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I Know I'm Getting Better When:


Kaycee

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Kaycee Collaborator

I know I'm getting better when:

1) I can go for my early morning walks without having to go to the loo to do number 2's first.

2) There are more days in a month without diarhoea.

3) I feel more socialable and have pleasure and fun in talking to most people I meet through the course of the day, instead of just the usual few who I feel close to.

4) My sense of humour has come back.

5) My son doesn't always ask me if I am okay anymore. It used to be a weekly occurance for 18 year old to ask of my health pre-diagnosis. I must've looked awful!

6) The random spots are getting less random. But I must've slipped somewhere as I am a little spotty right now. (A sign of not getting old, still a teenager? I wish!)

7) I can sleep right through the night. Except for tonight as it is 3.30am.

8) I am not ravenous anymore.

9) The one thing I don't like about getting better, is the fact that I have to watch everything I eat calorie wise, as it goes straight to the hip.

Cathy


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gfgypsyqueen Enthusiast

Yes it is noce when noone has to ask how you are doing anymore. Glad to hear you are feeling better.

Yes, the watching everything you eat part sucks!

TrillumHunter Enthusiast

I'm new to this but already lots of changes. Here are the most obvious.

1. Getting up at 5:45 and working out for an hour makes me feel BETTER

2. If I have to correct the kids I correct them without the little voice in my head saying they are bad and I am a bad mom and if I would just get my act together.....bla, bla, bla

3. I can go to the grocery for a quick trip without a list!!!

4. My pants fit the same everyday!

alamaz Collaborator

I've only been gluten-free since March 1 but I started a list of all the postive changes i've been noticing so i can remind myself of the benefits of sticking to the gluten-free diet all the time some of those are:

1) feeling what feeling normal is for the first time ever

2) my mother told me that my skin looks fantastic after suffering through years of bad acne and mom tips on how to control it better (hello!)

3) spending 5 minutes once a day on the potty instead of 30 mins. twice a day

4) not having a "pregnant" belly at the end of every day

5) really appreciating the really good days when they come along because i feel like i could conquer the world and using the bad days to recoup and take it easy on myself

6) realizing the bad days are teaching me what my body doesn't like

7) not clearing out the family room during our fav. prime time shows with my gas :ph34r:

8) not losing a massive chunk of hair in the shower every day

9) my anxiety and agoraphobia is disappearing

10) no more night sweats!

wow! i could list more. thanks for the thread. it always helps to remind myself just how much better i am even when i'm not 100%!

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
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