Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Help My 3 Year Old Daughter


sspringer

Recommended Posts

sspringer Newbie

I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2two Enthusiast
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.
mama2two Enthusiast
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.

Have you ever read "gluten-free living for dummies" by Danna Korn? I am reading it now and she did talk of gluten in make-up and beauty products and what she said is that unless they are on your mouth or near it so that it may be ingested it usually does not bother you. But she said that some people say that beauty products, shampoos etc. with gluten do bother them, in which case you should obviously avoid them. GOod Luck!!

chrissy Collaborator

are you having your daughter's Ttg levels tested on a regular basis? this is a really good way to monitor how well you are following the diet. we test our girls about every 6 months. i would imagine that over time we will test them less often, but for now, it helps us to keep an eye on things.

sspringer Newbie

Thanks for your replies. I actually was told to follow up with her pediatrician and that the GI doctor didn't need to see her anymore. Do you go to your ped. to get the test or the GI doc? I have also heard alot about the celiac for dummies so I am going to order that today. Thanks again.

JennyC Enthusiast

If you are buying from reliable companies then you don't have to worry about hidden gluten. Nestle, General Mills and Kraft to name a few will not hide their gluten. I suggest going to their websites are printing off a list of their brands. You usually do not need to worry about caramel coloring, but I will not feed my son anything with natural flavoring from an unknown brand without calling them first. Many people say that modified food starch is fine unless it says that it is made from wheat, but I follow the same policy as I use with natural flavoring. The best thing to do besides finding the safe brands is to just start calling companies. Each company usually produces many products so you can sometimes get lots of information from one company. If you send me a private message with your email I will send you an email attachment of some gluten free food lists to give you a head start.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    2. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    3. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    4. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,129
    • Most Online (within 30 mins)
      7,748

    PorkchopKate
    Newest Member
    PorkchopKate
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.