Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Loaded-with-gluten Question

Silverfyre

By Silverfyre
in Coping with Celiac Disease

Recommended Posts

Silverfyre Rookie
Silverfyre
Posted

Hello,

My name is Chris and I'm a celiac.

I'm sure that one's been done to death but I couldn't resist. :ph34r:

Anyways, I have been gluten free for two years now and I have done what all of you have done: hunted through everything in our diet and house to make sure it doesn't have gluten in it.

My loving wife (God bless her and all the others who support us along the way) and I have been through. We only buy gluten free products that have gluten-free on the label or are from a company that lists gluten.

We have taken every step we can think of.

AND I still have the "Dreaded D". You all know what I am alluding too. It gets us in the "end" if you get my drift.

Being on the gluten free diet has helped some but I still have a lot of bad days. I've been on Imodium for several months now and it helps just a bit, not too much, and I'm beginning to worry about the long term effects of taking it for so long.

Do any of you still suffer from the "D" even though you have been gluten-free for a long time? I guess I'm just fishing for some advice here and maybe a little advice on what I can do to maybe help this.

Well, that's all for now.

It's a pleasure to finally find a great group of folk like yourselves. Been lurking long enough to see that I'm going to love it here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Chris:

Have you removed all hidden gluten from your diet, such as toothpaste, soap, shampoo, lotions, lipbalms.

UNCHeel Rookie
UNCHeel
Posted

Someone on this board a while back before I started visiting posted a long discussion about how some still feel symptoms many months after going gluten-free. I was recently diagnosed in Feb and really took her research into yeast overgrowth to heart b/c the symptoms are so much the same. I am now eating a very large container of plain yogurt with fresh fruit every two days. I am hoping that will help me greatly. Momma Goose however is the Board Expert so I would also look into the things she's suggesting. I know...some days it's like trying to avoid air. Hang in there!

Lisa Mentor
Lisa
Posted
Someone on this board a while back before I started visiting posted a long discussion about how some still feel symptoms many months after going gluten-free. I was recently diagnosed in Feb and really took her research into yeast overgrowth to heart b/c the symptoms are so much the same. I am now eating a very large container of plain yogurt with fresh fruit every two days. I am hoping that will help me greatly. Momma Goose however is the Board Expert so I would also look into the things she's suggesting. I know...some days it's like trying to avoid air. Hang in there!

Oh My. I don't think anyone is an expert at this stuff. You did bring up a very good point in that there can be other things here working and bacteria overgrowth is a possibility.

Silverfyre Rookie
Silverfyre
Posted
  • Author
Chris:

Have you removed all hidden gluten from your diet, such as toothpaste, soap, shampoo, lotions, lipbalms.

Yeah, we've pretty much switched to "pure organic" soaps and the like. I use Pantene and they confirmed with me that the shampoo I use is gluten-free. The toothpaste checks out as well. I'm beginning to wonder if I'm allergic to casein or something of that nature.

I've already cut out all the dairy, being lactose intolerant (aren't we all? :rolleyes: ) so I'm really wondering. I'll keep searching though!

sfm Apprentice
sfm
Posted

Chris -

I had a similar problem, although I am sure I wasn't being exposed to any gluten. I added a fiber supplement to my diet (making sure it was gluten and casein free) and found that it helped a great deal - I know it sounds backward, but it has made a big difference in my daily "routine." :blink:

Sheryll

Silverfyre Rookie
Silverfyre
Posted
  • Author
Chris -

I had a similar problem, although I am sure I wasn't being exposed to any gluten. I added a fiber supplement to my diet (making sure it was gluten and casein free) and found that it helped a great deal - I know it sounds backward, but it has made a big difference in my daily "routine." :blink:

Sheryll

What is the name of the fiber supplement you use? I'll try to find one around here and give it a whirl! Thanks for the advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

Chris, can you give us any kind of an idea what your diet is like? ( I know, we're all so nosy:)

gabby Enthusiast
gabby
Posted

Things got waaaaaaaaaaaay better for me when I stopped having all dairy (found out I was allergic to casein). It made all the difference in the world. Just mentioning this because I noticed you are lactose intolerant...and wondered if you're possibly also allergic to casein.

The easy way to test this out is to eliminate all sources of casein for about a month. I noticed an immediate small difference after just 3 days. But it took a full month of going casein-free to really see the results.

Hope this helps, and that you get to the bottom of this (sorry, couldn't resist the pun!) ;)

zkat Apprentice
zkat
Posted

Soy anything does it to me everytime. I am so sensitive that even a little bit of half and half in my coffee will give me an afternoon of misery. (and misery for anyone who has the misfortune of walking into my office at the wrong moment) HEhehe, no where else can I joke about that and everyone get it. I bet you guys all know why I have the strong vanilla candle in my office :lol:

Debbie65 Apprentice
Debbie65
Posted
Hello,

My name is Chris and I'm a celiac.

I'm sure that one's been done to death but I couldn't resist. :ph34r:

Anyways, I have been gluten free for two years now and I have done what all of you have done: hunted through everything in our diet and house to make sure it doesn't have gluten in it.

My loving wife (God bless her and all the others who support us along the way) and I have been through. We only buy gluten free products that have gluten-free on the label or are from a company that lists gluten.

We have taken every step we can think of.

AND I still have the "Dreaded D". You all know what I am alluding too. It gets us in the "end" if you get my drift.

Being on the gluten free diet has helped some but I still have a lot of bad days. I've been on Imodium for several months now and it helps just a bit, not too much, and I'm beginning to worry about the long term effects of taking it for so long.

Do any of you still suffer from the "D" even though you have been gluten-free for a long time? I guess I'm just fishing for some advice here and maybe a little advice on what I can do to maybe help this.

Well, that's all for now.

It's a pleasure to finally find a great group of folk like yourselves. Been lurking long enough to see that I'm going to love it here.

You know , I

sfm Apprentice
sfm
Posted
What is the name of the fiber supplement you use? I'll try to find one around here and give it a whirl! Thanks for the advice!

Sorry for the late reply - I take 'Renew Life' Fiber Smart - it comes in either capsules or powder. I take the capsules, but I know the powder comes with an additional probiotic blend, which is also good.

I get it from Vitamin Shoppe, but it's a brand that is probably available at other vitamin or health food stores.

I hope that helps!

:)

Sheryll

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.