Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Effecting Entire Gi Tract?


cdfiance

Recommended Posts

cdfiance Explorer

Does gluten effect the whole GI tract or is it just confined to the small intestine? I know that the villi are only in the small intestine so that is where the damage is but can it cause inflammation of other parts of the GI tract? Just wondering because since Alex


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes unfortunately it can. For some the main symptom is heartburn, that was my DD. I get awful pain in the stomach and do get some relief from that from Pepto Bismal. Be careful if she takes an antiacid some are not safe so be sure to check. She has been through so much I am so sorry this happened to her. I hope she feels better soon.

zarfkitty Explorer

I wish I had the study handy just now, but I read where they gave celiacs a gluten challenge by suppository (yuck!!) and the rectum definitely showed histological changes.

SunnyDyRain Enthusiast
I wish I had the study handy just now, but I read where they gave celiacs a gluten challenge by suppository (yuck!!) and the rectum definitely showed histological changes.

ACK! If i HAD to do a Gluten Challenge, I'd want to at least enjoy the taste of it...!

cdfiance Explorer
I get awful pain in the stomach and do get some relief from that from Pepto Bismal.

Just wanted to thank you for that suggestion. I ran out to get some for Alex to try and it helped to soothe her stomach discomfort and I think it may have helped slow her intestine down a little bit. After taking it, she's been asleep for 4 hours and counting which is the longest she's stayed asleep without her upset stomach waking her up since the glutening two days ago.

We were ready to try some left over Reglan she had even though it caused some unpleasant side effects but it looks like we might not have to go there now. I'm not sure why we didn't think to try Pepto Bismol before. Thanks for sharing your wisdom.

Ryan

happygirl Collaborator

While the classic damage is usually in the small intestine, the side effects, per se, of gluten can be anywhere....so yes, stomach problems are a common symptom, or anywhere else that you described for that matter. Some people have no symptoms, some people have every symptom in the book, etc.....

Hope she gets over her first glutening soon. I also take immodiums.

lob6796 Contributor
Does gluten effect the whole GI tract or is it just confined to the small intestine? I know that the villi are only in the small intestine so that is where the damage is but can it cause inflammation of other parts of the GI tract? Just wondering because since Alex

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sparkles Contributor

I think that I have had every upper gi digestive problem known to man!!! I have also had colon cancer.... I certainly do think that gluten affects the whole digestive system, nuerological system, etc, etc, etc!!!!!!!

sparkles Contributor

I think that I have had every upper gi digestive problem known to man!!! I have also had colon cancer.... I certainly do think that gluten affects the whole digestive system, nuerological system, etc, etc, etc!!!!!!!

I hope that your fiance starts feeling better. It may take her a long to heal. Also I think once you go gluten-free, you are so much more aware of the symptoms of being glutened because your body has had a chance to heal some and I think sometimes we forget how sick we really were so much of the time. We just learned to put up with what to us was NORMAL.

I remember my doc asking me if I was bragging or complaining when I told him that it seemed like I was throwing up a lot and having a lot of diahrea. That was many doctors ago and years before I was finally diagnosed.

It isn't a fun disease but eventually, most of us start to heal. I hope the same for your fiance.

ravenwoodglass Mentor
ACK! If i HAD to do a Gluten Challenge, I'd want to at least enjoy the taste of it...!

In some other countries they use a rectal challenge for diagnosis and are even working on a way to use the oral mucosal tissue. The reason for this is that the challenge is then a one shot process that takes less than a day and there are much less side effects to worry about than our doctors current practice of poisoning us for weeks or months. Also with the mucosal challenge the biopsies are taken from an area that has for sure been effected on a microscopic level. There would be much less pain, and also much less of a chance of a false negative with this form of testing. I doubt it will catch on in this country though, everyone makes much more money from poisoning us for months, and the charges for the endo and the endless blood tests and scripts for toxic meds when the tests show a false negative.

ravenwoodglass Mentor
Just wanted to thank you for that suggestion. I ran out to get some for Alex to try and it helped to soothe her stomach discomfort and I think it may have helped slow her intestine down a little bit. After taking it, she's been asleep for 4 hours and counting which is the longest she's stayed asleep without her upset stomach waking her up since the glutening two days ago.

We were ready to try some left over Reglan she had even though it caused some unpleasant side effects but it looks like we might not have to go there now. I'm not sure why we didn't think to try Pepto Bismol before. Thanks for sharing your wisdom.

Ryan

I am so glad it helped, I tried it once in desperation and was really surprised at how much relief I got. One thing I forgot to mention is that it can darken the stool, this is not something to be alarmed about. I don't notice this with just one dose but if she needs to take it a couple of times I wanted her to be aware. It can be scary for us to look down and see a stool that is almost black but that is a normal side effect of the pepto and will go away quickly if it happens.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.