much made sense. :lol:

I'm sure it's not on all of the envelopes, but it's on at least some. There's just no way to check and verify. So it's a better safe than sorry thing.

Nancy

JNBunnie1 Community Regular
Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

I know! I wish he'd go gluten-free too, his book is what helped me make my self-diagnoses when all my doctors were being obtuse. I was taking his probiotic until a few weeks ago when I read the ingredients again after a YEAR of not paying attention, I think I've been glutened twice in that time from his pills, now that I know that. I couldn't figure out those glutenings before. So they're obviously very good quality, but still not worth the risk.

melie Apprentice

On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

JNBunnie1 Community Regular
On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

I usually suffer for about two days. The fatigue and brain blurring last a few days longer though. You might try suggesting restaurants that have really nice salad bars, not pizaa restaurants though. I can usually go to Ruby Tuesday's (chain) and they have such a great salad bar that I actually get filled up, and I don't have to worry about anything really being cross contaminated, because the salad bar prep station in the back is separate from where they cook the 'real' food, and usually washed a lot more often too.

NoGluGirl Contributor

Dear KAG,

:( That is a bummer about the barley. It would be nice if Dr. Ruben stopped using it. So many things are off limits because of it! He seems to have his pulse on the right thing, though. I am glad someone does!

Dear num1habsfan,

I know exactly what you mean. The reactions do tend to increase intensity after being used to being gluten free. It is horrible! I am paranoid as well. I am afraid to leave my coffee cup alone, for fear of cross contamination! My mother got toast crumbs on the paper towels! :angry: Now I have to open a whole new roll for myself, and try to keep it safe.

Dear Melie,

I just have to let nature take its course. The promethazine makes me incredibly drowsy. For a couple of days after, I usually feel sluggish and my stomach is irritated. Sometimes a week is how long it takes to get completely out of my system. I have read in some books that you can reduce the suffering by hurrying it out of your system with a laxative. My stomach often cramps when I take these, especially anything with psyllium husk. I never could take that stuff.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.