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Dapsone Dosage And Side Effects

elonwy

By elonwy
in Dermatitis Herpetiformis

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elonwy Enthusiast
elonwy
Posted

So my DH finally flared up to the point where I needed to try the drugs. Usually its manageable with steroid cream, but its been crazy lately, to the point where I wake up scratching in my sleep.

He put me on 100mg/day. By the second day I was having blurred vision, dizziness and some other odd effects that had me rather freaked out. I'm on the small side, I'm 5'1 and weigh about 130lbs.

My question: What dosages are people on, and what side effects do you have?

Thanks

Elonwy

PS: I'm gluten-free, but recently lost weight, which is what I think is causing the flare-ups. I'm having no Celiac symptoms, just the DH.

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lovegrov Collaborator
lovegrov
Posted

Many years ago I started at 100 but had to reduce almost immediately to 50 because of white cell count changes. Eventually I ended up at 25 because that controlled it. I can't say whether dapsone is causing the problems you're having, but for many people 100 just isn't necessary. Especially if you're gluten-free. I'd try no more than 50, and maybe even 25.

richard

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