Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lifestream Buckwheat Waffles Question


grey

Recommended Posts

grey Explorer

I'm new at gluten-free (just over 2 weeks), and trying to figure out what in my diet is still setting me off. I mostly don't eat prepared foods, breads (Whole Foods), crackers, Lara bars, organic PB, and organic fruit spread are about it, I thought. Then I remembered Lifestream Buckwheat gluten-free wildberry waffles. I've been eating them when running out the door late or late at night when I take meds and they have by far the longest ingredient list.

But my big question is that when I eat them, I get I kind of tingling/burning taste in my mouth, heavier on the burning (hard to describe). It's not painful - it's not like a mouth of fire - it's more like a taste than a pain. Is this a reation though? Should I be avoiding this product? Is this a normal reaction/taste? Has anyone ever had this happen?

thanks,

grey

(the product also has water, potato starch, sweet rice flour, organic expeller pressed soybean oil, organic evaporated cane juice, organice buckwheat flour, leavening - sodium acid pyrophosphate, sodium bicarbonate, monocalcium phosphate, potato flour, blueberries, rasberries, non-GMO soy lecithin, sea salt, natural flavors, sodium citrate, sodium alginate, citric acid, dicalcium phosphate, elderberry extract


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Hum, I used to eat them regularly, but haven't had one in about a year I think...maybe six months. I don't remember having any taste after eating them though.

I stopped eating them because I found out I am intolerant to a bunch of stuff and Buckwheat was one of them. Still, don't remember an aftertaste of any kind though.

SunnyDyRain Enthusiast

I had these last weekend, they were good and I had no aftertaste that I noticed. I have some left over, next time I will look for it.

On the tingling note however, this is how I normally react to cantalope and honeydew. That allergy is a cross over oral allergy related to my hayfever (ragweed). Perhaps you are reacting to the fruit though another allergy? I normally have mild reations to honeydew and cantalope as I usally only eat a peice here and there, but once I had Rita's "Twisted Melon" made with the juices and my throat closed up and had hard time breathing.

grey Explorer

Oh no - I hope it's not a food allergy! That's all I need. I do have a ragweed allergies, as well as a whole host of other weed, tree, grass, and mold allergies, but I didn't think I had food allergies.

I wonder if the gluten-free diet is making me more sensitive? I wonder if I should get tested for food allergies. Is this possible?

thanks -

I had these last weekend, they were good and I had no aftertaste that I noticed. I have some left over, next time I will look for it.

On the tingling note however, this is how I normally react to cantalope and honeydew. That allergy is a cross over oral allergy related to my hayfever (ragweed). Perhaps you are reacting to the fruit though another allergy? I normally have mild reations to honeydew and cantalope as I usally only eat a peice here and there, but once I had Rita's "Twisted Melon" made with the juices and my throat closed up and had hard time breathing.

grey Explorer

How did you figure out you were intolerant to Buckwheat? (or the other things you mention in your post?)

thanks,

grey

Hum, I used to eat them regularly, but haven't had one in about a year I think...maybe six months. I don't remember having any taste after eating them though.

I stopped eating them because I found out I am intolerant to a bunch of stuff and Buckwheat was one of them. Still, don't remember an aftertaste of any kind though.

Mango04 Enthusiast
But my big question is that when I eat them, I get I kind of tingling/burning taste in my mouth, heavier on the burning (hard to describe). It's not painful - it's not like a mouth of fire - it's more like a taste than a pain. Is this a reation though? Should I be avoiding this product? Is this a normal reaction/taste? Has anyone ever had this happen?

Hi - before I even opened this thread I assumed this is what you would be asking. I notice that about the waffles too. It's not really all that annoying (they're still good :)), but it is strange. I am sensitive to soy but that's not a normal soy reaction for me. I try to limit packaged food as well so may we're just not used to a certain ingredient. Who knows.

SunnyDyRain Enthusiast
Oh no - I hope it's not a food allergy! That's all I need. I do have a ragweed allergies, as well as a whole host of other weed, tree, grass, and mold allergies, but I didn't think I had food allergies.

I wonder if the gluten-free diet is making me more sensitive? I wonder if I should get tested for food allergies. Is this possible?

thanks -

Here is some info I found

Open Original Shared Link

I don't avoid honeydew and Cantalope too much, I eat around it in fruit salad, usally have once piece and that's it. I do avoid things with thier juice (italian ice) or LOTS of it. I also carry an inhaler for asthma and make sure I have that on me, just incase. As the article explains it's not an allergy to the food... your body just thinks it's the thing your allergic to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
How did you figure out you were intolerant to Buckwheat? (or the other things you mention in your post?)

thanks,

grey

It was kind of a combination of an elimination diet and alternative muscle type testing. I used the muscle testing to get a base diet for myself then am finding all the intolerances through adding things in a little at a time.

I actually started with an elimination diet, which works for most people, but I couldn't get to a point where I wasn't reacting to stuff, so had to search out some alternative type stuff. It turns out that most of the "safe" foods most elimination diets start with were exactly the stuff I was having a problem with. Once I cut those out and I had a good base diet of safe foods, I have been adding a new food in here and there and seeing how I react to it.

Needless to say, I try to stay as unprocessed as possible to I can tell WHAT is causing the reactions.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.