Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone


Zenaida

Recommended Posts

Zenaida Newbie

Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome to our community. You will find lots of support here, and the people here will have answers to your questions.

Celiac is overwhelming at first, but it gets easier every day. I`m coming up on 7 years diagnosed, but had years of misery before learning what the cause was. Saw far too many emergency rooms and EMTs while trying to figure it out.

The good news is now you know, and you can cope with it. It will only get better as their health improves on the gluten-free diet.

missy'smom Collaborator

Welcome. It's a challenge but I am so greatful that I know what's wrong and I can do something about it. Knowledge is power. Just take it one day at a time.

CarlaB Enthusiast

You CAN go on!!

It's very difficult in the beginning, but as time goes on it's second nature. I have replaced everything I used to eat with gluten-free versions ... but I never ate very many sandwiches (the gluten-free bread is good toasted and for grilled cheese).

Our whole house eats gluten-free at home, which makes it easier. Three of us are on the diet.

Tinkyada Pasta is a great rice pasta. In the beginning it's easier, and healthier, to eat whole foods that are naturally gluten-free -- meat, poultry, fish, eggs, fruit, vegetables, potatoes, rice. You will find that eating gluten-free really forces you to eat healthier!

There are gluten-free products that replace regular food. They are expensive, but good for treats. I manage to do without them except for the pasta, Kinnikinnick bread, and Van's waffles.

In the beginning they may need to cut out dairy. If there is damage to the intestinal villi, then the part is gone that digests lactose. Then they can add it back later (unless they're casein intolerant).

Welcome to the forum! You will learn a lot here and realize that it's not all that bad. It's a disease whose cure is a change in diet.

pedro Explorer

Hi everyone.

You met my lovely wife Zenaida.

We have been married for 17 years, with three beautiful daugthers.

Best regards to everyone.

Lisa Mentor
Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celia, but her family is. She lives in the UK but she is a great person to talk to. We'll hook you up.

nikki-uk Enthusiast
Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celaic, but her family is. She lives om the UK but she is a great person to talk to. We'll hook you up.

I'M HERE!!! ...Just found this thread! :)

HI ZENAIDA!! (Is that you in Pedro's avatar?)

Yup as Lisa said my hubby + son #2 are coeliacs (son's #1 +3 tested neg)

When my hubby was dx nearly 3 yrs ago he was so very ill that we were just pleased to find out what was wrong.

Adjusting to the gluten-free diet was tricky at first (and OMG the first supermarket shop took HOURS while I read the ingredients of EVERYTHING!! :rolleyes: )

...but slowly but surely it got easier.You get to know (and store in your brain!) what's ok,-what's not and when you see your loved ones slowly but surely get better it's fantastic!!!

...Because of my hubby's dx of celiac disease I thought it was prudent to get the children tested but strongly suspected son #2 as he's always had bathroom issues.

He was dx in Oct 06 and took to the gluten-free diet with no problems whatsoever as he thought it was 'cool' that he got to eat what Dad does!!!

I must admit it was very easy adding my son to the gluten-free diet as we were already set up for my hubby. :)

I am actually gluten-free as well (although not a coeliac,- I found it clears my eczema if I avoid gluten)

Our evening (family) meals are gluten-free so we can all eat together and it's now become second nature to me.

It can feel overwhelming at first constantly having to check everthing but trust me it DOES get easier with time! :)

Please ask any questions you have or PM me if you want to :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Welcome! I'm so glad you're here!

It is overwhelming--I'm still in that stage, plus still having a lot of ups and downs and wishing to feel a lot better. A day at a time is certainly helpful;

Also approaching the changes knowing it is going to take a good while. Its helped me to read other's stories and know that most people have experiences accidental glutening as they figure this whole thing out.

Zenaida Newbie

Hi, Nikki and the rest of you. I'm glad to be a part of your family. I have the same problem as you, we have decided to all go gluten free. It's not fair to the other girls or myself but it's the best thing that can happen to us. We will be going away on vacatin soon so we'll see how we do. I'll keep you posted, as to how it goes. Bye for now

Lisa Mentor

I guarentee that soon you and pedro will be fighting for the computer to visit us. :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,828
    • Most Online (within 30 mins)
      7,748

    Ramona Stuart
    Newest Member
    Ramona Stuart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.