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Ny Timies Health Page

phakephur

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phakephur Apprentice
phakephur
Posted

There is an Open Original Shared Link about gluten free diet. No new information.

The link may not work if you don't have an account.

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eleep Enthusiast
eleep
Posted

Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

mandasmom Rookie
mandasmom
Posted
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

I actually think it was a really good article.

spunky Contributor
spunky
Posted

Well it's interesting, and probably informative...but, I feel somewhat irritated at the tone of the article in general. Being undiagnosed, mostly because I have no faith in doctors and am accustomed to dealing with problems on my own, I am quite sure by this time that I do have celiac disease, but have no "doctor proof" on paper. It's kind of embarrassing to me to think that people who know I avoid gluten may get the idea that this is some hypochondriacal, "alternative" trend or something, and not take me seriously, either for all the suffering I've been through or all the care I now KNOW I need to take in choosing my foods.

There seems to be this double-edged message: Yes, on the one hand, celiac is much more common than previously believed, and more and more people seem to be gettting it--and on the other hand, hypochondriacs who read a lot are having some sort of psychotic episode, IMAGINING that they have this trendy disorder.

eleep Enthusiast
eleep
Posted
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

Yes, it was a really good article in a lot of ways. I may just idealize the Times a bit too much and have gotten my hopes up about the extent to which they might be able to call attention to the whole thing in all its complexity. It's just really good that this made the Times! Celiac has gotten so much amazing publicity in a very short amount of time.

They mention latent forms of the illness and they mention depression, which are both very important aspects of the issue.

kbtoyssni Contributor
kbtoyssni
Posted

I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

ENF Enthusiast
ENF
Posted

I'm really happy about this article - many more people will hear about Celiac because of it.

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mookie03 Contributor
mookie03
Posted
I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

Funny, i laughed when they talked about using the diet to lose weight because you cant eat twinkies - i for one ate healthy before the diet and now i eat much more sugar, carbs, etc. b/c the gluten-free substitutes are simply not as healthy as their gluten-filled counterparts. I didn't love the tone of the article - i was thinking that if i didnt know anything about gluten i would have thought it was some weird fad or something. The writer seemed to think that people are blaming gluten for everything, when really i think a bigger problem is the lack of knowledge about gluten.

But, publicity is publicity. Great to see gluten in the times!

ekdumas19 Apprentice
ekdumas19
Posted

I was totally put off by this article. It barely touched on the symptoms or the struggles of people with celiac disease. Eating even small traces of gluten entirely interupts my life, its not just a nuisance. And by saying that gluten free products are practically on every shelf, it makes it seem like its not big deal. Well its a big deal to me! I mean yeah there are so many gluten free products out there, but a majority of them still taste terrible, are highly caloric, fall apart if I breathe on it, and are terribly expensive. I dont know anyone else who pays almost 5 dollars for a loaf of bread! Take out and delievry pizza is a pipe dream, nevermind eating out in restaurants still makes me nervous. Don't even get me started on people using a gluten free diet as a way to lose weight, I could literally smack them upside the head. Don't get me wrong, we have come a long way in terms of education, awareness, and the amount of gluten free products available, but I think the NY Times hardly did celiac disease, or even gluten intolerance justice.

ENF Enthusiast
ENF
Posted

Well, this may come as a shock to some, but take out and delivery gluten free pizza is not a "pipe dream" in NYC, and you can have many other foods from the gluten free menus in a number of restaurants here as well. It's only a matter of time until other areas have these options, and gluten free accomodations and services are still in their infancy in NYC.

glutenfreenew Rookie
glutenfreenew
Posted

Picazzo's is a restraunt chain in AZ that serves gluten free pizza. a little expensive but good.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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