Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Without Weight Loss Or Stunted Growth?

momtogavin

Recommended Posts

momtogavin Newbie
momtogavin
Posted

Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shayesmom Rookie
shayesmom
Posted
Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie

Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

momof2sn Apprentice
momof2sn
Posted
Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

What is the difference between gluten sensitivity and celiac disease??

2kids4me Contributor
2kids4me
Posted

Celiac disease is an autoimmune disease. The body reacts to the gluten as an invader and attacks the intestinal villi where the gluten is absorbed = flattened villi, damaged intestine, malabsorbtion. Untreated celiac may also result in other autoimmune conditions if left untreated.

Gluten sensitivity has many similar symptoms to celiac but the villi are not attacked by the immune system.

Removing gluten form the diet solves both conditions.

Lactose intolerance and/or casein allergy/sensitivity has intestinal symptoms (and skin) too.

Blunted villi can be found in cases of casein intolerance bu the damage is not as severe as in celiac . Blunting as opposed to complete flattening and lymphoctyes invading.

I probably dont have all the info - I hope other posters will correct me if I am wrong and/or offer further insight.

**my daughter was bloated and considered overweight at the time of diagnosis. She "slimmed out" within weeks of gluten free. It wasn't fat - it was fluid retention and bloating

Sandy

ptkds Community Regular
ptkds
Posted

My dd was the biggest out of all my kids, and she was the first one diagnosed w/ celiac disease. I am overweight and I was recently diagnosed w/ celiac disease. So yes, it is VERY possible to be big and still have celiac disease. You should request the test. It won't do any harm to check.

ptkds

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,746
    • Most Online (within 30 mins)
      7,748
    Joannad
    Newest Member
    Joannad
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Still unsure.....

      By Wheatwacked · Posted

      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Any bad experience with King Arthur Gluten-free bread flour

      By RMJ · Posted

      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...