Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Son Is So Tired...

jacob'smom

Recommended Posts

jacob'smom Newbie
jacob'smom
Posted

We have been on a gluten free diet for about seven years with my son who has just turned eight. I am noticing that he is much more tired than other boys his age. Does anyone else have the same trouble with this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Belinda Meeker Apprentice
Belinda Meeker
Posted
We have been on a gluten free diet for about seven years with my son who has just turned eight. I am noticing that he is much more tired than other boys his age. Does anyone else have the same trouble with this?

Yes my son does too, he is 17 now but forever was so fatigued all the time whenever he would play just a short while....but sine we have watched what he drinks also changed his tiredness and if he eats while in his bed just before he falls asleep has helped :) good luck I know how hard this is and now whole family is going through testing's........

CarlaB Enthusiast
CarlaB
Posted

I'd get some blood tests done to see how his levels are in everything. He could be anemic. Many celiacs also have B12 deficiencies.

jacob'smom Newbie
jacob'smom
Posted
  • Author

What drinks do you watch?

Yes my son does too, he is 17 now but forever was so fatigued all the time whenever he would play just a short while....but sine we have watched what he drinks also changed his tiredness and if he eats while in his bed just before he falls asleep has helped :) good luck I know how hard this is and now whole family is going through testing's........
Belinda Meeker Apprentice
Belinda Meeker
Posted
What drinks do you watch?

Well my son is also allergic to colors, so red 40 and yellow 5 (MILK sometimes) r out, but he can do gatorade and water and no-colored kool-aids Ice tea sometimes, he doesn't dirnk any juices due to colors, but have read on some lables malt and barley, he can't do sunny-d or citrusy soda's (have cut out all soda's) still make sure to read lables i still do (2 years later) :) (like Yoohoo choco. drink)

jacob'smom Newbie
jacob'smom
Posted
  • Author

Which drinks did you change for gluten-related issues?

Well my son is also allergic to colors, so red 40 and yellow 5 (MILK sometimes) r out, but he can do gatorade and water and no-colored kool-aids Ice tea sometimes, he doesn't dirnk any juices due to colors, but have read on some lables malt and barley, he can't do sunny-d or citrusy soda's (have cut out all soda's) still make sure to read lables i still do (2 years later) :) (like Yoohoo choco. drink)
Belinda Meeker Apprentice
Belinda Meeker
Posted
Which drinks did you change for gluten-related issues?

he use to drink alot of soda and yoohoo's and pre-made kool-aide sunny-d before we were tested for "C" then after he still drank a few like pre made kool-aides yoohoo and soda's but when he cotinued to be still tired all the time I switched him to what only I made and no pop/soda's so basically wht I'am saying is he now drinks alot of water and nothing made but by me in my own cotainers like kool-aid (dry from package)Ice tea, since he is 17 he does watch very close to lables before he consumes anything to eat or drink .....hope this helps U! ( also he eats right before he goes to sleep)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ami27 Apprentice
ami27
Posted

For me ingesting gluten causes severe fatigue. I recently figured out that corn was doing the same thing. Maybe he has some other food intolerances as well. Good luck in determining the source. I found it to be such a hassle trying to figure it all out.

Ami

redharmony Newbie
redharmony
Posted

Hi! Yes, the gluten and corn make me tired as well. I have always shopped at Wholefoods or Trader Joe's for organic foods/drinks etc. I didn't start out shopping healthy to avoid gluten, it was to avoid all of the chemicals and pesticides that are in the "regular" food supply. Food colorings, for instance, are derived from Petroleum, so essentially they are coloring our kids foods with gasoline. There is another chemical that is in most foods that I can't think of off the top of my head right now, but it is in anti freeze. I once read that carrots are sprayed with over 35 toxic pesticides before they reach the grocery store. It is also in the soil, through "systemic" pesticides, and therefore, cannot be "washed off".

I often wonder if a lot of the problems, allergies, etc... that our children have, are due to reactions from the exposure to all of this toxic stuff in our food supply.

There is a wonderful book called "Poisoning our children" by a woman named Nancy Sokal Green on this topic. It's no longer in print, but you can find it for about $2 on internet used book sites.

You might look into this as a possibility too. Children's bodies just don't know what to do with all of these chemicals. They can't process them. Many of them are neurotoxins. It's worth looking into.

loraleena Contributor
loraleena
Posted

I would get his thyroid checked. Hypothyroidism is common in celiacs and can cause fatigue. Make sure you get the whole panel including the Thyroid Peroxidase anitbodies - they should be under 20.

loraleena Contributor
loraleena
Posted

I would get his thyroid checked. Hypothyroidism is common in celiacs and can cause fatigue. Make sure you get the whole panel including the Thyroid Peroxidase anitbodies - they should be under 20.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,898
    • Most Online (within 30 mins)
      7,748
    MLucia
    Newest Member
    MLucia
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.