Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Blood Work


momof2sn

Recommended Posts

momof2sn Apprentice

I joined this message board on the 18th of April in dispair. My daugter, 21 mo, had an endoscopy on the 28th of March with a negative biopsy. She had the genetic make-up for celiac. The doctor pointed out that her B-12, folate and iron were low. She was lactose intolerant and her intestines were inflammed. She has also had diarrhea forever. Well, I got on here and basically said "HELP" Because of all of you I was compelled to call the doctor. The next day, she called, the blood work that was ordered for July (we were on a wait and see for my baby) was never done the first time!!!!!!!!! A big OOPS on there part!! We had the blood work done last Tuesday and by Friday I had learned enough and put here on the diet. Well two days later no more diarrhea!!! No, I didn't think I could get so excited about poop!!! Anyways, doc called me yesterday morning and said her blood work was positive!!! They want to do another endoscopy, I said "No" She was shocked I had already put her on the diet and said most moms want a positive biopsy to go with all the symptoms before they try the diet. I said all of this to say "THANK YOU". If I would have not gotten so much information and encourgement from all of you, I probably would still be dealling with diarrhea and not know any different!!

Ya'll are a great group of people and should pat yourself on the backs for helping my little baby get well, for good!!!!!!!!!!!!!!!

Shealey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Glad to hear everything worked out for you. Your daughter will feel much better soon.

Canadian Karen Community Regular

That's wonderful news! You will soon notice some wonderful, positive changes in your child now! She is on the road to health!

Hugs and welcome!

Karen

Lisa Mentor

It wonderful to hear about some good news. I am so happy for you and your daughter!

JennyC Enthusiast

I'm so happy to hear that your daughter is getting better! It's amazing how happy we can get over poop! :lol: I hope your daughter continues to thrive on this diet and that you will be amazed by her progress.

Ursa Major Collaborator

Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

momof2sn Apprentice
Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

She is only on a multi-vitamin. Should she be on anything else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.