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I Know I'm Getting Better When:


Kaycee

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Kaycee Collaborator

I know I'm getting better when:

1) I can go for my early morning walks without having to go to the loo to do number 2's first.

2) There are more days in a month without diarhoea.

3) I feel more socialable and have pleasure and fun in talking to most people I meet through the course of the day, instead of just the usual few who I feel close to.

4) My sense of humour has come back.

5) My son doesn't always ask me if I am okay anymore. It used to be a weekly occurance for 18 year old to ask of my health pre-diagnosis. I must've looked awful!

6) The random spots are getting less random. But I must've slipped somewhere as I am a little spotty right now. (A sign of not getting old, still a teenager? I wish!)

7) I can sleep right through the night. Except for tonight as it is 3.30am.

8) I am not ravenous anymore.

9) The one thing I don't like about getting better, is the fact that I have to watch everything I eat calorie wise, as it goes straight to the hip.

Cathy


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gfgypsyqueen Enthusiast

Yes it is noce when noone has to ask how you are doing anymore. Glad to hear you are feeling better.

Yes, the watching everything you eat part sucks!

TrillumHunter Enthusiast

I'm new to this but already lots of changes. Here are the most obvious.

1. Getting up at 5:45 and working out for an hour makes me feel BETTER

2. If I have to correct the kids I correct them without the little voice in my head saying they are bad and I am a bad mom and if I would just get my act together.....bla, bla, bla

3. I can go to the grocery for a quick trip without a list!!!

4. My pants fit the same everyday!

alamaz Collaborator

I've only been gluten-free since March 1 but I started a list of all the postive changes i've been noticing so i can remind myself of the benefits of sticking to the gluten-free diet all the time some of those are:

1) feeling what feeling normal is for the first time ever

2) my mother told me that my skin looks fantastic after suffering through years of bad acne and mom tips on how to control it better (hello!)

3) spending 5 minutes once a day on the potty instead of 30 mins. twice a day

4) not having a "pregnant" belly at the end of every day

5) really appreciating the really good days when they come along because i feel like i could conquer the world and using the bad days to recoup and take it easy on myself

6) realizing the bad days are teaching me what my body doesn't like

7) not clearing out the family room during our fav. prime time shows with my gas :ph34r:

8) not losing a massive chunk of hair in the shower every day

9) my anxiety and agoraphobia is disappearing

10) no more night sweats!

wow! i could list more. thanks for the thread. it always helps to remind myself just how much better i am even when i'm not 100%!

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      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
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      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
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