Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dd's Appt W/ The Gi Today. . .


ptkds

Recommended Posts

ptkds Community Regular

We took my youngest dd to the GI dr this morning because she has been having diarrhea for a few weeks. She saw the allergist about 1 1/2 wks ago, and he said that she probably isn't allergic to milk and corn (as I suspect) because her allergy testing (done when she was 4 months old) was negative for those. :angry: They also did a sweat test on her today to check for cystic fibrosis. I don't know the results from that yet.

Anyway, this is the same GI dr that told me that my older toddler had "toddler's diarrhea", even after a positive blood test for celiac. So this morning, he tried to tell my that my dd probably had "toddler's diarrhea," and I told him "I don't believe in "toddler's diarrhea" and I want her tested for celiac disease and allergies again." So he scheduled her for a biopsy to check for celiac disease. We go in to do it on June 22. I think he is planning on drawing the blood for allergy testing while she is asleep for the biopsy. So now we just have to play the waiting game again :( .

Just wanted to share! I am proud of myself for standing up to him when he tried to blow us off with a "toddlers diarrhea" line. I don't normally stand up to dr's that way!

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Good for you in the standing up to the DR!!!!!! :D

I think "toddler diahrea" is a four letter word and should be chucked from medical vocabulary!!!!! Jeez

Juliet Newbie

"I think "toddler diahrea" is a four letter word and should be chucked from medical vocabulary!!!!! Jeez"

I COULDN'T AGREE WITH YOU MORE!!!!!!!!!!

bnsnewman Rookie

Good for you for speaking up! My daughter's GI doc told me to give her more fiber. These docs must have some sort of book of lines to go to when they don't have the answer! Keep us posted and let us know how it goes.

Natalie

Cheri A Contributor

Good for you for standing up to the dr.! Maybe you should think about finding another dr.

I have gone to several different allergists here. The last one I switched from did not want to test my dd for any more allergies and had the gall to tell me that it looked like it bothered me more than her! She had bloody, oozing eczema and was up several times/night. She also had all the abdominal cramps, vomitting, constipation or diahrrea.

I switched allergists, they did the testing and we found out wheat and rice allergies. Celiac testing was inconclusive, but we went gluten-free anyway.

BARLEY MISSING Newbie

Hi just read your post I found it very interesting as I have 2 daughters I have just been diagnosed on Friday myself and my daughters have to be tested on June 18 just through blood work.

My youngest which is 22 now always had diahrea for 1 1/2 years as a toddler but doctor would not do anything just told me to feed her dry crackers and little milk, more water. From then on she had her gall bladder out at the age of 15,

has bathroom problems till this day so maybe she too will be diagnosed, I was diagnosed because of anemia, low B12

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.