Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone

Zenaida

By Zenaida
in Coping with Celiac Disease

Recommended Posts

Zenaida Newbie
Zenaida
Posted

Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Welcome to our community. You will find lots of support here, and the people here will have answers to your questions.

Celiac is overwhelming at first, but it gets easier every day. I`m coming up on 7 years diagnosed, but had years of misery before learning what the cause was. Saw far too many emergency rooms and EMTs while trying to figure it out.

The good news is now you know, and you can cope with it. It will only get better as their health improves on the gluten-free diet.

missy'smom Collaborator
missy'smom
Posted

Welcome. It's a challenge but I am so greatful that I know what's wrong and I can do something about it. Knowledge is power. Just take it one day at a time.

CarlaB Enthusiast
CarlaB
Posted

You CAN go on!!

It's very difficult in the beginning, but as time goes on it's second nature. I have replaced everything I used to eat with gluten-free versions ... but I never ate very many sandwiches (the gluten-free bread is good toasted and for grilled cheese).

Our whole house eats gluten-free at home, which makes it easier. Three of us are on the diet.

Tinkyada Pasta is a great rice pasta. In the beginning it's easier, and healthier, to eat whole foods that are naturally gluten-free -- meat, poultry, fish, eggs, fruit, vegetables, potatoes, rice. You will find that eating gluten-free really forces you to eat healthier!

There are gluten-free products that replace regular food. They are expensive, but good for treats. I manage to do without them except for the pasta, Kinnikinnick bread, and Van's waffles.

In the beginning they may need to cut out dairy. If there is damage to the intestinal villi, then the part is gone that digests lactose. Then they can add it back later (unless they're casein intolerant).

Welcome to the forum! You will learn a lot here and realize that it's not all that bad. It's a disease whose cure is a change in diet.

pedro Explorer
pedro
Posted

Hi everyone.

You met my lovely wife Zenaida.

We have been married for 17 years, with three beautiful daugthers.

Best regards to everyone.

Lisa Mentor
Lisa
Posted
Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celia, but her family is. She lives in the UK but she is a great person to talk to. We'll hook you up.

nikki-uk Enthusiast
nikki-uk
Posted
Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celaic, but her family is. She lives om the UK but she is a great person to talk to. We'll hook you up.

I'M HERE!!! ...Just found this thread! :)

HI ZENAIDA!! (Is that you in Pedro's avatar?)

Yup as Lisa said my hubby + son #2 are coeliacs (son's #1 +3 tested neg)

When my hubby was dx nearly 3 yrs ago he was so very ill that we were just pleased to find out what was wrong.

Adjusting to the gluten-free diet was tricky at first (and OMG the first supermarket shop took HOURS while I read the ingredients of EVERYTHING!! :rolleyes: )

...but slowly but surely it got easier.You get to know (and store in your brain!) what's ok,-what's not and when you see your loved ones slowly but surely get better it's fantastic!!!

...Because of my hubby's dx of celiac disease I thought it was prudent to get the children tested but strongly suspected son #2 as he's always had bathroom issues.

He was dx in Oct 06 and took to the gluten-free diet with no problems whatsoever as he thought it was 'cool' that he got to eat what Dad does!!!

I must admit it was very easy adding my son to the gluten-free diet as we were already set up for my hubby. :)

I am actually gluten-free as well (although not a coeliac,- I found it clears my eczema if I avoid gluten)

Our evening (family) meals are gluten-free so we can all eat together and it's now become second nature to me.

It can feel overwhelming at first constantly having to check everthing but trust me it DOES get easier with time! :)

Please ask any questions you have or PM me if you want to :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted

Welcome! I'm so glad you're here!

It is overwhelming--I'm still in that stage, plus still having a lot of ups and downs and wishing to feel a lot better. A day at a time is certainly helpful;

Also approaching the changes knowing it is going to take a good while. Its helped me to read other's stories and know that most people have experiences accidental glutening as they figure this whole thing out.

Zenaida Newbie
Zenaida
Posted
  • Author

Hi, Nikki and the rest of you. I'm glad to be a part of your family. I have the same problem as you, we have decided to all go gluten free. It's not fair to the other girls or myself but it's the best thing that can happen to us. We will be going away on vacatin soon so we'll see how we do. I'll keep you posted, as to how it goes. Bye for now

Lisa Mentor
Lisa
Posted

I guarentee that soon you and pedro will be fighting for the computer to visit us. :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.