Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heads Up On Levaquin


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I am recoving from a bout with diverticulitis and colitis. I was given a couple of antibiotics, one Flagyl we were unable to get in the strength the doc wanted unless we went generic so I have not started that one, and don't know if I will.

Be aware that the Levaquin although gluten-free for certain, is a really nasty antibiotic. I had side effects I never thought I would see off something of this nature. First off it destabelized my blood sugar, I shot up to over 300 within 3 hours of taking it and the next morning my MS was a fasting 178. It dropped to 85 within a half hour and then was back up to 137 an hour later.

That was enough to convince me not to take another dose...... And then I started to hallucinate. I have never been happier that I had the experiences I did in the late 60's early 70's, at least I knew what it was that was making my world all pretty colored mosaics and flashing lights. If I had never 'tripped' it would have scared me to death. I went to bed looking at the colors and hopeing they would be gone in the AM. They were.

My doctor gets back today and I expect him to give me a call. After reading the leaflet that came with the drug I found they do not reccommend it for folks with diabetes, epilepsy or tendon problems. I have diabetes, epilepsy (although no seizures since a couple months gluten-free) and am an Ehlers Danlos person who dislocates regularly in their sleep. I guess the drug reps info wasn't real complete and he hadn't read the literature before giving it to me.

I wanted to make sure that folks are aware of these bizzare side effects. I don't know if the same thing would happen to someone without the brain damage I have from the celiac but no one mentioned them to me before I took the stuff, if they had I would have asked for something different.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I took it once a couple of years ago and broke out in hives overnight, it was bad, very bad.

GlutenWrangler Contributor

I'm on Levaquin right now for a Pseudomonas infection. I had some rough side effects at first too, but nothing like you had. I'm currently on my 8th day, and I think my body is getting used to it. I was in a horrible mood and I felt almost dead for about 3-4 days, but it ended up going away. But keep in mind, I'm not a diabetic or an epileptic, so it is definitely much more dangerous for you. I'm sorry it was too rough for you. It's definitely a strong antibiotic. Hopefully you can find another that is both strong and tolerable.

-Brian

ArtGirl Enthusiast

It just reinforces the fact that we need to be fully aware, read the drug information, and make fully informed decisions... irregardless of whether or not we THINK the doctor knows what s/he is doing!

I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

ravenwoodglass Mentor
I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

I agree completely. I just read the info the drug store gave me before I took that one dose. I should have read the insert also. I sure will next time.

Anteau25 Apprentice

I was prescribed levaquin about 2 months ago, but my pharmacy called me before they filled it because it could affect blood sugars. I am a diabetic also. They contacted my dr, and I got a different antibiotic. After reading your post I am even more thankful that the pharmacy caught it before giving it to me!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.