Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Old Test Results... Familiar Terms?


DeerGirl

Recommended Posts

DeerGirl Apprentice

Hi folks, recent member to the boards. Any insights or specific questions I might want to ask the specialist based on results?

Old tests' results below, will bring to appt. with specialist.

Previously I was strongly positive for Gliadin AB IgG, but within normal range for all other celiac (they tested: TTG AB IgA, Gliadin AB IgA). Though I do not see any total IgA tests.

Two separate IgG tests at 49 and 35 (anything > 30 is "strongly positive" by this particular lab).

Vit D - very low, once treated the IgG dropped some and many symptoms disappeared (as long as the supplementation is continued, if I lapse, they come back).

Biopsies completed of stomach, antrum, duodenum -- Diffuse intestinal metaplasia. Lymphoplasmacytic infiltrate. No abnormalities or evidence of any bacterial/viral infections, no evidence of celiac.

Cholesterol -- HDL good, LDL always low.

Intestinal and extra-intestinal symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

"Biopsies completed of stomach, antrum, duodenum -- Diffuse intestinal metaplasia. Lymphoplasmacytic infiltrate."

The results of those biopsies sound very much like the results my DD had. Those were not 'normal' results. What our GI said was that while she was not celiac YET the results did show that she was being affected by it. As he said we had a choice, she could continue eating gluten until the damage was severe enough to call it celiac or she could stop eating gluten and prevent it from happening. It was up to her.

DeerGirl Apprentice
"Biopsies completed of stomach, antrum, duodenum -- Diffuse intestinal metaplasia. Lymphoplasmacytic infiltrate."

The results of those biopsies sound very much like the results my DD had. Those were not 'normal' results. What our GI said was that while she was not celiac YET the results did show that she was being affected by it. As he said we had a choice, she could continue eating gluten until the damage was severe enough to call it celiac or she could stop eating gluten and prevent it from happening. It was up to her.

Ravenwoodglass -- thanks for your insights, much appreciated and helpful. Another note said 'no significant neutrophilic activity identified' - does that sound also similar?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.