Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Won't The Weight Come Off?

Anteau25

Recommended Posts

Anteau25 Apprentice
Anteau25
Posted

I have gained 13 pounds since going gluten free at the end of August. In the beginning I did not exercise at all due to the lack of energy and sleeping all the time.

Now I live off mostly fruits, vegetables, and chicken. I exercise regularly and I can't shed a pound!

I started exercising regularly about 3 months ago. After 3 weeks I GAINED 2 pounds. Even though I was frustrated, I continued and lost the 2 pounds but am staying at a steady weight.

Can someone please explain to me the connection of celiac disease and trouble losing weight? I know we absorb more after going gluten free, but I have more energy now and am so much more active.

I want to go to the beach this summer and wear a bathing suit, but it's not gonna happen if I don't get my weight down. I'm just feeling down because I'm trying so hard and not getting any results.

I am also a type1 diabetic and thought maybe it was my thyroid. I just had bloodwork and saw my endocrinologist. My thyroid is fine, and she said it's not diabetes related.

Anyone have tips, advice, or can lead me in the right direction? The slightest glimmer of hope?

I would appreciate it so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest lizajane
Guest lizajane
Posted

I have the same problem with weight. But I eat mostly the gluten free food which is very high in calories, but I love to eat. I justify it by saying I have given up so much food already, that I refuse to give up everything!! I am also lactose, soy and corn intolerant too!

Guest jokamo
Guest jokamo
Posted

Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Anteau25 Apprentice
Anteau25
Posted
  • Author

Thanks for the replies. It does make me feel a little better knowing that I'm not the only one struggling with this. I guess I'll just keep working on it.

Electra Enthusiast
Electra
Posted

I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

I have too gained about 20 lbs since going gluten free, and I cannot get rid of it. I am going to the gym, I do not eat chips and snacks. I have the occasional cookie and ice cream. I feel so ugly these days because a few coworkers are losing their weight. It is bathing suit season. :ph34r: Some of my summer clothes I used to look great in I now look dumpy. I gained all my weight in my tummy area/thighs and some butt fat. SO if I put on tank tops I look bigger than I am because if I get the size that truely fits, it sits nice on my lower half but the top is big and baggy and looks bad. Glad to see others know where I am coming from.

skinnyminny Enthusiast
skinnyminny
Posted
I'm right there with you. I gained 20 pounds since going gluten free and I am having such a hard time getting it off. I have to keep my calorie intake at around 800 calories a day or I gain weight. UG I'm starving to death here and I've only lost 7 pds. It's taken about 5 weeks to lose that much too.

My philosophy is that our motabolism is so screwed up from living with Celiac all these years that our body still thinks we are starving even though we are getting enough. Our bodies have gotten to the point of where they are so used to being without the proper nutrition that even when we get it our body goes into reserve mode and holds onto every ounce of calories it can get. It's a survival instinct for the body, and I think at this point It will be impossible for me to convince my body otherwise lol!!

It really sucks, but (for me) it's reality :(

It must be nice to have gotten some energy back. I still haven't gotten there. I am more exhausted now then before I found out I had celiac, so that makes it even tougher to lose grrrrrrrrr!! Celiac, Pernicious Anemia, and Narcolepsy are not going to help me out in the energy department lol!! Good Luck I hope you start losing soon, and don't give up!!

I am sorry you are having such a hard time. I am not sure your height but even though you are trying to loose weight 800 calories is too little just for your body to function if you laid in bed all day you still would need at least 1200, your calorie intake may be too low your body thinks its starving and it is trying to hold on to everything. Try to eat first thing in the morning it revs your metablism up and portion control the rest of the day. smaller more frequent meals will increase your metabolism. I Hope this helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ann1231 Enthusiast
Ann1231
Posted
Anteau25,

I am right there with you! I have Lupus and Fibromyalgia and gained 50 pounds on prednisone and since going gluten free, I can't seem to get the wieght off either. <_< Sorry I don't have any tips for you. Just wanted you to know that you are not the only one out there.

Good luck!

Jodi M. ;)

Jodi, I feel like I could have written this post. I have rheumatoid arthritis and fibromyalgia. With prednisone, I have also gained 50 pounds. I can't seem to get the weight off either.

I have recital, graduations and then a very formal event coming up and I am so embarrassed because nothing fits at all and I can't afford to buy all new clothes. It's very frustrating...and now I'm flaring and need more prednisone. ugh....

Ann

dragonmom Apprentice
dragonmom
Posted

I don't have any drug related issue with my weight gain. I just keep adding to my body , I stopped making my gluten-free goodies, just ate meat cheese, and veggies. lost 6 pounds and then it just came back. I am just one large pound attractor. :o I just keep plugging away. Good luck

  • 2 months later...
Gwenny Newbie
Gwenny
Posted

Dairy that isn't low fat isn't going to help. Since I started eating low fat and cutting down on the dairy intake has really helped the scale for me. I'm doing weight watchers and using the flex point system. Those gluten free goodies suck when it comes to points, they aren't so good for you. I found that I was eating what I thought were light meals, but actually were larger portions than I thought, thus more calories.

I am eating small meals, several times a day and sticking to my points and getting exercise. The weight stopped going up and is slooooowly going down.

Before I found out about celiac, I had lost 40 pounds in just a little bit of time, now a one pound loss is difficult.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,016
    • Most Online (within 30 mins)
      7,748
    HONEYSUCKLE
    Newest Member
    HONEYSUCKLE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.