Lets See Who Can Answer This One?

[whattodo]

2 weeks ago i started on the gluten free diet. The only problem i was having then was constant stomach bloatness with a dull pain, and sometimes a numish side of my face. 2 days ago i have been starting to feel very strange in my head and hands. I feel very empty and almost as if i have the shakes on the inside. I keep looking at my hands to check to see if they are shaking but they arent. When i pick things up it almost feels like i have no control with the items i have picked up. This all feels very strange and almost like im drunk. the only thing different i might have done is starting taking vit B compount and some calcium. I have never had these symtoms before the gluten free diet.

The only problem i started off was a sore stomach and no it is all going wrong. my stomach no longer hurts as much on the diet.

Can someone explain to me what on earth is happening to me. it almost feels like i have no control over my hands.

[Dandelion]

I wish I could give you an answer. I had the same symptoms but it was prior to be gluten free. It has something to do with neuropathy I think. Someone who is a more advanced member can fill you in on that. Maybe that's what is happening to you?

I hope you feel better.

[gfgypsyqueen]

The numbness in the face and sensation of shaking hands without them actually shaking is concerning. I would have to say go get checked out by a doctor - nuero would be best. Celiacs symptoms can be pretty strange, but when it comes to nerves acting strangly I would go make sure you haven't found some other diisease that you body is battling.

[jerseyangel]

I had something very similar to this. I think it was you who I answered in another thread?

Mine got much worse after about a week on the diet, although it began before I was diagnosed. I had the zig-zaggy feeling in my hands, trouble knowing exactly where to put my feet down sometimes when I walked, tingling on my legs especially when resting, and numbness that spread from my face on down--mostly on the left side.

I also had burning sensations in my mouth and on my feet.

These things were definately gluten related for me--but if you aren't sure, or just to be safe, you may want to check with your doctor.

Mine got better very gradually over months. I was glutened on Monday --first time in a while. (cross contamination from a product I thought was safe) The facial numbness on the left side of my face has returned--milder, but definately back. And this is after nearly 2 years gluten-free.

[Nantzie]

I do have neuro symptoms, but haven't had the numbness or feeling like I'm going to drop something. I do get the internal shakes that you're talking about if I'm glutened. It's most noticeable at night and makes for a horrible version of insomnia.

I did get a feeling of head emptiness at first, but for me it was because my daily headaches went away. It was a weird feeling of lightness. I also wasn't getting the cycling anxiety thoughts that I used to get all the time. So there was a quietness that I had never had before either.

I would try going off the new supplements. They can have gluten in them just like anything else.

If you want to know for sure, stop taking them for a week, then take them again and see if the symptoms return.

I've had a reaction before to a supplement. It wasn't declared gluten-free, but there were no suspicious ingredients, so I took it and ended up having a reaction.

You could also be getting hidden gluten somewhere else. Reactions tend to increase after you're on a gluten-free diet. Your body has basically been used to getting what it thinks is poison and had been forced to build up a tolerance. Now that it knows that the gluten is optional, it's fighting tooth and nail against it.

Before I found out that gluten was causing the problem for me, I was eating gluten all day long. Now, I get sick as a dog from the most small amounts.

You said you're new to the diet, and it does take some time to get it all figured out. Some people have the option of going full-bore immediately; replacing kitchen items that are no longer safe and replacing personal care products (haircare products, cosmetics, soaps, etc.).

Also, if you're living with people who are eating gluten, there's an extra level of careful that you have to be. If someone uses the butter to spread on a piece of gluteny bread, just the knife going back and forth from the gluten bread to the butter is more than enough to make you sick, even if you don't see any crumbs. If your spouse or significant other eats gluten and then kisses you, you'll get a reaction.

It's a lot to get used to, and all you can do is keep moving forward.

Please don't ever feel like you're being a nuisance. We're happy to be able to help people who are in the same spot that we were a few months or years ago. We all came here with the same questions that you have. The only reason we know the answers is because we once asked the same questions.

So kick off your shoes and make yourself at home.

Nancy

[sickofit]

2 weeks ago i started on the gluten free diet. The only problem i was having then was constant stomach bloatness with a dull pain, and sometimes a numish side of my face. 2 days ago i have been starting to feel very strange in my head and hands. I feel very empty and almost as if i have the shakes on the inside. I keep looking at my hands to check to see if they are shaking but they arent. When i pick things up it almost feels like i have no control with the items i have picked up. This all feels very strange and almost like im drunk. the only thing different i might have done is starting taking vit B compount and some calcium. I have never had these symtoms before the gluten free diet.

The only problem i started off was a sore stomach and no it is all going wrong. my stomach no longer hurts as much on the diet.

Can someone explain to me what on earth is happening to me. it almost feels like i have no control over my hands.

Are you eating anything new that you had not eaten before the gluten-free diet? This could be a food intolerance or a yeast die-off if you've eliminated sugar and flours. You could try fasting or eating things you are not now eating for a few days (at least 3) to see. We all seem to get the strangest symptoms, I now have what feels like water sloshing in one ear, I've had this off and on before and when I had a doctor she never could see anything in my ear. I have not had gluten but I have lots of food intolerances. I've had the drunk feeling and once slurred my words all day. Thought I was having a stroke! I'd give it another week and if still doing this see your doc.

[Nantzie]

Forgot about that one. I get word slurring if I'm glutened really bad too. Don't feel drunk though, just sound it.

Nancy

[jerseyangel]

Speaking of word-slurring, when I get glutened (like now), I sometimes have trouble spitting out the right words! It's almost as if my tongue is too big for my mouth!

[Nantzie]

Yep. That's exactly how I would describe it. I think it's a DQ1 (gene) thing. More odd neuro symptoms with that.

Nancy