Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Sleep Patterns


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

I have never had a problem getting to sleep before I had celiac. I have been gluten free for about 3 years now. Since April I have noticed I have trouble falling asleep. I will toss and turn. I feel physically tired but as soon as I hit the pillow it is as if I am wide awake. Now here is the strange part, only happens during the work week.

Our usual bedtime is 11. We wake up between 6:15-6:30. Some nights I even take Tylenol PM. On the weekend..Fri/Sat night I can be half asleep by 11:30. It is driving me crazy. Last night I was so fed up, I was practically throwing pillows/blankets all over the house. I could not get comfortable to even begin to fall asleep. I felt so bad for John, he was doing everything he could to make me comfortable and calm but nothing would help. Tonight after work we are going to buy me some new pillows.

Anyone have this problem or have any suggestions?

I thought I was nervous about work, but things have been smooth at work since Jan so I am not sure what is causing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I've got the same issue...I can be really tired, nodding off on the couch, but the minute I go to bed I'm tossing and turning. Or I fall asleep but wake frequently at night. On weekends I sleep in to catch up, but I will still wake up exhausted. I'm sure part of it is sleeping a different schedule on the weekends...it's really best to keep the same sleep schedule throughout the week to keep from resetting one's internal clock.

That said, I'm convinced that my sleep issues, plus my long list of other health complaints are thyroid and/or andrenal related. Unfortuantely, my labs are all "normal." I'm sure that I'm one of those people who have a normal looking TSH, but the number (2.49) is high for me. (I've read that anything over 1.5 should be considered hypo.)

Michelle

Guhlia Rising Star

Yeah, same here... I have a much harder time falling asleep now than I did pre-dx. I also have a very hard time staying asleep. I rarely feel well rested in the morning. I keep the same schedule all week long (stay at home mom) and it doesn't make a bit of difference for me. If you figure anything out, let us know. I would love to have a good night's sleep again. I always just thought that my sleep issues were related to becoming a mom. Maybe not though...

nowheatnomilk Rookie

good it's not just me... I'm up till 4:00 am sleep till 8:oo am. I guess Physical exercise should be a recommendition, I understand That now my body is absorbing nutriants so i am wondering if that might be why energy levels changing or starting to change.

Rosewynde Rookie

Have you tried some bed time routine to get you relaxed? I've always read some before sleeping. I frequently fall asleep with it still in my hands ; D If i try to go to sleep without reading it usually takes me a long while because my mind wanders over things I've done that day repeatedly. Maybe taking a brisk walk, hot shower, or hot cup of tea might help, I've heard of all of those being part of a bedtime routine.

blueeyedmanda Community Regular

Thanks everyone. I feel so much better knowing it is not just me. I am thinking of trying a relaxing bath/reading while in there tonight before bed. I will report back. I would also like to get my hands on some lavender oil, which they say relaxes you too.

KAG Rookie

Here are some ideas that might help you get to sleep. See if any might work for you. Fortunately I do not have sleep problems usually. I am back on gluten for awhile for testing and now I wake up in the middle of the night and can't get back to sleep. I have been taking a hot bath with lavendar and drinking something warm. It really helps. Also sleeping in complete darkness really helps.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I never had any problems sleeping until 3-4 years ago, and then it was only once in awhile. About 2 years ago, suddenly I couldn't sleep through the night. Go to sleep but then wake in a couple of hours and couldn't get back to sleep.

Dr. checked and tried several things. Not sure I can remember them all. Cortisol levels was one--but it made me worse to treat that. L-tryptophan powder has helped. Doc said it helps about 50% of people. (The sleeping making protein in turkey).

For me it has seemed to be hormone related. Started going on low dose HRT and it helped but still fluctuates at times. Like I'll be fine for 6 weeks and then have 1-2 weeks where I need sleeping medication.

I've read with interest the celiacs who get over insomnia after gluten-free, but so far that's not me. Maybe eventually as I am only 2 months gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.