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College Student Recently Diagnosed With celiac disease

BlackburnK

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a1sacch Rookie
a1sacch
Posted

oh! this will probably help more.

usually i just drink rum or vodka, but when its going to be a long day of drinking, and i dont want to pass out by noon- i drink "woodchucks"-they are a fermented apple cider, not tooo expensive and really good.

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KaitiUSA Enthusiast
KaitiUSA
Posted

I'm a college student to but I do not live on campus. Once you get used to it , it will be very easy. It takes some adjusting but you can have alot that many people can have. There are great substitutes that are becoming more readily available. You have to find the right brands but we can help you here. You can message me and I will be glad to give you some info. You came to the right place:)

NoGluGirl Contributor
NoGluGirl
Posted

Dear BlackburnK,

I second the sandwiches on gluten-free bread. I actually had my first sandwich since going gluten-free yesterday. It was divine! :D I love big, stacked sandwiches! I am not supposed to eat yeast, though. I kind of felt like I have to eat the bread with yeast since my father paid so much for it. It is a rare treat for me due to affordability.

Sincerely,

NoGluGirl

DestinyLeah Apprentice
DestinyLeah
Posted
To anyone that reads this, please reply with any info you would like to share with me!

I am a college student, always on the go, love to eat out, love to snack.

2 weeks ago I was diagnosed with Celiac disease. I am struggling to find good things to eat.

Do Puffins Cinnamon Cereal have gluten in it?

Are there other names for gluten that is on the ingredient list?

How come some wheat free foods are not gluten free??

I loved miller lite, any one try the wheat free beer?

Also what liquors do I stay away from? or do I have to be that girl and ask everytime I want to get a drink?

Any other info you would like to share, please do, since I am learning everyday.

Thanks,

Krista

Redbridge does not taste like Miller Light, but is good. Try it, you will like it.

I lived off of Honey Rice puffins when I got out of the hospital. They still make me smile.

Even if you ask, 9/10 bartenders have no ides where the alcohol they are serving came from, or what it is made from.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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