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Great Pamphlet For Celiac Newbies


lob6796

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lob6796 Contributor

I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link


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Yellow Rose Explorer
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

That is a great booklet. I am new at this and it was so helpful.

Thanks,

Yellow Rose

NoGluGirl Contributor
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

Dear kilcan,

Thank you for posting this! Some of these things I did not know we could have! Yay! More options! :) I am really glad I checked out this thread! There is always something you can learn! I have been gluten-free since August of last year.

It is important to me to make it as easy as possible.

Sincerely,

NoGluGirl

Lins Rookie

Thanks for this brochure! It's full of great information. I can't get into see my dietician for another month, so I am just plugging along, doing the best I can. I felt great the first week I went gluten free, but haven't felt good since. Not sure if it's part of my healing process, or if I am still getting gluten, or what. Anyway, thanks again!

ginghamkim Apprentice

Thanks! This pamplet helped me figure out what glutened me last night! Sneaky French's Honey Dijon. Kim

little d Enthusiast

Thanks

I printed it so I can take it to my Ortho doc on Monday for my foot, hopefully he will see why I want a bone density test, on top of braking my foot for the 3rd time. I am contemplating wheather or not to tell him about me testing negative for celiac disease or just tell him a lie and say that I am and hope that he will take my word for it.

Thanks again

Donna

kb8ogn Rookie

Thanks so much for that info.....what a wonderful resource.


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bluejeangirl Contributor

I was reading the list for candy bars and Mars Almond bars were listed. I used to eat these years ago and loved them but I can't find them in the stores anymore. Are these still around? I'm so frustrated. I'm glad they're gluten free.

;)

Thanks for this booklet. Its great.

Gail

NoGluGirl Contributor

Dear ginghamkim,

The best advice I can give you is that if you are not sure if something is safe, do not eat it! So many things out there are not labeled clearly. I have a little present for you! I have a list that should really help. This is overwhelming. I went through this with myself eight months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

Ed-G Newbie
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

That is a great site. I added it to my favorites.

Ed in MD

Ed-G Newbie

NoGluGirl,

I have to admit that that is a great starter list. I meant to say it earlier but time ran away from me.

Ed in MD

NoGluGirl Contributor

NoGluGirl,

I have to admit that that is a great starter list. I meant to say it earlier but time ran away from me.

Ed in MD

Dear Ed,

Thank you for the compliment! :) I am trying to simplify this for everyone. This can be so stressful. I also found out recently that Brillo Soap Pads are safe. I was so glad! I forgot to add that to the list!

Sincerely,

NoGluGirl

Betty in Texas Newbie

Thank you for taking the time to post this very helpful, why don't they have pamphlets in Dr's office's so people can learn about it and Dr's. They have a lot other pamphlets about other diseases I guess because they can't give a drug for it what do you all think it would bring a lot of awareness to the public. I was talking to this lady yesterday she have never heard of it but goes to the GE doctor every year for her stomach issues and colon because her Mother died at 20 with colon cancer so I was telling her to get checked she goes back in Aug. She said she going to look it up and learn about it.

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    • Scott Adams
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    • Scott Adams
      Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative celiac disease, which affects about 10% of celiac patients. Your partial HLA-DQ2 genetic result doesn't rule out celiac either, as a small percentage of celiac patients don't have the complete genetic markers. The fact that you've responded so dramatically to a gluten-free diet is another strong indicator that this is likely celiac disease rather than NCGS, since NCGS doesn't usually cause intestinal damage. Your doctor might consider ordering additional tests like IgG-based celiac tests (tTG-IgG or DGP-IgG), or repeating the endoscopy after you've been gluten-free for a longer period to check for healing. Many celiac specialists would actually diagnose you with celiac disease based on your biopsy results combined with your positive response to the gluten-free diet, regardless of the blood test results. It may be worth consulting with a gastroenterologist who specializes in celiac disease for further evaluation. Your experience highlights why celiac disease can be so challenging to diagnose and why doctors need to look at the whole clinical picture rather than relying on any single test.
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