Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Started


psparks

Recommended Posts

psparks Newbie

How do I start eating Glueten Free? Can I find these products at my local store? I live in a very samll town and I ahven't seen any of these products there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Getting started means going simple at first. Start with meats, seafood, rice, eggs, potatoes and fresh veggies and fruit. All of this is readily available. Prepare them with limited spices. Salads are general hard to digest in the beginning.

Limit your dairy consumption and gradually reintroduce with after you are comfortable with the gluten free diet.

Make sure to check your shampoos, lotions and lip balms because they may find their way into your mouth and hinder your healing.

I know that you are most likely a little overwhelmed right now, but it does get easier.

Reading everything you can find on this site will be a tremendous help.

Welcome to the board. :)

Susanna Newbie

Hi--welcome to the boards. I know it feels a bit overwhelming at first, but trust this: you will figure this out, and you will adjust, and best of all---now you can eat to treat, and soon feel better. Here are some key coping strategies to get you started. If your town doesn't have a health food store, you might end up shopping on the Internet a bit. www.amazon .com has a lot of gluten-free foods. Otherwise, stick to foods that are naturally gluten free, as the previous person who posted recommended.

1. Know that you will grieve your old favorite gluten-filled foods. I actually tear up when I see a croissant sometimes. Grieving is normal, BUT DON'T EXPECT IT TO BE EASY OR COMFORTABLE. People around you will eat treats you can't have and you will feel sad and isolated. Strategy: stock your car, office, purse, backpack, secret drawer at home with gluten-free treats you can reach for any time you are feeling deprived. This really helped me. I recommend Baby Ruth Bars, Snicker Bars, Lara Bars, Dove Dark Chocolate, meringue cookies, macaroon cookies (read labels), Butterfinger, Reeses Peanut Butter Cups. You get the idea.

2. Know that it will take time (months, probably) to figure out what to eat (it took me 6 mos.) and during this time, it'll be kind of a daily challenge to plan meals. Every time you go to the store it'll be a challenge to choose groceries. Strategy: plan on an hour--don't bring kids or friends. Go the bathroom before you start grocery shopping. Bring your reading glasses--read every label. The good news is, THIS GETS MUCH BETTER OVER THE NEXT SEVERAL MONTHS AS YOU GET USED TO TO THE DIET.

3. It may take a while for your gut to heal, depending on how damaged it was at the time you went gluten free. So, you are going to have to be patient with your body--some people feel better immediately after going gluten-free, but most of us take longer than that. Don't give up if you don't see instant results. Strategy: Maximize your general health by getting enough rest, water, exercise, and limiting stress. Maximize your digestive health by limiting foods that are hard on the gastrointestinal tract until you're feeling better: limit irritants like dairy, caffeine, alcohol, and fried foods--these are all hard to digest--go back to them when you feel your gut is recovering.

4. Accept right now that it will be YOUR job to teach those around you about your diet

psparks Newbie

Thanks for your reply. I am a little over my head in this. I was reading an article in a Woman's World magazine. I couldn't believe that all the symptoms that were talking about, I have. I have spent so much money going from doctor the doctor and all they can tell me is that I have IBS. I told the last doctor that I didn't except that and I wanted to know why I feel so bad and spend so much time in the rr. I am going to see a nutritionalist tomorrow and I plan on bring the article with me to see what she has to say about this.

Once again thanks.

psparks

Lisa Mentor

I read that article also and I must add that it was full of inaccuracies. It made little mention that gluten can cause damage to the small intestings and left unchecked can lead to very serious conditions, for those of us that have Celiac Disease.

The article made reference to a food allergy. To many of us it is an intolerance.

If that article can lead you to a proper diognosis, that is a good thing. I would like to suggest that every thing you need to know about celiac of gluten intolerance can be found on this site.

Lisa Mentor
Thanks for your reply. I am a little over my head in this. I was reading an article in a Woman's World magazine. I couldn't believe that all the symptoms that were talking about, I have. I have spent so much money going from doctor the doctor and all they can tell me is that I have IBS. I told the last doctor that I didn't except that and I wanted to know why I feel so bad and spend so much time in the rr. I am going to see a nutritionalist tomorrow and I plan on bring the article with me to see what she has to say about this.

Once again thanks.

psparks

I would recommend that you copy the Home Page here that describes what Celiac is and bring that to your nutritionalist. It is more infomative. Good luck tomorrow.

Guest lorlyn

Just wanted to say hi and welcome. This site has been a god send for me and my family. Just keep your spirts up and read labels and this site and you will make it through :rolleyes: Good Luck


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
How do I start eating Glueten Free? Can I find these products at my local store? I live in a very samll town and I ahven't seen any of these products there.

Dear psparks,

I was ecstatic when I saw the article in there! Woman's World is my favorite magazine!

I have a list that should really help. This is overwhelming. I went through this with myself seven months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margerine

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

psparks Newbie

thanks for all you help. The list you sent me is wonderful. I really appreciate this very much.

kdean823 Newbie

This list is awesome and was just what I was lookng for! I'm happy to see I won't have to give up as much as I thought! LOL I appreciate your work on that! I'm not feeling nearly as overwhelmed.

Kym

Dear psparks,

I was ecstatic when I saw the article in there! Woman's World is my favorite magazine!

I have a list that should really help. This is overwhelming. I went through this with myself seven months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

SunnyDyRain Enthusiast

If you can get to your GP, and they are somewhat openminded, I'd try to get an appointment ASAP and get the Celiac blood tests done. They need to still be done while you are eating gluten. This will give you a solid diagnosis, and that may be needed for some insurance purposes.

But if you can't, don't fret, some people don't get diagnosed, they just respond positively to the diet!

NoGluGirl Contributor

Dear psparks and kdean823,

You are so welcome! There are some wonderful options out there! I am glad you are feeling less overwhelmed now. Some places have had reports of cross-contamination you should know about. Steer clear of Quaker, Bob's Red Mill, and Amy's Kitchen. They are not wheat-free facilities! It is not worth the risk! Also, Lay's makes Tostitos and Fritos and some other snack foods you should be careful with. I got sick from Tostitos recently. They are not made on dedicated lines. Stick with the Lay's Stax. They are made on dedicated lines. Hormel Beef and Pork Au Jus Entrees also have had reports of cross-contamination. Avoid those!

Here are a few things I forgot to put on the list we can have:

Yoplait Yogurt (Will clearly label gluten if present, this includes Whips! Try the Latte flavor!) I cannot eat this anymore. I had to stop eating dairy except a really small amount like in chocolate once in a while. :(

Hormel Pepperoni

Fresh Express Salad Blends

Planter's Nuts (They are clearly labeled when gluten is present, they are made by Kraft)

Skittles

Starburst Candies

Jelly Belly Jelly Beans (all flavors except for cinnamon toast)

Kraft Minute Rice

* If you want to save time at the grocery, make your list by department. That way, you do not have to run back and forth from frozen to canned foods, etc.

* Do all of your cooking in one day if possible. I have difficulty doing this, because I have limited cookware, however, if you can afford to buy a new set, do so. A crock pot is terrific as well. You can cook all of your meals for the week in one day over several hours, then have everything ready and freeze it in airtight containers such as Gladware or Ziploc.

As far as blood tests go, mine were negative. This was many years ago, back in late 2000. They tested for different antibodies than they do now. I was seronegative. However, my doctor says I am Celiac, due to my medical history (anemia, gallbladder disease, digestive issues, thyroid trouble) and she has had a handful of patients who were Celiac test negative through bloodwork. She feels they are not accurate. Many people on here spoke about Enterolab testing. They do a panel for Celiac, Gluten Intolerance, Soy Intolerance, Egg Intolerance, and Casein Intolerance. This is done by testing the stool sample for antibodies. They also do a test for the Celiac and Gluten Intolerance genes. The entire panel costs $380. If I could afford it, I would get it done. Unfortunately, I do not have insurance and am too ill to work. However, I have other issues aside from this, such as an overgrowth of Yeast.

Sincerely,

NoGluGirl

  • 1 year later...
wockandwoll Newbie

Those Fresh Express Salad blends... I got one with chicken in it. Do we know if the chicken is ok? And the dressings?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,960
    • Most Online (within 30 mins)
      7,748

    PMcCauley
    Newest Member
    PMcCauley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
    • Scott Adams
      This article might also be helpful, as you could have DH: https://www.celiac.com/celiac-disease/understanding-dermatitis-herpetiformis-the-skin-manifestation-of-celiac-disease-r6361/
×
×
  • Create New...