Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Won't The Weight Come Off?

Anteau25

Recommended Posts

Anteau25 Apprentice
Anteau25
Posted

I have gained 13 pounds since going gluten free at the end of August. In the beginning I did not exercise at all due to the lack of energy and sleeping all the time.

Now I live off mostly fruits, vegetables, and chicken. I exercise regularly and I can't shed a pound!

I started exercising regularly about 3 months ago. After 3 weeks I GAINED 2 pounds. Even though I was frustrated, I continued and lost the 2 pounds but am staying at a steady weight.

Can someone please explain to me the connection of celiac disease and trouble losing weight? I know we absorb more after going gluten free, but I have more energy now and am so much more active.

I want to go to the beach this summer and wear a bathing suit, but it's not gonna happen if I don't get my weight down. I'm just feeling down because I'm trying so hard and not getting any results.

I am also a type1 diabetic and thought maybe it was my thyroid. I just had bloodwork and saw my endocrinologist. My thyroid is fine, and she said it's not diabetes related.

Anyone have tips, advice, or can lead me in the right direction? The slightest glimmer of hope?

I would appreciate it so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest lizajane
Guest lizajane
Posted

I have the same problem with weight. But I eat mostly the gluten free food which is very high in calories, but I love to eat. I justify it by saying I have given up so much food already, that I refuse to give up everything!! I am also lactose, soy and corn intolerant too!

Guest jokamo
Guest jokamo
Posted

Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Anteau25 Apprentice
Anteau25
Posted
  • Author

Thanks for the replies. It does make me feel a little better knowing that I'm not the only one struggling with this. I guess I'll just keep working on it.

Electra Enthusiast
Electra
Posted

I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

I have too gained about 20 lbs since going gluten free, and I cannot get rid of it. I am going to the gym, I do not eat chips and snacks. I have the occasional cookie and ice cream. I feel so ugly these days because a few coworkers are losing their weight. It is bathing suit season. :ph34r: Some of my summer clothes I used to look great in I now look dumpy. I gained all my weight in my tummy area/thighs and some butt fat. SO if I put on tank tops I look bigger than I am because if I get the size that truely fits, it sits nice on my lower half but the top is big and baggy and looks bad. Glad to see others know where I am coming from.

skinnyminny Enthusiast
skinnyminny
Posted
I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

I am sorry you are having such a hard time. I am not sure your height but even though you are trying to loose weight 800 calories is too little just for your body to function if you laid in bed all day you still would need at least 1200, your calorie intake may be too low your body thinks its starving and it is trying to hold on to everything. Try to eat first thing in the morning it revs your metablism up and portion control the rest of the day. smaller more frequent meals will increase your metabolism. I Hope this helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ann1231 Enthusiast
Ann1231
Posted
Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Jodi, I feel like I could have written this post. I have rheumatoid arthritis and fibromyalgia. With prednisone, I have also gained 50 pounds. I can't seem to get the weight off either.

I have recital, graduations and then a very formal event coming up and I am so embarrassed because nothing fits at all and I can't afford to buy all new clothes. It's very frustrating...and now I'm flaring and need more prednisone. ugh....

Ann

dragonmom Apprentice
dragonmom
Posted

I don't have any drug related issue with my weight gain. I just keep adding to my body , I stopped making my gluten-free goodies, just ate meat cheese, and veggies. lost 6 pounds and then it just came back. I am just one large pound attractor. :o I just keep plugging away. Good luck

  • 2 months later...
Gwenny Newbie
Gwenny
Posted

Dairy that isn't low fat isn't going to help. Since I started eating low fat and cutting down on the dairy intake has really helped the scale for me. I'm doing weight watchers and using the flex point system. Those gluten free goodies suck when it comes to points, they aren't so good for you. I found that I was eating what I thought were light meals, but actually were larger portions than I thought, thus more calories.

I am eating small meals, several times a day and sticking to my points and getting exercise. The weight stopped going up and is slooooowly going down.

Before I found out about celiac, I had lost 40 pounds in just a little bit of time, now a one pound loss is difficult.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    2. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    3. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Some backup to my statement about gluten and milk. Some background. When my son was born in 1976 he was colicky from the beginning. When he transitioned to formula it got really bad. That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease...
    5. trents
      - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748
    TByrd
    Newest Member
    TByrd
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.