Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rediculous Conspiracy Theory, Or Not?


UR Groovy

Recommended Posts

larry mac Enthusiast

Here in Texas, you must have a new prescription every year to buy new eyeglasses or contact lenses. Not only that, I wanted to purchase a different brand of contact for my son (he had colored lenses and we wanted to go to clear). Well, the "store" (they make a phony attempt to physically separate the vision place from the main store by a door, as it's required to be a separate entity by law) at Walmart wanted to charge me a fee the same amount as the examination just to change the prescription.

Needless to say, I told them where they could shove it and that they would'nt be getting any more of my business (the optometrist, not Walmart, got's to have my Walmart). What a ripoff.

Back on topic. There must be some balance of our right to obtain supplements, and the governments duty to ensure said supplements are safe and not allowed to make wild claims as to the medical effectiveness of the product. In the late 1800's and early 1900's, products were sold claiming to cure any and all ailments, and sometimes were mostly only alcolhol, maybe some morphine, stuff like that. If they were allowed to, supplement makers would make all kinds of BS claims.

So if you go back and carefully read the health rangers interpetations of the proposed regulations, it's obvious (to me anyway) that he is seriously misrepresenting the intent, and outright lying about the consequences. At least that's my opinion.

gfp, you said:

"The one pattern I always find true is that when an industry puts forwards the regulations its always to their advantage and the consumer is an afterthought."

You got that right. I don't trust corporate America one inch. Maximum profit is their God.

best regards, lm


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
Here in Texas, you must have a new prescription every year to buy new eyeglasses or contact lenses. Not only that, I wanted to purchase a different brand of contact for my son (he had colored lenses and we wanted to go to clear). Well, the "store" (they make a phony attempt to physically separate the vision place from the main store by a door, as it's required to be a separate entity by law) at Walmart wanted to charge me a fee the same amount as the examination just to change the prescription.

Needless to say, I told them where they could shove it and that they would'nt be getting any more of my business (the optometrist, not Walmart, got's to have my Walmart). What a ripoff.

Back on topic. There must be some balance of our right to obtain supplements, and the governments duty to ensure said supplements are safe and not allowed to make wild claims as to the medical effectiveness of the product. In the late 1800's and early 1900's, products were sold claiming to cure any and all ailments, and sometimes were mostly only alcolhol, maybe some morphine, stuff like that. If they were allowed to, supplement makers would make all kinds of BS claims.

So if you go back and carefully read the health rangers interpetations of the proposed regulations, it's obvious (to me anyway) that he is seriously misrepresenting the intent, and outright lying about the consequences. At least that's my opinion.

gfp, you said:

"The one pattern I always find true is that when an industry puts forwards the regulations its always to their advantage and the consumer is an afterthought."

You got that right. I don't trust corporate America one inch. Maximum profit is their God.

best regards, lm

Larry, the bottom line is you have to trust someone... ?

corporate America isn't evil... its just doing what it does... the purpose of compnaies is to maximise profit, pure and simple...

Where this gets complex is who should regulate? This is pretty much divided between the market regulating itself and someone presumably government or elected bodies ....

The problem with self-regulation is illustrated by your snake oil example...

Specifically talking about medicine sick people will try most things, dying people almost anything...

One stance is that its OK, if people are stupid enough to think the cure-all will cure cancer its their fault.... ultimately that its OK to advertise cigarettes to kids and give out cigarette candy to schools....

The other camp say's its not acceptable to prey on people who are desperate....or try and get kids used to smoking at school...

Its not so simple as right and wrong.... but I think one has to admit that self regulation rarely works because each company is competing with others... selling snake oil to the cancer victim ... well presumably people will not buy what doesn't work but then morphine probably does make them feel better... :D its also addictive... so apart from todays illegality would it be a problem? My personal feeling is that it is if it stops them getting real treatment might actually save their lives.... hard line capitalists would say it doesn't matter... they die and the market shrinks... hence automatic self regualtion.???

I'm not really of the opinion this is what Adam Smith meant by market self-regulation ....

I think the biggest problem and its more acute in the US perhaps is the issue of lobbying...

What used to be issues such as the ability of a state to transport a food crop elsewhere has now been completely changed because the issues have changed... we are talking about things the senators can't understand like pharmacutical products you need to be an expert to understand... so what it being presented is easily twisted ...

Its a tough call, look at medical lobbying.... should a doctor endorse a product they beleive is ineffective if the company offer to donate a expensive machine to the hospital? That machine might save dozens of lives... so is it ethical for a MD to turn it down because they have doubts over the efficincy of some pharmacutical product?

Its a mine field.... if we ban practicing MD's from endorsing product perhaps some good ones won't get used?

RiceGuy Collaborator
Where this gets complex is who should regulate? This is pretty much divided between the market regulating itself and someone presumably government or elected bodies...

I think the biggest problem and its more acute in the US perhaps is the issue of lobbying...

Yeah. Just take Open Original Shared Link for example. The FDA keeps companies from using it in any food products, and even raided a company's facility, confiscating a product which was being made with Stevia as an ingredient. Yet at the same time we get artificial crud like aspartame, which to this day is still legal despite all the actual medical evidence proving it is harmful. Heck, it's well known Aspartame becomes even more toxic when heated, but I'd bet there are lots of people baking with it anyway. It's just too easy to misuse, as it can't serve as a replacement for sugar in what is probably the majority of things the consumer would do with sugar. How is this benefiting us as consumers? They don't have any evidence showing Stevia to be harmful, and dozens of studies have been done all over the world showing it's safe. Not to mention is has been in use for centuries, and no side effects have ever been seen. Even ordinary sugar has side effect, such as tooth decay just to name one. So if you want a conspiracy theory, look at the Open Original Shared Link issue. Thank goodness it can be obtained as a supplement, but manufacturers are prohibited from saying anything about it being a sugar substitute on the package. They can't even say it's sweet! So the consumer won't know what to do with it unless they know from elsewhere. Ask yourself why there hasn't been any major news media bring this to public attention...

So that's what happens when the government and big business get involved in such things. When there's profit involved, there's corruption. And we the consumers pay the price several times over.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.