Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Won't The Weight Come Off?

Anteau25

Recommended Posts

Anteau25 Apprentice
Anteau25
Posted

I have gained 13 pounds since going gluten free at the end of August. In the beginning I did not exercise at all due to the lack of energy and sleeping all the time.

Now I live off mostly fruits, vegetables, and chicken. I exercise regularly and I can't shed a pound!

I started exercising regularly about 3 months ago. After 3 weeks I GAINED 2 pounds. Even though I was frustrated, I continued and lost the 2 pounds but am staying at a steady weight.

Can someone please explain to me the connection of celiac disease and trouble losing weight? I know we absorb more after going gluten free, but I have more energy now and am so much more active.

I want to go to the beach this summer and wear a bathing suit, but it's not gonna happen if I don't get my weight down. I'm just feeling down because I'm trying so hard and not getting any results.

I am also a type1 diabetic and thought maybe it was my thyroid. I just had bloodwork and saw my endocrinologist. My thyroid is fine, and she said it's not diabetes related.

Anyone have tips, advice, or can lead me in the right direction? The slightest glimmer of hope?

I would appreciate it so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest lizajane
Guest lizajane
Posted

I have the same problem with weight. But I eat mostly the gluten free food which is very high in calories, but I love to eat. I justify it by saying I have given up so much food already, that I refuse to give up everything!! I am also lactose, soy and corn intolerant too!

Guest jokamo
Guest jokamo
Posted

Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Anteau25 Apprentice
Anteau25
Posted
  • Author

Thanks for the replies. It does make me feel a little better knowing that I'm not the only one struggling with this. I guess I'll just keep working on it.

Electra Enthusiast
Electra
Posted

I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

I have too gained about 20 lbs since going gluten free, and I cannot get rid of it. I am going to the gym, I do not eat chips and snacks. I have the occasional cookie and ice cream. I feel so ugly these days because a few coworkers are losing their weight. It is bathing suit season. :ph34r: Some of my summer clothes I used to look great in I now look dumpy. I gained all my weight in my tummy area/thighs and some butt fat. SO if I put on tank tops I look bigger than I am because if I get the size that truely fits, it sits nice on my lower half but the top is big and baggy and looks bad. Glad to see others know where I am coming from.

skinnyminny Enthusiast
skinnyminny
Posted
I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

I am sorry you are having such a hard time. I am not sure your height but even though you are trying to loose weight 800 calories is too little just for your body to function if you laid in bed all day you still would need at least 1200, your calorie intake may be too low your body thinks its starving and it is trying to hold on to everything. Try to eat first thing in the morning it revs your metablism up and portion control the rest of the day. smaller more frequent meals will increase your metabolism. I Hope this helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ann1231 Enthusiast
Ann1231
Posted
Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Jodi, I feel like I could have written this post. I have rheumatoid arthritis and fibromyalgia. With prednisone, I have also gained 50 pounds. I can't seem to get the weight off either.

I have recital, graduations and then a very formal event coming up and I am so embarrassed because nothing fits at all and I can't afford to buy all new clothes. It's very frustrating...and now I'm flaring and need more prednisone. ugh....

Ann

dragonmom Apprentice
dragonmom
Posted

I don't have any drug related issue with my weight gain. I just keep adding to my body , I stopped making my gluten-free goodies, just ate meat cheese, and veggies. lost 6 pounds and then it just came back. I am just one large pound attractor. :o I just keep plugging away. Good luck

  • 2 months later...
Gwenny Newbie
Gwenny
Posted

Dairy that isn't low fat isn't going to help. Since I started eating low fat and cutting down on the dairy intake has really helped the scale for me. I'm doing weight watchers and using the flex point system. Those gluten free goodies suck when it comes to points, they aren't so good for you. I found that I was eating what I thought were light meals, but actually were larger portions than I thought, thus more calories.

I am eating small meals, several times a day and sticking to my points and getting exercise. The weight stopped going up and is slooooowly going down.

Before I found out about celiac, I had lost 40 pounds in just a little bit of time, now a one pound loss is difficult.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      Are you trying to make us in the USA jealous? 😉
    2. Scott Adams
      - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free g...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable p...
    4. Scott Adams
      - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and ...
    5. Scott Adams
      0

      Fluffy Coconut Banana Pancake—Baked, Gluten-Free, and Family-Style

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,602
    • Most Online (within 30 mins)
      7,748
    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      By Scott Adams · Posted

      Are you trying to make us in the USA jealous? 😉
    • Scott Adams
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Scott Adams · Posted

      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      Second chance

      By Scott Adams · Posted

      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      Schar's products contain wheat!

      By Scott Adams · Posted

      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      Schar's products contain wheat!

      By elisejunker44 · Posted

      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.