Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Won't The Weight Come Off?


Anteau25

Recommended Posts

Anteau25 Apprentice

I have gained 13 pounds since going gluten free at the end of August. In the beginning I did not exercise at all due to the lack of energy and sleeping all the time.

Now I live off mostly fruits, vegetables, and chicken. I exercise regularly and I can't shed a pound!

I started exercising regularly about 3 months ago. After 3 weeks I GAINED 2 pounds. Even though I was frustrated, I continued and lost the 2 pounds but am staying at a steady weight.

Can someone please explain to me the connection of celiac disease and trouble losing weight? I know we absorb more after going gluten free, but I have more energy now and am so much more active.

I want to go to the beach this summer and wear a bathing suit, but it's not gonna happen if I don't get my weight down. I'm just feeling down because I'm trying so hard and not getting any results.

I am also a type1 diabetic and thought maybe it was my thyroid. I just had bloodwork and saw my endocrinologist. My thyroid is fine, and she said it's not diabetes related.

Anyone have tips, advice, or can lead me in the right direction? The slightest glimmer of hope?

I would appreciate it so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest lizajane

I have the same problem with weight. But I eat mostly the gluten free food which is very high in calories, but I love to eat. I justify it by saying I have given up so much food already, that I refuse to give up everything!! I am also lactose, soy and corn intolerant too!

Guest jokamo

Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Anteau25 Apprentice

Thanks for the replies. It does make me feel a little better knowing that I'm not the only one struggling with this. I guess I'll just keep working on it.

Electra Enthusiast

I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

blueeyedmanda Community Regular

I have too gained about 20 lbs since going gluten free, and I cannot get rid of it. I am going to the gym, I do not eat chips and snacks. I have the occasional cookie and ice cream. I feel so ugly these days because a few coworkers are losing their weight. It is bathing suit season. :ph34r: Some of my summer clothes I used to look great in I now look dumpy. I gained all my weight in my tummy area/thighs and some butt fat. SO if I put on tank tops I look bigger than I am because if I get the size that truely fits, it sits nice on my lower half but the top is big and baggy and looks bad. Glad to see others know where I am coming from.

skinnyminny Enthusiast
I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

I am sorry you are having such a hard time. I am not sure your height but even though you are trying to loose weight 800 calories is too little just for your body to function if you laid in bed all day you still would need at least 1200, your calorie intake may be too low your body thinks its starving and it is trying to hold on to everything. Try to eat first thing in the morning it revs your metablism up and portion control the rest of the day. smaller more frequent meals will increase your metabolism. I Hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ann1231 Enthusiast
Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Jodi, I feel like I could have written this post. I have rheumatoid arthritis and fibromyalgia. With prednisone, I have also gained 50 pounds. I can't seem to get the weight off either.

I have recital, graduations and then a very formal event coming up and I am so embarrassed because nothing fits at all and I can't afford to buy all new clothes. It's very frustrating...and now I'm flaring and need more prednisone. ugh....

Ann

dragonmom Apprentice

I don't have any drug related issue with my weight gain. I just keep adding to my body , I stopped making my gluten-free goodies, just ate meat cheese, and veggies. lost 6 pounds and then it just came back. I am just one large pound attractor. :o I just keep plugging away. Good luck

  • 2 months later...
Gwenny Newbie

Dairy that isn't low fat isn't going to help. Since I started eating low fat and cutting down on the dairy intake has really helped the scale for me. I'm doing weight watchers and using the flex point system. Those gluten free goodies suck when it comes to points, they aren't so good for you. I found that I was eating what I thought were light meals, but actually were larger portions than I thought, thus more calories.

I am eating small meals, several times a day and sticking to my points and getting exercise. The weight stopped going up and is slooooowly going down.

Before I found out about celiac, I had lost 40 pounds in just a little bit of time, now a one pound loss is difficult.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.