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Camping - Frustrations


corinne

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corinne Apprentice

There's not a solution to this problem, just want to vent.

I'm heading out to the field in two weeks to do research. I just started last September as a professor and this will be the first time I'm directing a field work project. I'm really excited about the trip, but I'm dreading the diet. I finally have my symptoms under control most of the time, by eating a very restricted diet. I can't tolerate any grains, any starches, no nuts, only cooked fruit or veggies and not raw, no red meat, no beans, no acidic foods, no spices, no dairy and no soy. Not only that, but we will be working in the Mojave desert and we will need to use the limited refrigerator space to store samples not food. The last thing I need is D in the desert in July. I'd end up dehydrated very quickly and it's a long ways to a hospital.

So it looks like the only foods that will work will be canned - carrots, beets, fruit ie apricots, chicken and fish. I really don't want to eat canned carrots and chicken for a week blechhh!! Canned chicken is slimy.

However, the field work will be worth it.


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Juliebove Rising Star

What about foil pouches of ckicken and fish? I think thet taste better.

corinne Apprentice

That's an idea. I haven't tried the foil pouches - I assumed they were the same as the cans. Thanks!

eleep Enthusiast

I don't know brand names off-hand, but there are some decent turkey and chicken-based jerkys out there that might provide a decent alternative protein source as well if they don't contain spices you can't consume. Dehydrated veggies and fruits can be cooked as well.

Michi8 Contributor
That's an idea. I haven't tried the foil pouches - I assumed they were the same as the cans. Thanks!

The foil pouches are great. Here is a listing of Gluten Free camping food at Wilderness Dining: Open Original Shared Link You may have trouble finding packs that meet all your dietary requirements, but its worth checking it out to see what they have!

Michelle

JENinMICH Newbie

You are courageous and I hope you have a good time.

Canned chicken is better if you squeeze out the juice. Fill can w/water to the top. Let sit for a few minutes, pour off. Most of the slime is washed away.

Just my suggestion.

corinne Apprentice

Thanks for the suggestion. The taste isn't bad, just the texture.


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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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