Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casiens - Revisted

SunnyDyRain

Casien  

7 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am just handling This casien thing harder than gluten, I think it's because there is hope I one day will...

I just want to know about your experinces, and if anyone has any info on villi damage due to casiens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

tarnalberry Community Regular
tarnalberry
Posted

you can check pubmed for the casein-induced enteropathy studies.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I could not stop getting sick from casein after going gluten-free but am a vegan now and avoid it anyway.

marciab Enthusiast
marciab
Posted

I wasn't tested (I won't go there), but everytime I ate or drank anything with dairy in it my stomach would go into spasm or I would get nauseas. Lactaid did not help ...

Having said that, for some reason I have been able to drink kefir made from organic cow's milk ever since going gluten free. This is really good with frozen fruit ... And a good probiotic.

I recently tested to see if I could handle cheese and I was fine. No pains, no nausea.

I'm not planning on adding it back in all the time though. I've read too much about how bad dairy is for us and I am still trying to heal.

Clear as mud, huh ?? Marcia

pedro Explorer
pedro
Posted

Hi.

I was hoping for the same, that one day soon I will be able to eat dairy products, but since I started the diet I knew in my heart that I will never can eat dairy products again. I need it confirmation, thats when I called EnteroLabs and they told me what I was suspecting all along.

This diet is for ever.

Best regards to everyone.

aikiducky Apprentice
aikiducky
Posted

I've been casein free for a couple years now, and if anything, I'm more sensitive to it (just like with gluten), although my reactions are not as violent any more as they once were (also just like with gluten). I did eat goats cheese up till two weeks ago, but I've stopped that as well for now and I'm planning to reintroduce it in a month or so to see if I react to goats cheese, too. I'm pretty sure I'll be cow milk free for life though.

It's almost harder to avoid casein isn't it? I find it's the combination of avoiding both gluten and casein that makes it very tricky, a lot of gluten free foods still have casein so it limits my choices much more. But hang in there, you really need to give it a good chance before you try to reintroduce.

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

Every week or so I seem to slip up and am confirmed again, I still can't eat it.

dlp252 Apprentice
dlp252
Posted

I was tested through Enterolabs, but that merely confirmed what I already knew. I will probably not ever be able to eat dairy regularly. I did buy a very small (6 oz) container of plain (unflavored, unsweetened) goatmilk yogurt last week...I ate half of it one day and half the next. That's it, I don't think I could eat more than that and be okay. Half the container seemed to work okay, but I think if I ate it every day I'd have problems.

jnclelland Contributor
jnclelland
Posted
I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

jnclelland Contributor
jnclelland
Posted
I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

I never did like milk in my coffee; it HAD to be half and half. But the Silk creamer is a pretty good imitation of half and half, and I really liked it.

Jeanne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
    2. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    3. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    4. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    5. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748
    Dye42
    Newest Member
    Dye42
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.