Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Know I'm Getting Better When:

Kaycee

Recommended Posts

Kaycee Collaborator
Kaycee
Posted

I know I'm getting better when:

1) I can go for my early morning walks without having to go to the loo to do number 2's first.

2) There are more days in a month without diarhoea.

3) I feel more socialable and have pleasure and fun in talking to most people I meet through the course of the day, instead of just the usual few who I feel close to.

4) My sense of humour has come back.

5) My son doesn't always ask me if I am okay anymore. It used to be a weekly occurance for 18 year old to ask of my health pre-diagnosis. I must've looked awful!

6) The random spots are getting less random. But I must've slipped somewhere as I am a little spotty right now. (A sign of not getting old, still a teenager? I wish!)

7) I can sleep right through the night. Except for tonight as it is 3.30am.

8) I am not ravenous anymore.

9) The one thing I don't like about getting better, is the fact that I have to watch everything I eat calorie wise, as it goes straight to the hip.

Cathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Yes it is noce when noone has to ask how you are doing anymore. Glad to hear you are feeling better.

Yes, the watching everything you eat part sucks!

TrillumHunter Enthusiast
TrillumHunter
Posted

I'm new to this but already lots of changes. Here are the most obvious.

1. Getting up at 5:45 and working out for an hour makes me feel BETTER

2. If I have to correct the kids I correct them without the little voice in my head saying they are bad and I am a bad mom and if I would just get my act together.....bla, bla, bla

3. I can go to the grocery for a quick trip without a list!!!

4. My pants fit the same everyday!

alamaz Collaborator
alamaz
Posted

I've only been gluten-free since March 1 but I started a list of all the postive changes i've been noticing so i can remind myself of the benefits of sticking to the gluten-free diet all the time some of those are:

1) feeling what feeling normal is for the first time ever

2) my mother told me that my skin looks fantastic after suffering through years of bad acne and mom tips on how to control it better (hello!)

3) spending 5 minutes once a day on the potty instead of 30 mins. twice a day

4) not having a "pregnant" belly at the end of every day

5) really appreciating the really good days when they come along because i feel like i could conquer the world and using the bad days to recoup and take it easy on myself

6) realizing the bad days are teaching me what my body doesn't like

7) not clearing out the family room during our fav. prime time shows with my gas :ph34r:

8) not losing a massive chunk of hair in the shower every day

9) my anxiety and agoraphobia is disappearing

10) no more night sweats!

wow! i could list more. thanks for the thread. it always helps to remind myself just how much better i am even when i'm not 100%!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I...
    2. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Doctors
      8

      Second chance

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
    4. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues. As more B12 becomes available, the body will adjust how much folate to absorb from the diet. Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver. (Avoid spinach due to high oxalates and risk...
    5. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,670
    • Most Online (within 30 mins)
      7,748
    PamelaV
    Newest Member
    PamelaV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.