Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Son Is So Tired...


jacob'smom

Recommended Posts

jacob'smom Newbie

We have been on a gluten free diet for about seven years with my son who has just turned eight. I am noticing that he is much more tired than other boys his age. Does anyone else have the same trouble with this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Belinda Meeker Apprentice
We have been on a gluten free diet for about seven years with my son who has just turned eight. I am noticing that he is much more tired than other boys his age. Does anyone else have the same trouble with this?

Yes my son does too, he is 17 now but forever was so fatigued all the time whenever he would play just a short while....but sine we have watched what he drinks also changed his tiredness and if he eats while in his bed just before he falls asleep has helped :) good luck I know how hard this is and now whole family is going through testing's........

CarlaB Enthusiast

I'd get some blood tests done to see how his levels are in everything. He could be anemic. Many celiacs also have B12 deficiencies.

jacob'smom Newbie

What drinks do you watch?

Yes my son does too, he is 17 now but forever was so fatigued all the time whenever he would play just a short while....but sine we have watched what he drinks also changed his tiredness and if he eats while in his bed just before he falls asleep has helped :) good luck I know how hard this is and now whole family is going through testing's........
Belinda Meeker Apprentice
What drinks do you watch?

Well my son is also allergic to colors, so red 40 and yellow 5 (MILK sometimes) r out, but he can do gatorade and water and no-colored kool-aids Ice tea sometimes, he doesn't dirnk any juices due to colors, but have read on some lables malt and barley, he can't do sunny-d or citrusy soda's (have cut out all soda's) still make sure to read lables i still do (2 years later) :) (like Yoohoo choco. drink)

jacob'smom Newbie

Which drinks did you change for gluten-related issues?

Well my son is also allergic to colors, so red 40 and yellow 5 (MILK sometimes) r out, but he can do gatorade and water and no-colored kool-aids Ice tea sometimes, he doesn't dirnk any juices due to colors, but have read on some lables malt and barley, he can't do sunny-d or citrusy soda's (have cut out all soda's) still make sure to read lables i still do (2 years later) :) (like Yoohoo choco. drink)
Belinda Meeker Apprentice
Which drinks did you change for gluten-related issues?

he use to drink alot of soda and yoohoo's and pre-made kool-aide sunny-d before we were tested for "C" then after he still drank a few like pre made kool-aides yoohoo and soda's but when he cotinued to be still tired all the time I switched him to what only I made and no pop/soda's so basically wht I'am saying is he now drinks alot of water and nothing made but by me in my own cotainers like kool-aid (dry from package)Ice tea, since he is 17 he does watch very close to lables before he consumes anything to eat or drink .....hope this helps U! ( also he eats right before he goes to sleep)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ami27 Apprentice

For me ingesting gluten causes severe fatigue. I recently figured out that corn was doing the same thing. Maybe he has some other food intolerances as well. Good luck in determining the source. I found it to be such a hassle trying to figure it all out.

Ami

redharmony Newbie

Hi! Yes, the gluten and corn make me tired as well. I have always shopped at Wholefoods or Trader Joe's for organic foods/drinks etc. I didn't start out shopping healthy to avoid gluten, it was to avoid all of the chemicals and pesticides that are in the "regular" food supply. Food colorings, for instance, are derived from Petroleum, so essentially they are coloring our kids foods with gasoline. There is another chemical that is in most foods that I can't think of off the top of my head right now, but it is in anti freeze. I once read that carrots are sprayed with over 35 toxic pesticides before they reach the grocery store. It is also in the soil, through "systemic" pesticides, and therefore, cannot be "washed off".

I often wonder if a lot of the problems, allergies, etc... that our children have, are due to reactions from the exposure to all of this toxic stuff in our food supply.

There is a wonderful book called "Poisoning our children" by a woman named Nancy Sokal Green on this topic. It's no longer in print, but you can find it for about $2 on internet used book sites.

You might look into this as a possibility too. Children's bodies just don't know what to do with all of these chemicals. They can't process them. Many of them are neurotoxins. It's worth looking into.

loraleena Contributor

I would get his thyroid checked. Hypothyroidism is common in celiacs and can cause fatigue. Make sure you get the whole panel including the Thyroid Peroxidase anitbodies - they should be under 20.

loraleena Contributor

I would get his thyroid checked. Hypothyroidism is common in celiacs and can cause fatigue. Make sure you get the whole panel including the Thyroid Peroxidase anitbodies - they should be under 20.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.