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Casiens - Revisted

SunnyDyRain

Casien  

7 members have voted

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SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am just handling This casien thing harder than gluten, I think it's because there is hope I one day will...

I just want to know about your experinces, and if anyone has any info on villi damage due to casiens.

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CarlaB Enthusiast
CarlaB
Posted

I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

tarnalberry Community Regular
tarnalberry
Posted

you can check pubmed for the casein-induced enteropathy studies.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I could not stop getting sick from casein after going gluten-free but am a vegan now and avoid it anyway.

marciab Enthusiast
marciab
Posted

I wasn't tested (I won't go there), but everytime I ate or drank anything with dairy in it my stomach would go into spasm or I would get nauseas. Lactaid did not help ...

Having said that, for some reason I have been able to drink kefir made from organic cow's milk ever since going gluten free. This is really good with frozen fruit ... And a good probiotic.

I recently tested to see if I could handle cheese and I was fine. No pains, no nausea.

I'm not planning on adding it back in all the time though. I've read too much about how bad dairy is for us and I am still trying to heal.

Clear as mud, huh ?? Marcia

pedro Explorer
pedro
Posted

Hi.

I was hoping for the same, that one day soon I will be able to eat dairy products, but since I started the diet I knew in my heart that I will never can eat dairy products again. I need it confirmation, thats when I called EnteroLabs and they told me what I was suspecting all along.

This diet is for ever.

Best regards to everyone.

aikiducky Apprentice
aikiducky
Posted

I've been casein free for a couple years now, and if anything, I'm more sensitive to it (just like with gluten), although my reactions are not as violent any more as they once were (also just like with gluten). I did eat goats cheese up till two weeks ago, but I've stopped that as well for now and I'm planning to reintroduce it in a month or so to see if I react to goats cheese, too. I'm pretty sure I'll be cow milk free for life though.

It's almost harder to avoid casein isn't it? I find it's the combination of avoiding both gluten and casein that makes it very tricky, a lot of gluten free foods still have casein so it limits my choices much more. But hang in there, you really need to give it a good chance before you try to reintroduce.

Pauliina

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SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

Every week or so I seem to slip up and am confirmed again, I still can't eat it.

dlp252 Apprentice
dlp252
Posted

I was tested through Enterolabs, but that merely confirmed what I already knew. I will probably not ever be able to eat dairy regularly. I did buy a very small (6 oz) container of plain (unflavored, unsweetened) goatmilk yogurt last week...I ate half of it one day and half the next. That's it, I don't think I could eat more than that and be okay. Half the container seemed to work okay, but I think if I ate it every day I'd have problems.

jnclelland Contributor
jnclelland
Posted
I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

jnclelland Contributor
jnclelland
Posted
I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

I never did like milk in my coffee; it HAD to be half and half. But the Silk creamer is a pretty good imitation of half and half, and I really liked it.

Jeanne

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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