Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor


bchapa

Recommended Posts

bchapa Newbie

Our doctor told us that our son was tested for genetic markers DQ8 and DQ2 and because the test was negative (he did not have these markers) he absolutely can not have celiac disease.

Has anybody had this test?

How much of a guarantee is this test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

These are the only two KNOWN genetic markers for celiac. They know that they are others because only 85% (I think that's the right number) of biopsy-proven celiacs have DQ2 or DQ8.

That also doesn't mean that he doesn't have gluten intolerance, which is equally as serious as celiac.

There are a lot of people here who had negative or inconclusive test results. Many of us tried the gluten-free diet out of desperation, just to see what would happen. Then lo and behold, we started feeling better and never looked back.

You might want to consider testing through Enterolab. www.enterolab.com They also do a genetic test, but look for all of the genes that are connected to any form of gluten intolerance. It's sometimes nice to know what genes you're dealing with because there's usually someone else here who has the same one.

Really though, trying the gluten-free diet is the only way to know for sure if that's what the problem is.

Nancy

chrissy Collaborator

save your money----i can tell you your test results from enterolab already-----they are going to tell you that your son has a gluten sensitive gene.

your doctor is wrong in saying that your son can ABSOLUTELY not have celiac without DQ2 or DQ8, but chances are he probably doesn't have celiac without them----however, he could still be non-celiac gluten sensitive, and only the results of a gluten free diet will tell you that.

confused Community Regular
Our doctor told us that our son was tested for genetic markers DQ8 and DQ2 and because the test was negative (he did not have these markers) he absolutely can not have celiac disease.

Has anybody had this test?

How much of a guarantee is this test?

I have celiac and i do not have DQ2 or DQ8

paula

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    2. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    3. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    4. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,129
    • Most Online (within 30 mins)
      7,748

    PorkchopKate
    Newest Member
    PorkchopKate
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.