Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I On The Right Track


drcarlos

Recommended Posts

drcarlos Newbie

After years of Depression, Anxiety, lethagy and Sinus problems (started when I got Glandular fever about 15 years ago) with the doctors offering nothing but Anti-depressants and steroid spray to relieve the symptoms I finally went to see a Nutritionist who did Kenieseoloy (sp?) on me and found intolerances to Wheat, Rye, Barley, Eggs, Rice, Cows Milk and Dust Mites, they also suggested a Stool Parasitology to test for Candida and other parasites (now I am pretty sure I have Candidasis as I got much worse after a bout of tonsilitis when I had to take some heavy antibiotics). I am waiting for the results still and they should come through any day.

Since the intolerances were highlighted I have cut out all foods containing these things and taken Acidophilus plus a supplement called Sucroguard she suggested, but I feel dreadful, more tired, mood swings, depression, nausea, terrible hunger pains, getting very hungry about an hour after I eat and I was even sick last night. The one thing that has improved is the brain fog (things seem somewhat clearer).

I am wondering if I am on the right track and should I be feeling like this? I have heard of the Herx reaction and if I was taking a med or supplement to counteract the Candida I could understand it and could ease off on it for a bit until I felt better, but all I have done is cut out the foods I can't tolerate and taken some probiotics.

I am still at work but everyday is a real struggle and I come home in a daze totally exhuasted.

Help please, I just need some answers.

Carl.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

I love kinesiologists! It's so nice to have the brain fog leave! When you find a good K, they are great! I felt sooo much better after going to one who put me on the right mix of herbals and supplements. Sometimes you do need an adjustment on the supllements. Some brands are gluten-free, but they really just bothered me. No idea why.

If possible, call the manufacturers of the supplements you are taking to see if any contain a hidden gluten or have cross contamination issues. Inert ingredients are things to look out for. If all of them are fine try taking only one med for a day or two to see if it causes any problems. You might be able to find the problem item that way. Then replace it with a different brand.

Look up the FAAN (Food Allergy and Anaphylaxis Network). They have a lot of info about food allergies and what to avoid. They have shopping cards to purchase that detail all of the other names used for Eggs, and Wheat. gluten-free Shopping cards are available on other sites.

Then call the kinesiologist back and explain your sysptoms. Something is just not working right on you. They may be able to give you something else, or recheck you.

Hope you start feeling better soon.

drcarlos Newbie

Need to and she only used kinesiology on me to determine what foods I was sensitive to. I think I experiencing a big Candida die back (Herx effect) as I am starving it of wheat and other stuff it likes. I have to admit I wasn't expecting to get a Herx reaction by just changing my diet and taking Acidophilus and am surprised at the severity of it.

We'll see how I get on over the weekend and I have a few days off work coming so I will try and take it easy during those.

Carl.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...