Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Experience With Www.foodintol.com?


jnclelland

Recommended Posts

jnclelland Contributor

I have a friend who has just been diagnosed with fructose intolerance, and she's having a hard time finding any info about the fructose content of various foods. She came across the website for the "Tuesday Club" at Open Original Shared Link, which claims to have this amazing detection diet (which she doesn't need since she already knows what the problem is) and lots of info about various special diets, including one for fructose intolerance - at the low, low price of $100 for 2 months' access! <_< Since they also have a section on gluten-free diets, she wondered if I knew anything about it. I don't - and I'm naturally suspicious of sites with a hefty access fee - but I told her I'd ask here if anyone has any experience with it.

For that matter, if anyone has any resources regarding fructose intolerance, please let me know and I'll pass them on to her. Thanks!

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

You might want to google "Small bowel bacterial overgrowth". Sometimes intolerances to starches and sugars can be caused by that. Treatment is pretty simple, just a course of antibiotics like rifamixin.

Murph Newbie

Yikes $100!!

There are no secrets to an Elimination Diet.

Besides online, I'd hit the local library for info on fructose-free. Surely it's at least a part of some book.

gadgetgirl Newbie
She came across the website for the "Tuesday Club"

Hi, I tried out that website last summer when I was first experimenting with elimination diets. My advice - it wasn't really worth it. I found better information in the book:

Food Allergies and Food Intolerance: The Complete Guide to Their Identification and Treatment by Jonathan Brostoff and Linda Gamlin

And what ultimately helped me nail down my intolerances was Enterolab testing and York Labs testing (the one in England).

jnclelland Contributor

She's been through quite a long process of elimination diets, antibiotics for bad intestinal bacteria, and all sorts of other things. She's working with a good GI who she likes, and she's pretty sure that she has the right diagnosis at this point. What she needs to know is how to get accurate information regarding the fructose content of foods. (It's not part of the standard nutritional information that's listed on most foods.)

Thanks for the book recommendation; I'll pass that along.

Jeanne

corinne Apprentice

Open Original Shared Link

has great info including fructose content of almost all foods. And it's free.

tarnalberry Community Regular

The source database for nutriondata.com is the Open Original Shared Link which lists, amongst a large number of other things, fructose content of most foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor

Ooooh, thanks for those two web sites - that's exactly what she needs! :)

Jeanne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,645
    • Most Online (within 30 mins)
      7,748

    MaryLou N
    Newest Member
    MaryLou N
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.