Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anybody Have This

little d

Recommended Posts

little d Enthusiast
little d
Posted

Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted
Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna

I had it. Don't any more. Mine was related to food allergies. I've read it can be caused by dairy and indeed I had a dairy allergy. Daughter still has it. She too has a dairy allergy and a gluten allergy among other. I've been told by my naturopath that sea salt will make it go away. She sells bars of Himilayan sea salt. She said she used one on the bath and hers went right away.

dionnek Enthusiast
dionnek
Posted

Where do you get this? Not sure if this is what I"ve had for about 15 years (only about 50 dermatalogists couldn't figure it out!), but I have it on the insides of both shins and it is very itchy. Of course I scratch it and it bleeds and scabs, etc. Retin A didn't help (tried that in high school) and I think I've had every kind of cream imaginable and nothing helped. Have you found anything that gets rid of it? I would love any suggestions! I've been told it's eczema, psoraisis, ingrown hair, and many "Don't know" from dermatologists! Has not gone away with a gluten-free diet (been gluten-free for one year now - confirmed celiac last May).

little d Enthusiast
little d
Posted
  • Author

Hi Dionnek

I have this Keratosis Pilaris (little pimpply bumps that have ingrown hair that will come out when they get a little festered) I have had this all my life I don't ever remember a time when I have not had anything. On me they are all over mostly arms (usually they are on the back of the arms, thighs, buttuck area) Not me I have it all over. My sister always thought that is was lack of taking a bath and not washing good enough as kids well little did she know that it was and is something real. When I was 22yrs old I fianlly went to a dermatologist after I had an old boyfriend freek out on me because he wanted to be touchy feely and I did not want him to touch my arms or legs, because I didn't know what it was that I have had all my life, He demanded to know of course he never offered to pay for the bill. The Dermatologist know exactly what it was and also proptly wanted to check my thyroid levels, put me on Retin A which was not good for my skin totally broke out in hives and itched really really bad not a pretty site. I can not use a lot of Lotions especiallly with fragrance in it. I have learned to live and accept that it had unsightly arms and legs at times. At one time I thought I had a small case of DH last summer on my knees, sure did look like the pictures that I saw on the web, but it could have been from the sun lotion that I put on will swimming, with combo of eating Wheat bread sandwiche at that time I had been on gluten-free for 4 months and feeling great. I never went to the doctor to get anything diagnosed. I finallly stopped itching enough to be able to function so i never made a Dr appt. to see what the rash that I had. Yes I was eating gluten-free before I got tested for celiac disease, which made everything come back negative.

Later Donna

little d Enthusiast
little d
Posted
  • Author

Dionnek, sorry I went off on a stupid old boyfriend and did'nt really answer you question. No it has not gone away on a gluten-free diet. It got better but still had it not as bad when I was pregnet with my daughter I drank water like it was going out of style, the one and only thing I think that I craved at that time. My skin did look better, lotions don't help, my guess I that maybe it is connected to staying very hydrated, but I have to force myself to drink water. It is genitic and my daughter has some bumps on her arms and she is getting a little freeked at times because she does not like them. Do I wish that I could have smooth silky skin like everybody els of course, but God made me like this and I have learned to deal with it, am i still embarrased by my arms, sometimes, will I let my husband caress my arms and leg(NO WAY) for me it is irritating for my arms to be caress. I'd rather caress him very ralaxing for me that is. Ok I know a little too personal sorry!

Donna

NWLAX36Mom Rookie
NWLAX36Mom
Posted

My son has had it on his arms and cheeks ever since he was a baby. Once a doctor recommended Eucrin Plus cream in the jar. Don't know if that is something safe for a celiac to use but it does help him if he uses it consistently.

Flor Apprentice
Flor
Posted

I've had it since I was a kid (or a baby) -- just on the back of my arms. it's not itchy for me but as an adolescent I couldn't leave it alone and so it was irritated all the time. My husband has it and our son has had it from birth. Interestingly, I did NOT have it while I was pregnant and that's the only time in my life.

I ignore it -- it's worse in winter and better in summer. I haven't read anything about it being associated with food allergies or celiac disease, but then there's so much we don't know.

A dermotologist gave me some heavy-duty lactic acid lotion for it when I was younger but it didn't seem worth the trouble or expense to keep doing it. It helped a little. The dermo also told me it was genetic.

I'll do some research on this and let you know if I learn anything new.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

My DS had this from early childhood. It went away after he was gluten free for a few months. So did everybody's acne in my family. Oh and the exzema. And of course my DH.

Generic Apprentice
Generic
Posted

My daughter has this and I have had a couple of friends with it as well. I believe it is a vitamin A defincency. I know a couple of people who have asked dermatologists about it and they say they don't know or it's normal. Whatever!

Try taking vitamin A and see what happens. It only returns when my daughter quits taking the vitamin A, same as for 1 of my friends. Fish oil particularly cod liver oil works really well.

The other friend doesn't bother becasue she doen't care, it doesn't bother her.

Yenni Enthusiast
Yenni
Posted

I have had it my whole life. It used to be on my face a little but now I am mostly just red there kinda. Very soft skin otherwise.

But I have it on the back of my arms. I can't feel it much, never had a problem with itching.

I read and was told cremes with AHA and BHA is good for it. You gotta keep that skin out of the sun though when you use that type of creme.

I am not using anything on it when I don't feel it in any ways. I think I have a milder one. But the AHA/BHA stuff can make your skin a bit irritated so I stopped using it.

My brother has this too and also my mom some. It's from her side of the family. I think grandpa had some too...

Going gluten free hasn't made any difference so far.

CarlaB Enthusiast
CarlaB
Posted

I had this on the back of my arms and the sides of my legs/buttocks. It has completely gone away since I've been gluten-free ... so have my rough elbows.

  • 6 years later...
AlwaysLearning Collaborator
AlwaysLearning
Posted

Ingrown hairs of all sorts all over my calves. Definitely worse when I had an influx of gluten into my diet. Definitely better after going gluten free.

It was actually one of the symptoms that helped me figure out that my body was reacting to something I was eating. And my sister confirmed it when she started having similar problems after going gluten free then retoxing to have gluten testing done, suddenly having the same symptoms she had seen me suffer with for years.

I suspect that it may be made worse if gluten is not a steady part of your diet, rather a reaction to a sudden influx as I was probably detoxing and retoxing most of my adult life without realizing it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.