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Do You Always Have The Same Symptoms When Glutened?

angel42

By angel42
in Coping with Celiac Disease

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angel42 Enthusiast
angel42
Posted

Hi,

I was just curious. I always experience extreme gi symptoms and brain fog when glutened. I went to dinner two days ago and had terrible brain fog after and all day yesterday but no gi symptoms. I am not sure that it was gluten since I had no gi symptoms but I really feel like the brain fog was the same. Can I have still been glutened even without the gi symptoms? Are everyone's symptoms of glutening always the same? Let me know!

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luvs2eat Collaborator
luvs2eat
Posted

Mine are always the same... WICKED GI symptoms... I tell my husband it's wolverines trying to scratch their way out!!

Don't have brain fog... thank goodness!! Just GI repercussions.

angel42 Enthusiast
angel42
Posted
  • Author

Maybe I am just sleep deprived. My husband and I actually refer to gluten as "poison" cuz that is how I feel when I eat gluten, like I have been poisoned.

chocolatelover Contributor
chocolatelover
Posted

Hmmm...I get it all--GI stuff, mouth sores, brain fog, lack of energy, depression, nasty irritability. I think my husband wanted to divorce me last time I got glutened! :lol:

annie-is-GF Newbie
annie-is-GF
Posted

I was diagnosed not too long ago... a few weeks... and I have been glutened a couple of times since cutting gluten out. My symptoms have been really random - the first time I went from being cheery and happy to being incredibly irritable and groggy in about 15 minutes, with a distended abdomen... the next day I developed a migraine which lasted for 2 days.

This past week I was glutened again at a restaurant (stupid lack of nutritional information!) and I didn't get groggy or irate... just had mild GI symptoms. At least I THINK it was gluten... but maybe it was the ice cream I had :)

It's still very early in the game for me but I have already noticed different reactions to gluten!

gfp Enthusiast
gfp
Posted

I find it tends to vary....

Sometimes a small amount and the GI symptoms are minor but brain fog isn't... then other times if I drop some immoium early I can get less brain fog and who knows...

I also find that for instance a long gradual glutening (such as eating a CC'd item for a week or drinking vodka) are different..

The slow but long term very small amounts tend to hit more randomly on GI but more on neuro... I start loosing feeling in my right pinky... so even the type of glutening seems to affect the subtle parts of it.

Kyalesyin Apprentice
Kyalesyin
Posted

My wife finds that it seems to vary depending on ammount. The sleepwalking toast got her a lot worse than the time I got crumbs in the butter. Brainfog and skin breakouts are her two though, no matter what else she gets, she gets those.

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aikiducky Apprentice
aikiducky
Posted

I don't necessarily get bad GI symptoms at all, but brain fog is a guaranteed one if I get glutened. GI symptoms seem to vary a bit depending on amount, time of month, and what else I have eaten at the same time.

Pauliina

NorthernElf Enthusiast
NorthernElf
Posted

My symptoms are somewhat variable.

Always - brain fog, irritability, tiredness, sinus congestion & pain that means major headaches, acid reflux, bloating

Sometimes - the intestinal issues, nausea, joint pain

I had some ice cream last night that definitely had no wheat/gluten ingredients but my sinuses did flare up & I felt really tired - I'm thinking there might have been some cross contamination so I won't eat anymore of it. I didn't have a very good sleep last night.

So...I guess you could say if I have mild exposure (cross contamination), my symptoms are a bit different. If I eat something that has gluten in it in that I didn't realize, my symptoms are more severe AND longer lasting. I *shudder* to think what my symptoms would be if I actually ate bread or something !

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

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