Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing Weight - Not Good!


alamaz

Recommended Posts

alamaz Collaborator

I've only be gluten-free for about 5 weeks and have definitely made a few mistakes along the way. My concern is that I'm losing weight. I've never had a weight problem so losing weight isn't exactly a good thing. Is this normal in the beginning? I'm feeling a little better as in my hair isn't coming out in clumps in the shower and I have more energy most days but my BM's haven't improved much as I still have D every morning. Anyways, I'm more worried about the weight today. I've lost about 8 pounds in five weeks..... Should I be concerned?

Amy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dally099 Contributor
I've only be gluten-free for about 5 weeks and have definitely made a few mistakes along the way. My concern is that I'm losing weight. I've never had a weight problem so losing weight isn't exactly a good thing. Is this normal in the beginning? I'm feeling a little better as in my hair isn't coming out in clumps in the shower and I have more energy most days but my BM's haven't improved much as I still have D every morning. Anyways, I'm more worried about the weight today. I've lost about 8 pounds in five weeks..... Should I be concerned?

Amy

oh dear, i know what the weight loss is like, are you allergic to something that maybe your not aware of? one of the things i found with the gluten-free diet is that the food is very low in fat and calories. and if your active this can be a challenge. im not allergic to dairy as far as i know so i accually started to eat more ice cream and add sour cream to a lot of my food. i know it sounds gross to some but its a way of tacking some fat into your diet, i would still maybe go see your doc though and make sure that it isnt something more serious.

GOOD LUCK!!

alamaz Collaborator

well, I know I tested positive for casein, soy, eggs and yeast through Enterolab so I haven't had much to eat outside of balanced meals three times a day and maybe some fruit and nuts for snacks. Very little sugar and/or baked goods also. I'm just find it odd that I'm losing weight while I read about most people on the gluten-free diet start to gain since they were so malnourished to begin with. AArughhhh! I don't WANT to go back to the doctor :( I swear I go to the doctor more than my great grandmother. :angry:

loraleena Contributor

Sound like you are on a really low carb restricted diet. It would be normal to lose weight. I was put on the candida diet that cut out a lot, and I lost 18 lbs in 2 months and I was normal weight to start with. Sounds like you need to eat more of what you can.

lorka150 Collaborator

alamaz,

when i was first diagnosed, i started losing significantly. i am 5'7'', and lost weight so fast - i bottomed out at 78lbs, and i am not a very tiny build (small to medium). i went to the doctor weekly for 7 months. i was in the hospital. it was horrible. don't let it get to this. you should make sure you are eating a proper diet. i'm studying dietetics, so i didn't go see a nutritionist, but if you aren't sure, please see a dietetian.

alamaz Collaborator

I have my first appt. with a nutritionist this week. I know I'm losing still because pants I wore last summer that were too tight in september I wore yesterday and they looked like potato sacks on me. i am having trouble figuring out what to eat that's for sure. right now the only time i seem to have a normal bm is when i eat soup and something like rice cereal for breakfast. i'm assuming my insides are so damaged they are having trouble digesting food in general. i cut out nuts and that seemed to have helped a little bit. i was just wondering if other people experienced weight loss at first.

Lorka- that must have been scary to lose so much weight so fast! glad you got it figured out!

Amy

Cynbd Contributor

Hi Amy,

I have been gluten-free for almost five months. I was losing weight before going gluten-free due to all the D and my fear of eating. Since going gluten-free, I have still lost more weight, and it was really beginning to scare me too.

I found intially after going gluten-free that I felt really great, then after about a month I was beginning to have problems with certain foods gluten-free foods and I lost another 5 lbs. I don't put a single thing in my mouth without looking it up first, and making sure I am safe, so I was really disappointed, frustrated, and angry when I was still having D issues.

In the past 8 weeks, which I have been doing really good, I haven't dropped any more weight, and I haven't gained any either. I seem to have leveled out.

Like dally099 said, if you are more active then it is more challenging.

I began to really pay attention to how many calories I was eating everyday. Once I started looking at that I could really see why I was losing. (that is once you figure out the D issues)

Once you figure out what is still making you sick, and you find the foods you are safe with, stick with those for a while so you can start to heal and feel better.

I eat so much healthier now, but to add fat to my diet I eat more avocados, some of the rice pastas, and chocolate. Sometimes I do a chip/salsa thing. Since I stick to whole/fresh foods, I find the fried foods, and heavy fat foods make me feel tired and horrible.

Also, I get really full fast, so if I eat too much at one meal I feel awful, and may not eat the rest of the day due to feeling full all day. So now I eat smaller meals more often so I can get the calories in.

Figuring out what is causing your problems is the hardest part. Like many have said on this board -- stick with fresh fruits, meats, and veggies. After you level out you can start trying new things, and adding stuff that you like.

I wish you the best,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.