Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mainting A Gf Diet?


EddieJP125

Recommended Posts

EddieJP125 Explorer

for those who have been on a strict gluten-free diet how well have all of u been doin...i'm tryin really hard and sometimes i eat things that are contaminated and didn't know...or i've used pots and pans at my girlfriends house who doesn't follow a gluten-free diet...are u all avoiding gluten better than i am or are u guys have a lot of accidental ingestion or contamination?

just curious and would like to know if i'm not the only one who finds it very hard to follow a gluten-free diet...

Eddie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I'm just terribly cautious...paranoid.......i avoid gluten as if accidentally ingestion would kill me.....therefore, I'm doing pretty well :D

stef-the-kicking-cuty Enthusiast

I still sometimes have pain in my guts or bonepain or headache and i don't know what i did wrong again. Well, i think that more people who go glutenfree have problems.

Greetings, Stef

plantime Contributor

I have slip-ups, but I am quite paranoid, so not very often. We all have mistakes, it will get easier as we get used to it.

tarnalberry Community Regular

No, not to many slip ups, and if I do, it's when I know I'm taking a risk (even if I try to minimize it). I don't find the gluten-free diet all that hard, as I enjoy making simple things, and cooking from scratch. The first couple months were harder, but it just meant that I was more restrictive about what I ate. Are there particular areas where you're having trouble with which we can help?

ponita Newbie

Eddie,

A person I met here through the message boards once said she looked at the foods that had gluten as tainted or contaminate. Just that idea has really helped me. I find that I look at the little bits here and there that are bad for me more seriously.

I'm new at this too and having the message boards has been a great motivator too!

You are surounded by people who are having the same problems you are.

My cooking is very basic. Jack Lalanne, the exersise guru, once said, "If man made it, don't eat it".

Good luck and let us know what you need.

Melissa

EddieJP125 Explorer

well i just bought brand new pots and pans...had to go and get a brand scrubber thing for the dishes and i'm sure restaurants that say have a gluten-free menu have a accidental contamination...thats my fear of the diet is the accidental contamination...so thats what i'm being paranoid about...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    Amy1620
    Newest Member
    Amy1620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.