Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Diarrhea?

shanbr

By shanbr
in Coping with Celiac Disease

Recommended Posts

shanbr Rookie
shanbr
Posted

Do you get diarrhea even if you haven't eaten gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Karen B. Explorer
Karen B.
Posted
Do you get diarrhea even if you haven't eaten gluten?

Lots of things can cause D, not just gluten. Stress, viruses, spicy food and everyone has their own individual triggers too. Too much pancake syrup will do me in.

JNBunnie1 Community Regular
JNBunnie1
Posted
Do you get diarrhea even if you haven't eaten gluten?

Absolutely, not to mention the fact that it takes a while for your intestinal system to recover fully. You might try taking a broad spectrum probiotic, make sure it's gluten free. Any health food store will be happy to check for you, I take Flora's udo's Choice Adult Probiotic. That should help with your internal repair.

Ursa Major Collaborator
Ursa Major
Posted

I get diarrhea from gluten, rice, eggs and potatoes.

Guest j_mommy
Guest j_mommy
Posted

The first couple of days after going gluten-free I still had the big D. But now after a couple of weeks I haven't.

As Karen B said it could be a multitude of other things. Stress is a big one for me, smoking, soda ect......

If I have more than 1 glass of milk...I also get it!!!

Hope you feel better soon!!

dlp252 Apprentice
dlp252
Posted

Had diarrhea before going gluten free and still have it.

Been gluten free for over a year and a half and still have diarrhea...in fact it's getting worse in the last few months!

Nancym Enthusiast
Nancym
Posted

I'd say it's due to something else. For me I'm sensitive to other foods: diary, seeds, corn and probably other things. Or it might be something like small bowel overgrowth. Google that term and see if it makes sense.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SunnyDyRain Enthusiast
SunnyDyRain
Posted

Yeah...

I had a hard time figuring out what was happening to me, I was gluten-free but still getting the big D. I first figured out caisens, that helped me, then I had to relearn what is normal for bowel movements. My first lesson was if I eat fruit all day, I'll be on the toliet all night... I was upset thinking I was some weirdo who was intolerant to fruit. Then my boyfriend (who hates when I talk about my BM's) told me if anyone ate that much fruit that would happen. I was also told nuts don't digest, so don't freak out. I have also been accused of worrying myself sick over the gluten-free diet. Everyone thinks I overthink the diet and make myself sick from worry, but I think my worry is called for. Besides I worry the same amount everyday, If I was worrying every day...i'd be sick everyday!

Unfortunately my main symtom of Celiac was D, so I have to first eliminate normal causes of D, then if they check out, look for casien/gluten sources.

pedro Explorer
pedro
Posted
I get diarrhea from gluten, rice, eggs and potatoes.

Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

StrongerToday Enthusiast
StrongerToday
Posted

Fatty foods, even a small bag of chips, can do me in! :angry:

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

It could be a nightshade intoelrance - some folks with celiac disease have that.

Eggs, apples, most raw fruit, an abundance of OJ, an abundance of fried food and even champagne has give me the big "D" on occasion.

Karen B. Explorer
Karen B.
Posted

Just realized I forgot to mention overdosing on coffee, too much coffee will definitely cause it.

Yenni Enthusiast
Yenni
Posted

Yes, I can get diarrhea from other stuff too. Stress, if I eat a lot of rice, medication like antibiotics, chocolate..

Felidae Enthusiast
Felidae
Posted

In addition to gluten, tapioca and beef give me diarrhea.

tmk Explorer
tmk
Posted

i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

Walter S Explorer
Walter S
Posted

I have been gluten free for a few months now and I am still getting diarrhea all of the time! Also I now get nausea and vomiting which I din't get before. Next step for me is the elimination diet.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

I have to say my D is much different from the D I had before gluten-free. Before I had very little contol over it, and very little warning. Now I can feel it coming a few hours ahead of time. they arn't nearly as "violent". Before I would check where the bathrooms were when I went somwhere, now I can seem to wait till i get home before needing to go.

Does that make you feel any better?

lob6796 Contributor
lob6796
Posted

I get it from gluten, milk, soy, coffee, beef, and certain types of oils - like those chips with olestra. Too much fruit will do it, as will too many nuts. lol.. so much!

pedro Explorer
pedro
Posted

Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

lob6796 Contributor
lob6796
Posted
Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

I have to say that for some, the big D is the most life changing aspect. My father drives an oversize load truck for a living, and we live out in the middle of no where. No matter what the poor guy eats, he is stopping this ENORMOUS truck in the middle of a road, basically blocking off all traffic, and running off into the woods. Thank god we live out in the middle of nowhere. He used to work in Boston driving tractor trailers and he said if he had these symptoms back then he didn't know if he would be able to do his job. You can't exactly stop, drop and ...go in the middle of Boston. He is looking forward to getting through all the testing and getting his bathroom needs under control.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    3. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    5. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.