Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is A Mamaw Update!


mamaw

Recommended Posts

mamaw Community Regular

Hi All,

It's been awhile since I updated what's been going on since I was in ICU a few months ago with thyroid effecting my heart...

On may 25,07 I broke down or truly the doctors broke me down & I swallowed the RAI.... again I felt like I was selling my soul to the devil! Since I couldn't come back home because of the radiation , my hubby & I took off for a three day quiet weekend of walking in the open air, enjoying each others company without touching!!!!!!!!!

I was just glad to have the energy to get out & walk after having that period where I couldn't barely breathe let alone stand or walk.

I truly did not notice anything after the RAI therapy. With me being so sensitive I thought something would be noticable but it was uneventful or I thought it was going to be unenventful!..

After the first three days of nothing changing I decided I worried & scared myself for nothing.Then on the fourth day I started getting crampy & onto severe pain from my navel to my left , moving to my back. NO BOWEL movements.... AS the pain got unbearable I suffered for five days before giving in once again & headed for our local ER.I began to get very bloated & looked very much with child. Of course that's impossible!!!!!! After two CT scans one without contrast & one hour later one with , I'm thinking more radiation just what I needed after swallowering the Rai.

The doctors were puzzled & I still do not have an answer from them.... I went a week with no bowel movements. They fed me all kinds of meds saying time " you will go with this one"After using their best weapon my body won, they lost, NO BM.... by this time I again began to see I have a big problem.

So for the past week I have been in a hospital waiting to make a poopy so I could get released..... After everything failed we tried the horse remedy.... mineral oil ........ it usually workes fast on a horse!!! well I found out I'm not a horse! It took me twelve hours to make the slightest movement.... So with the excitement of a almost 60 year old making poopy the whole wing were saying hooray!!!! I got home a few hours ago, still having terrible pain, still looking pregant & misable....

They now believe the thyroid is doing this because of the RAI therapy. I now have to go for a colonscopy & an endo within ten days. Plus my pap smear came back with abnormal cells... so I have to have bipspies done on that in the next ten days............ I know we are not given more than we can handle but I feel like abandoning ship at this point.

I don't know what to expect next but I know my plate feels full to me........

thanks again my friends for your continued prayers.

blessings

mamaw


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Thanks for the update.

Sounds like your plate is very full.

If you are exhausted on the mainline tests, would you be willing to consider alternative tests?

We will keep you in our thoughts.

Ksmith Contributor

That sounds just awful, you are in my thoughts as well. I'm sorry!

~K

Ursa Major Collaborator

I am so sorry this is happening to you! And the RAI can't be undone. I just hope you feel better soon and that in the end it was worth it.

I'll be praying for your quick recovery.

num1habsfan Rising Star

*Hugs* I'm sorry to hear you are going thru so much!! I hope you can feel better and get some answers soon!

~ Lisa ~

jerseyangel Proficient

I'm so sorry to hear this :(

I hope that you get relief soon--I'll keep you in my thoughts and prayers, Mamaw :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,236
    • Most Online (within 30 mins)
      7,748

    PamO
    Newest Member
    PamO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Other symptoms that Celiac Disease can cause but resemble other diseases so the cause may be misdiagnosed. What Are the Symptoms of Celiac Disease?  
    • trents
    • sillyac58
      Thanks Scott. They are gluten-free but cross contaminated. 
    • cristiana
      Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy.   I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down.  I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side!  I would imagine bloating could cause the same effect as weight gain. In my case I don't think it is my bowel protruding but a bit of fat  - sorry,  I realise this isn't painting a very pretty picture.  But in truth it is scarcely noticeable.  It has never really got bigger in size. I was rather hoping that it could be operated on but here in the UK they don't seem to operate on every hernia anymore.  My GP isn't remotely worried about it. In a way, I should be thankful - it is like an early warning system that I need to go on a diet! Cristiana
    • Scott Adams
      The hernia description would likely be unrelated to celiac disease, but you'd need to get it checked out by your doctor to be sure it's a hernia.
×
×
  • Create New...