Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question On Specific Packaged Items


Guest little smokey

Recommended Posts

Guest little smokey

I'm new and have been reading in awe at the amazing amount of helpful information here. I've got a couple of questions I wonder if you could help with. I was diagnosed with celiac disease in March '04 and am still having issues with gluten. To give some background on my current issue... I host a mentoring-type cooking class weekly in my home for young moms. 5 leaders take turns demo-ing for the girls. This week we cooked a roast beef dinner. I read the ingredients on Lipton's Onion Soup Mix, Kraft marshmallows (for dessert) and Hy's Seasoning Salt and they were okay. Symptoms started showing that evening...and the next day I had clearly been glutenized! Argh.

Also, my symptoms are changing. Is that common? And I seem so much more sensitive to flour in the air (when my friends' demo breadmaking) which I'm seriously considering outlawing in my kitchen!

The one great thing I have found is to give my gut a good rest afterward. 2 days of fruit and veggies, 3 day fast, 2 more days of fruit and veggies and the symptoms are gone. But it's really hard to stay at a healthy weight if I'm "cleansing" once every 3 months.

Please...share your wisdom!!

little smokey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest KG in FL
I'm new and have been reading in awe at the amazing amount of helpful information here. I've got a couple of questions I wonder if you could help with. I was diagnosed with celiac disease in March '04 and am still having issues with gluten. To give some background on my current issue... I host a mentoring-type cooking class weekly in my home for young moms. 5 leaders take turns demo-ing for the girls. This week we cooked a roast beef dinner. I read the ingredients on Lipton's Onion Soup Mix, Kraft marshmallows (for dessert) and Hy's Seasoning Salt and they were okay. Symptoms started showing that evening...and the next day I had clearly been glutenized! Argh.

Also, my symptoms are changing. Is that common? And I seem so much more sensitive to flour in the air (when my friends' demo breadmaking) which I'm seriously considering outlawing in my kitchen!

The one great thing I have found is to give my gut a good rest afterward. 2 days of fruit and veggies, 3 day fast, 2 more days of fruit and veggies and the symptoms are gone. But it's really hard to stay at a healthy weight if I'm "cleansing" once every 3 months.

Please...share your wisdom!!

little smokey

Don't know what type roast beef you were cooking but I am really getting concerned myself over the injected ingredients they put into chickens and turkeys. Some say "broth" was injected to tenderize and make it juicy and I know some broths have gluten in them and maybe a carmel coloring. For Thanksgiving I paid a ridiculous amount (but worth it) for a naturel turkey with no added "juices". I know a lot of deli meats are not gluten free (Boar's Head is). Could the meat have been "tenderized" or injected? I doubt it but I would never have thought chickens and turkeys were either.

Some of the pre-frozen beef I belive is "tenderized" and injected. Any info out there? Chicken is the meat I see most injected and I am most suspicious about. But I don't know much about it and keep eating chicken. I buy the "safest" kind I can find, but what about at resturants? Who knows if it's been injected.

Don't know that this was your problem but our foods do have "extra's" added to them when we would never think it.

wowzer Community Regular

I'm wondering if maybe the flour in the air got to you. I'm sure breathing it in could maybe be kind of like eating it. You'll have to start having them do gluten free bread. That is really great that you mentor young girls in cooking. Sounds like you should ban gluten from your kitchen. I wish you luck.

kbtoyssni Contributor

Oh gosh, I would absolutely outlaw wheat flour in your kitchen! That stuff flies all over and is impossible to clean up. I find gluten-free flour all over my kitchen for days after cooking. Maybe you could use the cooking classroom at a local school for days when you need to demo wheat-based foods.

janjal Newbie

Hey, the onion soup mix has gluten in it. I have checked it out because I have a before celiac's recipe that includes the dry onion soup mix. I have been trying to find a substitute for it and have yet to.

zkat Apprentice
Hey, the onion soup mix has gluten in it. I have checked it out because I have a before celiac's recipe that includes the dry onion soup mix. I have been trying to find a substitute for it and have yet to.

I believe Campbell's onion soup is gluten free. I don't have a box to check at the house, but am pretty sure it is the only one I could find gluten-free

janjal Newbie

I E-mailed Campbell soup a month back, and the onion soup does have gluten in it. They sent me a list of gluten free items and the onion soup was not on it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zkat Apprentice
I E-mailed Campbell soup a month back, and the onion soup does have gluten in it. They sent me a list of gluten free items and the onion soup was not on it.

Now I have to remember which one it was, because there was one that I found. HMMM, it will bug me now.

gfgypsyqueen Enthusiast

I don't know about the rest of you, but I get leary buying any fresh meat at my local grocery store (Publix). They have signs up about all of the meats, seafood, and deli meat may have come into conatct with the top 8 allergens are listed. I have talked to the managers I a feel confident about the safety of their food handling practices and that the sign is a legalese statement. But it does make you wonder. BTW Tysons frozen chicken breast contain chicken broth that is literally chicken and water boiled. I never get sick and love the convenience.

Years ago I bought onion soup mix (like lipton's style) that was gluten-free and found in the health food section of the store. I think it was from Hain's but I just can't remember the brand name.

As for the cooking classes, I think it is a great idea. Great job! I woudl move the gluten classes to soemone elses kitchen if at all possible. I imagine you include info on safe food handling and avoiding cross contamination. Any chance you also talk to the young girls/young moms about signs of food allergies in kids? It is one of those topics that I wish had been mentioned in the "What to expect..." books and all of the other baby books. I would have made sure I had Benadryl in the house - just in case. We had no known food allergies before my daughter went into anaphylactic shock over some cookies. That was our intro into peanut/tree nut allergies. And that episode was followed by my celiacs diagnosis.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,747
    • Most Online (within 30 mins)
      7,748

    Suzanne Dar
    Newest Member
    Suzanne Dar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.