Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression

sleepy1

By sleepy1
in Related Issues & Disorders

Recommended Posts

sleepy1 Rookie
sleepy1
Posted

I am new to this and not one that normaly talks about my problems but is depression a normality with celiac i have been down for so long and it's only getting worse i have an appoinment with my doctor wensday but i really just want to go to sleep and just not wake up in the morning sorry to put this on any of you but no one around here to talk to that even comes close to understanding anything about celiac most don't even know what glutten is I have only been glutten free since March 23 2007 so it hasn't even been a month yet will i feel better soon both physicly and mentaly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, gluten is a neurotoxin and for some celiacs depression, especially the kind that comes on quick and leaves suddenly, can be a dominat feature for years before the GI stuff shows up.

The good news is that after the gluten reaction leaves your system this should be relieved without drug therapy, in fact many celiacs are not helped by meds but made worse.

My family now recognizes the clear connection, it is one of the first signs that we got something we shouldn't. It is an awful feeling but it passes.

Jestgar Rising Star
Jestgar
Posted

Yes! Depression was one of my big symptoms and I didn't even realize how bad it was till it went away. Hang in there and give your body a chance to remember how it's supposed to feel.

BamBam Community Regular
BamBam
Posted

Yes, depression was a huge factor in my life. The one thing that you have to remember though, is you will feel better and better as long as no gluten gets into your diet. I didn't understand how much that meant until I searched the ingredient lists on my lotions, hair products, soap and makeup. I thought that was foolish, to have to worry about gluten in those items. Well, it is not foolish. I have done the best I can, but as far as I know I don't have any gluten in my life and my depression is gone. If I get gluten into my life, I do feel depressed again. I had the suicidal depression. I spent a week at a clinic several years ago dealing with my feelings, needs and emotions. Since I've been gluten and dairy free, I have no depression.

BamBam

yellowbird22 Newbie
yellowbird22
Posted

I have had serious problems with depression and mood disorders all my life. At one point I was even diagnosed manic depressive. But that doctor was stupid because I am not manic depressive. Once I stopped taking all the meds I was on (which were actually making me worse) and changed my diet I started to get much better. I started eating really healthy (completly cut out sugar, reduced alcohol, didn't eat processed foods, cut down on meat, ate more veggies and fruits) but I was still eating gluten because I didn't know about the Celiac then. I was still depressed, just not crazy with manic symptoms. I have recently gone gluten free and now my depression is completely gone. It is really, really important that I also eat NO sugar in addition to no gluten. If I get even a little of either my depression comes back.

JerryK Community Regular
JerryK
Posted

I'll cast a whole hearted yeppers to depression being caused by gluten. In my case it's within 4 hours of eating it and it lasts at least three days. It's like being drugged and now knowing it.

Now I'm not one that's been diagnosed with intestinal damage, so your results my vary.

sleepy1 Rookie
sleepy1
Posted
  • Author
I am new to this and not one that normaly talks about my problems but is depression a normality with celiac i have been down for so long and it's only getting worse i have an appoinment with my doctor wensday but i really just want to go to sleep and just not wake up in the morning sorry to put this on any of you but no one around here to talk to that even comes close to understanding anything about celiac most don't even know what glutten is I have only been glutten free since March 23 2007 so it hasn't even been a month yet will i feel better soon both physicly and mentaly

i just got back from the doc. and he gave me lexapro for depression but not being the expert on celiac he could not say for sure if it was glutten free does anyone else take this or know anything about it he also took some blood to test my thyroid i don't know much about this anyone have any info. on this I also wanted to thank all of you for these forums i would be totaly lost without it

sleep1

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted

lexapro is gluten-free, so is zoloft. Hypothyyroid often causes depression - I have Hashimotos (where my thyroid goes back and forth from hypo to hyper), but even with my thyroid regulated my depression didn't get better, so I just started taking 25 mg of zoloft per day, and it has really helped. I've heard that it can take a few weeks for the antidepressants to work, so don't give it up if it doesn't work right away.

heathen Apprentice
heathen
Posted

just be careful when you don't need the meds anymore. i was taking a small dosage of celexa to take off the edge pre-diagnosis, and just quit taking it when i the doctor told me i didn't need it anymore. i know better, but i didn't taper the dosages. instead, i stopped cold turkey. HUGE MISTAKE that culminated with me telling the bf that i needed a couple of months for my hormone levels to return to normal while simultaneously sobbing uncontrollably for no reason. not a fun time. so taper off--no cold turkey.

gfp Enthusiast
gfp
Posted
just be careful when you don't need the meds anymore. i was taking a small dosage of celexa to take off the edge pre-diagnosis, and just quit taking it when i the doctor told me i didn't need it anymore. i know better, but i didn't taper the dosages. instead, i stopped cold turkey. HUGE MISTAKE that culminated with me telling the bf that i needed a couple of months for my hormone levels to return to normal while simultaneously sobbing uncontrollably for no reason. not a fun time. so taper off--no cold turkey.

Thanks for saying that... I was going to post a similar warning..... and like many have said if you can actually find you can cure it by going gluten-free (or at least manage it much better) it might be better than using psychotropics....

Mtndog Collaborator
Mtndog
Posted

I'm in this club too! I had very severe depression before going gluten-free and although I still take meds, at least they work now! My depression was very treatment resistant but it has gotten SO much better in my 2 years gluten-free that I rarely even think about it anymore. :)

Of course, until I get glutened and then it's more mood swingy and grumpy and anxious than it used to be. It used to be a very dark pit of despair. :ph34r:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.