Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Sleep Patterns


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

I have never had a problem getting to sleep before I had celiac. I have been gluten free for about 3 years now. Since April I have noticed I have trouble falling asleep. I will toss and turn. I feel physically tired but as soon as I hit the pillow it is as if I am wide awake. Now here is the strange part, only happens during the work week.

Our usual bedtime is 11. We wake up between 6:15-6:30. Some nights I even take Tylenol PM. On the weekend..Fri/Sat night I can be half asleep by 11:30. It is driving me crazy. Last night I was so fed up, I was practically throwing pillows/blankets all over the house. I could not get comfortable to even begin to fall asleep. I felt so bad for John, he was doing everything he could to make me comfortable and calm but nothing would help. Tonight after work we are going to buy me some new pillows.

Anyone have this problem or have any suggestions?

I thought I was nervous about work, but things have been smooth at work since Jan so I am not sure what is causing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I've got the same issue...I can be really tired, nodding off on the couch, but the minute I go to bed I'm tossing and turning. Or I fall asleep but wake frequently at night. On weekends I sleep in to catch up, but I will still wake up exhausted. I'm sure part of it is sleeping a different schedule on the weekends...it's really best to keep the same sleep schedule throughout the week to keep from resetting one's internal clock.

That said, I'm convinced that my sleep issues, plus my long list of other health complaints are thyroid and/or andrenal related. Unfortuantely, my labs are all "normal." I'm sure that I'm one of those people who have a normal looking TSH, but the number (2.49) is high for me. (I've read that anything over 1.5 should be considered hypo.)

Michelle

Guhlia Rising Star

Yeah, same here... I have a much harder time falling asleep now than I did pre-dx. I also have a very hard time staying asleep. I rarely feel well rested in the morning. I keep the same schedule all week long (stay at home mom) and it doesn't make a bit of difference for me. If you figure anything out, let us know. I would love to have a good night's sleep again. I always just thought that my sleep issues were related to becoming a mom. Maybe not though...

nowheatnomilk Rookie

good it's not just me... I'm up till 4:00 am sleep till 8:oo am. I guess Physical exercise should be a recommendition, I understand That now my body is absorbing nutriants so i am wondering if that might be why energy levels changing or starting to change.

Rosewynde Rookie

Have you tried some bed time routine to get you relaxed? I've always read some before sleeping. I frequently fall asleep with it still in my hands ; D If i try to go to sleep without reading it usually takes me a long while because my mind wanders over things I've done that day repeatedly. Maybe taking a brisk walk, hot shower, or hot cup of tea might help, I've heard of all of those being part of a bedtime routine.

blueeyedmanda Community Regular

Thanks everyone. I feel so much better knowing it is not just me. I am thinking of trying a relaxing bath/reading while in there tonight before bed. I will report back. I would also like to get my hands on some lavender oil, which they say relaxes you too.

KAG Rookie

Here are some ideas that might help you get to sleep. See if any might work for you. Fortunately I do not have sleep problems usually. I am back on gluten for awhile for testing and now I wake up in the middle of the night and can't get back to sleep. I have been taking a hot bath with lavendar and drinking something warm. It really helps. Also sleeping in complete darkness really helps.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I never had any problems sleeping until 3-4 years ago, and then it was only once in awhile. About 2 years ago, suddenly I couldn't sleep through the night. Go to sleep but then wake in a couple of hours and couldn't get back to sleep.

Dr. checked and tried several things. Not sure I can remember them all. Cortisol levels was one--but it made me worse to treat that. L-tryptophan powder has helped. Doc said it helps about 50% of people. (The sleeping making protein in turkey).

For me it has seemed to be hormone related. Started going on low dose HRT and it helped but still fluctuates at times. Like I'll be fine for 6 weeks and then have 1-2 weeks where I need sleeping medication.

I've read with interest the celiacs who get over insomnia after gluten-free, but so far that's not me. Maybe eventually as I am only 2 months gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.