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pedro

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pedro Explorer

Hi I was looking at the main page and I see more than 100 people logged on as guest. :ph34r:

Please don't be affraid. :unsure:

I've only been here for almost two months, the help, and support that found here is enormous. ;) Everyone is very humble and ready to help. From an advice to a prayer we are here for you. We all know what struggles and concerns one can have at the beginning.

Here you will make friends that will last forever.

So I encourage you to come out, here we all are like the three musketeers. "One for all, and all for one"

Take care. :lol::lol::lol:

Pedro


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confused Community Regular

I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

pedro Explorer
I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

Paula to funny :lol::lol::lol:

confused Community Regular
Paula to funny :lol::lol::lol:

Now you know why i dont take meds, i get goofy off of tyenol lol

paula

pedro Explorer
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

Paula

Good for you. We have enough with gluten. I told the doctor I am not taking anymore the librax, I like my hyperactivity.

Lisa Mentor

Okay Pedro, how did you find us? You start ;)

happygirl Collaborator

Pedro, well said :)

I think we all "lurked" for some point...I know I did!!!!! Even after I joined, it took me awhile to get going.

Happy that you have joined us...and hope that others will as a result of this post.


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pedro Explorer

Okay

I found this site on a day that I was sooooooo tired and so sick and without any hope of solving any of my digestive issues. I was ready to belive it was all in my head. I google for support groups and this came out. It was destiny. You guys open my vision you gave me hope, I found thru one the postings about EnteroLabs, and the rest is history. Thru your experiences I've been able to share my story and educate inform many people about Celiac and gluten allergies.

You all are a blessing!!!!!!!!!!

I did plenty of lurking here. :ph34r::ph34r:

The first post is the hardest. the rest comes very easy, because you feel at home immediately here.

Pedro

little d Enthusiast

HI

Yes I was a lurker too and I was looking to a join something I applied to some other site but never got a response back and as soon as I put my info in I got the response back, Thanks to who is in charge of the sign up. I also have learned alot on here, alot more is making sense.

Donna

Canadian Karen Community Regular
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

LOL! Times like that, you need to alter your screen name to "Dazed and Confused"!!!! :lol:

chocolatelover Contributor

I don't even remember how I found this site...I just know that it's been such a blessing to me. I lurked for a long time, and then when I finally got up the nerve, it seemed like every time I posted I killed the topic! :blink: I still spend a fair amount of time lurking, but I really try to share my experiences, thoughts and recipes, etc. Anything to make it easier for others who are new or struggling or confused. It's been such a lifesaver to be able to hop on here whenever I want and pretty much be able to find whatever I need here. I've said it before and will say it again--I've learned soooooo much more from the people here than from almost every doctor I've been to.

It can also be a great soursce of entertainment at 2:00 in the morning when I can't sleep! :lol:

Guess I'd consider myself a double lurker, too. :ph34r::ph34r:

CL

loco-ladi Contributor

I was handed a list of foods my cousin could no longer eat, she didnt know why.

My doctor didnt offer any answers he sent me away with more pills that didn't fix anything.

I took "the list" to the local dietician who did a bit more research, I think she may have actually looked at it, she said that "most" of the things on my "list" contained gluten, but she didnt know if that meant anything.....

I did a search for "gluten" and ended up here after a bit, lurked for a while.... signed up..... lurked more...learned more...... researched more.....

Confronted my Dr numerous times, came away with more pills that didnt work......

Finally said screw the dr's and diagnosed myself.

2 months later feeling better, not 100% but a dang site better getting better daily even tho I dont always notice the daily changes.

Abbygail Newbie

The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Guest KG in FL
The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Why is lurking so bad?

Lisa Mentor
Why is lurking so bad?

Lurking is not so bad, it's just a kind invitation to join us. :)

wowzer Community Regular

I didn't lurk on here too long. I first found the site after looking up itchy rashes. I thought maybe I had DH. Then I had a biopsy that came back spongiotic dermatitis. I found the natural cure for it was a gluten free diet and it led me here.

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
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