Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Status Report On Jerry

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

Hey there everyone.

Just wanted to check in. I'm doing pretty well. I cut down on my dose of Lexapro by about 1/3.

I'm taking a bit less than 1/4 of a pill now. The first couple days were fine...yesterday was a bit shaky. Be advised that going off an AD is no easy task, gluten-free or not. Although being gluten-free certainly seems

to help.

gluten-free wise, I'm being very careful. I have no desire to combine a glutening with AD withdrawal :blink::blink:

Hope everyone has a great weekend. j

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Sounds good. Just a reminder, slowly.

Guhlia Rising Star
Guhlia
Posted

I had a very, very hard time getting off of AD's. I was on Cymbalta. Granted, my doc didn't ween me at all, she told me to just stop taking it. I was sick as a dog. Hopefully you'll be able to ween slowly enough that you don't have to go through any of that. Brain shivers are the worst.

JerryK Community Regular
JerryK
Posted
  • Author
I had a very, very hard time getting off of AD's. I was on Cymbalta. Granted, my doc didn't ween me at all, she told me to just stop taking it. I was sick as a dog. Hopefully you'll be able to ween slowly enough that you don't have to go through any of that. Brain shivers are the worst.

Not that I have any plans to "cold turkey" Lexapro, but how long did it take to feel better?

Just curious...

Generic Apprentice
Generic
Posted

I quit taking paxil cold turkey. Dr. didn't advise there could be problems. :angry: Can we say road rage? I wanted to rip a few peoples faces off too. I had severe anger problems, it was horrible. I was like super jerk w/ a raging case of pms.

I think it lasted for about 2 weeks....at least that I noticed, LOL. It may have gone on longer, I'm not sure.

Guhlia Rising Star
Guhlia
Posted

Well, the vomiting stopped within 24 hours. I had "brain shivers" for about a week and a half. I can't explain what they are, you'd have to experience it. I had horrible ups and downs emotionally for about a month. I think within two months I was pretty much all better. It was definitely a nasty experience. I will NEVER take anti depressants again. NEVER!!!

JerryK Community Regular
JerryK
Posted
  • Author
I quit taking paxil cold turkey. Dr. didn't advise there could be problems. :angry: Can we say road rage? I wanted to rip a few peoples faces off too. I had severe anger problems, it was horrible. I was like super jerk w/ a raging case of pms.

I think it lasted for about 2 weeks....at least that I noticed, LOL. It may have gone on longer, I'm not sure.

Yah, what I noticed I would characterize as "heightened emptions" where my feelings are hyper intense....don't know how to explain it other than that. I feel good, bad and ugly all at the same time.

(I feel better today).....

Nice to know it goes away!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


annie-is-GF Newbie
annie-is-GF
Posted

I went off of Celexa cold-turkey last summer because I didn't have enough money to refill my prescription.... it was the worst summer of my life! I got SOOO sick. I was nauseous and dizzy for at least a month... no appetite, because of the nausea... I got carsick after driving only a couple blocks... my dreams were bizarre. I lived on gravol. :blink: After a long time things settled down again but it was a ROUGH experience! ughhhhh

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Would exercise and fresh air help?

Hope you are feeling wonderful very soon!

JerryK Community Regular
JerryK
Posted
  • Author
Would exercise and fresh air help?

Hope you are feeling wonderful very soon!

Oh yeah, exercise, fresh air and sunshine are the best prescriptions I've found. It works better than

any AD.......Today seems like a good day. j

nikki-uk Enthusiast
nikki-uk
Posted

Good Luck Jerry - you are nearly there :)

Finally got myself off of my AD after 6 yrs (Ha!! - yes 6 yrs!) ...but found I HAD to do it slowly.

I tried to do cold turkey and that had some pretty nasty ''panic attack - can't breath'' type effects :blink: ...so done it VERY slow (half a tab, then a quarter, then a quarter every other day ..etc...).....got there in the end :)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jerry,

It is wonderful that you were able to reduce your dosage again. Like many other posters on this thread, I too, had bad experiences trying to get off of these pills. I do not know if I will ever get off of the AD I am on now. Those jerks up at IU got me stuck to it. :( I was weaned off of Paxil, but still had withdrawal. Jitters, nausea, and some other milder symptoms persisted for a couple of weeks.

Sincerely,

NoGluGirl

Phyllis28 Apprentice
Phyllis28
Posted

It's great that you have been able to lower your dosage.

loco-ladi Contributor
loco-ladi
Posted

I have managed to stay off any medication for my prior depression, knowing most of it was directed at my Dr's inability to hear and read. I am glad to know you are lowering your dose and are finding alternative means to combat those "blue times" and I highly recommend walks outdoors, the last 2 days here wasn't such a good idea however as we reached the lower 90's both days. We have a T-Storm moving in and its cooling things off and freshing the air!

Anyone want a dog who is scared of T-storms? She really sweet except for then. :blink:

NoGluGirl Contributor
NoGluGirl
Posted
I have managed to stay off any medication for my prior depression, knowing most of it was directed at my Dr's inability to hear and read. I am glad to know you are lowering your dose and are finding alternative means to combat those "blue times" and I highly recommend walks outdoors, the last 2 days here wasn't such a good idea however as we reached the lower 90's both days. We have a T-Storm moving in and its cooling things off and freshing the air!

Anyone want a dog who is scared of T-storms? She really sweet except for then. :blink:

Dear loco_ladi,

Our Standard Schnauzer we used to have was afraid of storms! They sense when severe weather is coming. They know. They sense when the barometric pressure drops. We live in Tornado Alley, so it has not been a week unless a tornado has hit! :lol: I can always tell the people from out of town, because they freak when it storms and are like "OMG! We are gonna die!" :lol:

As far as depression goes, I am still stuck on Celexa. I should never have been on it in the first place. It really sucks. Doctors are idiots. If they were giving narcotics, at least there is rehab for that!

Sincerely,

NoGluGirl

loco-ladi Contributor
loco-ladi
Posted

NGG I hope your situation improves and I know that "OMG I am going to die" look... each year we get "temporary workers" here at the railroad, those that end up staying longer than others get that look when they find out about the tornado's... or in the wintertime, the "gee I need a winter coat" stupidity of wintertime is good also.

NoGluGirl Contributor
NoGluGirl
Posted
NGG I hope your situation improves and I know that "OMG I am going to die" look... each year we get "temporary workers" here at the railroad, those that end up staying longer than others get that look when they find out about the tornado's... or in the wintertime, the "gee I need a winter coat" stupidity of wintertime is good also.

Dear loco_ladi,

Hopefully, I will get straightened out soon. Any improvement is welcome! I may have Lyme, Babesia, other food intolerances, and all kinds of other stuff! The weather thing is so funny. I know it is something I cannot do anything about. I grew up here, so it is nothing new. All you can do is be ready when the tornadoes hit. We also get floods, and winter storms. In fact, we are probably the only place on the planet that can get a tornado one night, and a winter storm the next! :lol: The weather in our state is very bizarre!

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author

So I continue to feel just peachy. Whittling down my Lexapro. It's unclear to me how I go about

getting off that last 1/4 pill of Lex as they get mighty hard to cut down accurately....

I would entertain any good ideas on that...

Last night was a horrible food evening. Got home at 7...starving...most of what I could find in the house was glutenated...I didn't feel like spending a lot of time making anything.

I decided I'd have some mashed potato's...I love mashed taters and butter (well fake butter).

I made my mashed potatos....lumpy but not too bad.....Then I get out the butter tub

and the butter has mold all over it....yuck....now I'm really frustrated :angry:

I end up eating my mashed potatos dry...with garlic salt....not really very satisfying....

It is frustrating when I'm struggling to find something to eat and everyone else in the house is cheerfully chomping away on their gluten loaded treats.

However, gluten-free is absolutely making a world of difference getting off of Lexapro...simply because off of Gluten, I am not depressed. Who knew...j

JerryK Community Regular
JerryK
Posted
  • Author

Also, when did I become advanced...how special!

nikki-uk Enthusiast
nikki-uk
Posted
Also, when did I become advanced...how special!

:lol: You are indeed special Jerry - and this means you can now add some witty comment underneath your avatar!!

When I was down to a 1/4 tablet (and found it too hard to make it any smaller without it disintergrating into dust) I took it every other day - then every 2 days ...etc.... :)

Guhlia Rising Star
Guhlia
Posted

I agree with Nikki-UK. Start taking it every other day, then every two days, etc. Eventually, when the dosage gets really spaced out, you'll probably just end up forgetting to take it and you'll realize you feel okay after a day or two. :) If you're having a really hard time weaning, you may want to get a mortar and pestel and grind a pill into powder (provided that they're not time release pills), then seperate that into 5ths, then 6ths, etc. Be really careful doing this as it's easy to get different sized proportions and screw yourself up. You'll probably be fine just weening down with every other day and so forth.

JerryK Community Regular
JerryK
Posted
  • Author
I agree with Nikki-UK. Start taking it every other day, then every two days, etc. Eventually, when the dosage gets really spaced out, you'll probably just end up forgetting to take it and you'll realize you feel okay after a day or two. :) If you're having a really hard time weaning, you may want to get a mortar and pestel and grind a pill into powder (provided that they're not time release pills), then seperate that into 5ths, then 6ths, etc. Be really careful doing this as it's easy to get different sized proportions and screw yourself up. You'll probably be fine just weening down with every other day and so forth.

Thanks, This is good advice...I will try to start taking it every other day and see if I wig out :blink::blink:

Nikki...thank you, now how do I add that witty comment?

jerseyangel Proficient
jerseyangel
Posted
now how do I add that witty comment?

Unless this changed when the board updated, you have to have 500 posts to do it. I see you're almost there...

Just in case, cuz I could be wrong, go to

"My Controls"--click on "Edit Profile Information"--"Custom Member Title" should come up.

Put in what you want, scroll to the bottom of the page and hit "Amend My Profile".

That outta do it :D

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jerry,

Congratulations on your success! :) I know how you feel about the boring food and food lust. :(

I miss pizza, cookies, Big Macs, Chinese Takeout, but not enough to get sick from them! I have been gluten-free for 8 months! I never once have intentionally eaten the crap. As sick as it makes me, it is not tempting! Welcome to advanced community memberdom!

Dear Guhlia,

Congrats on your baby girl! You must be excited! This is wonderful! How far along are you again? I thought it was maybe 4 months?

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author
Unless this changed when the board updated, you have to have 500 posts to do it. I see you're almost there...

Just in case, cuz I could be wrong, go to

"My Controls"--click on "Edit Profile Information"--"Custom Member Title" should come up.

Put in what you want, scroll to the bottom of the page and hit "Amend My Profile".

That outta do it :D

OK, thanks, I guess I'll start posting silly responses, like this one, until I get to my 500 :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.