Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is A Mamaw Update!

mamaw

By mamaw
in Related Issues & Disorders

Recommended Posts

mamaw Community Regular
mamaw
Posted

Hi All,

It's been awhile since I updated what's been going on since I was in ICU a few months ago with thyroid effecting my heart...

On may 25,07 I broke down or truly the doctors broke me down & I swallowed the RAI.... again I felt like I was selling my soul to the devil! Since I couldn't come back home because of the radiation , my hubby & I took off for a three day quiet weekend of walking in the open air, enjoying each others company without touching!!!!!!!!!

I was just glad to have the energy to get out & walk after having that period where I couldn't barely breathe let alone stand or walk.

I truly did not notice anything after the RAI therapy. With me being so sensitive I thought something would be noticable but it was uneventful or I thought it was going to be unenventful!..

After the first three days of nothing changing I decided I worried & scared myself for nothing.Then on the fourth day I started getting crampy & onto severe pain from my navel to my left , moving to my back. NO BOWEL movements.... AS the pain got unbearable I suffered for five days before giving in once again & headed for our local ER.I began to get very bloated & looked very much with child. Of course that's impossible!!!!!! After two CT scans one without contrast & one hour later one with , I'm thinking more radiation just what I needed after swallowering the Rai.

The doctors were puzzled & I still do not have an answer from them.... I went a week with no bowel movements. They fed me all kinds of meds saying time " you will go with this one"After using their best weapon my body won, they lost, NO BM.... by this time I again began to see I have a big problem.

So for the past week I have been in a hospital waiting to make a poopy so I could get released..... After everything failed we tried the horse remedy.... mineral oil ........ it usually workes fast on a horse!!! well I found out I'm not a horse! It took me twelve hours to make the slightest movement.... So with the excitement of a almost 60 year old making poopy the whole wing were saying hooray!!!! I got home a few hours ago, still having terrible pain, still looking pregant & misable....

They now believe the thyroid is doing this because of the RAI therapy. I now have to go for a colonscopy & an endo within ten days. Plus my pap smear came back with abnormal cells... so I have to have bipspies done on that in the next ten days............ I know we are not given more than we can handle but I feel like abandoning ship at this point.

I don't know what to expect next but I know my plate feels full to me........

thanks again my friends for your continued prayers.

blessings

mamaw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Thanks for the update.

Sounds like your plate is very full.

If you are exhausted on the mainline tests, would you be willing to consider alternative tests?

We will keep you in our thoughts.

Ksmith Contributor
Ksmith
Posted

That sounds just awful, you are in my thoughts as well. I'm sorry!

~K

Ursa Major Collaborator
Ursa Major
Posted

I am so sorry this is happening to you! And the RAI can't be undone. I just hope you feel better soon and that in the end it was worth it.

I'll be praying for your quick recovery.

num1habsfan Rising Star
num1habsfan
Posted

*Hugs* I'm sorry to hear you are going thru so much!! I hope you can feel better and get some answers soon!

~ Lisa ~

jerseyangel Proficient
jerseyangel
Posted

I'm so sorry to hear this :(

I hope that you get relief soon--I'll keep you in my thoughts and prayers, Mamaw :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos. I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, ...
    2. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    3. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to...
    4. Gigi2025
      - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

      Hi Christiana, Many thanks for your response. Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless). I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his...
    5. Wends
      - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed?...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,712
    • Most Online (within 30 mins)
      7,748
    Gina1970
    Newest Member
    Gina1970
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.