Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mu Husband Wants To Take The Kids Out Of Town Overnight.


Karwei5

Recommended Posts

Karwei5 Apprentice

And now I have to figure out what to Pack for my son who is 18 and has Down syndrome and Celiac disease.

I can't go as I have to work.

I am overwhelmed on how to pack food for him. There is an Outback so they can have supper but I have to figure out all the other meals for 2 days.

Any suggestions.

Karol mom to Billy 18 years old Down syndrome Celiac disesae


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Is everyone gluten free? If so, will they have a fridge in their hotel room? If so, one loaf of Kinnikinnick bread, one toaster (easy to travel with), a super pack of oscar meyer lunch meat, a pack of cheese, one box of cereal (they can buy milk wherever they go), fruit, potato chips, gluten free pretzels and peanut butter, raisins, and Lara or Kind bars. That should do them for meals other than dinner.

If they won't have a fridge, a loaf of Kinnikinnick bread (it will keep for 2, maybe 3 days without being refrigerated), a toaster, peanut butter and honey or marshmallow cream, fruit, cereal (no milk), potato chips, gluten free pretzels, raisins, and Lara or Kind Bars. Gluten free beef jerky also makes good road food as well as nuts and dried fruit.

Lisa Mentor

What city or town is their destination. Or what towns will they pass through? I may be able to help you with restaurants.

Karwei5 Apprentice
What city or town is their destination. Or what towns will they pass through? I may be able to help you with restaurants.

They are going to the Illinois/Iowa border to Rock Island Illinois then to Davenport Iowa and Dubuque Iowa

Billy is the only one gluten free.

I was thinking they may get away with getting eggs and bacon for breakfast if they tell the restaurant to scrape the grill and use a clean spatula.

I went to the store and found some gluten free English muffins, Tuna, peanut butter, (Ham,cheese and lettuce~for roll ups)

I guess what really freaked me out was that he caled me at 6pm tonight to say they are going tomorrow and I wasn't prepared. I am still new at this and it isn't second nature for me yet.

Karol mom to Billy

gfgypsyqueen Enthusiast

I don't know how Downs factors into the foods, does it require special diet too? Last minute trips are always really hard to plan.

Actually I have always found breakfast to be one of the easiest gluten-free meals to eat out. Eggs, hash browns, fruit. (Omlettes are generally cooked in specific frying pans, so no grill contamination problems.) Bring gluten-free muffins or breads if you need to.

Burgers no bun, baked potato, hot dogs on gluten-free bread or plain, nachos - chips and shredded cheese. All are fairly common at restaurants.

Pack cereal, candy, fruit, chips, and time to go.

It sounds like they will have a great time. Relax and enjoy the down time. Traveling gets easier it -sounds impossible at first.

Let us know how the trip went.

Tritty Rookie

Trail mix is a must for me on a car trip - can keep me going until I find something I can eat. Maybe just pack a little cooler that they can keep refilling with ice from hotels. Celery and peanut butter, fruit, cheese. I saw at the store that they make packs of apples with dip, etc now in nice little easy packs like you get at McDonald's. Easy for travel - I think it was the DIsney brand at Kroger. I didn't read any ingredients yet though...

kbtoyssni Contributor

For road trips I bring:

-A loaf of bread

-Peanut butter

-lettuce

-Slices of cheese and/or meat

-Those mini-mustard packets you get at fast food places

-Potatoes for baking (plus you can put the cheese on them)

-Thai kitchen imitation ramen-noodle packages

-Individual string cheeses

-Apples

-Cereal plus milk

-Some candy (Fun sized M&Ms, almond joys)

-Some crackers or a bag of corn chips for snacking

If you add all this up I've got more than enough calories to keep me going for two days. It may not be the absolute healthiest, but at least I won't starve!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.