Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uh Oh


mouth

Recommended Posts

mouth Enthusiast

JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!

What is the offending ingredient?

blueeyedmanda Community Regular

Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

mouth Enthusiast
What is the offending ingredient?

There is a wheat protien in the daily t/gel formula.

Lynn

mouth Enthusiast
Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

Amanda,

I had written them regarding the Neutrogena T/Gel dandruff therapy shampoo and conditioner. The answer I had received was to get the Daily T/Gel shampoo.

But when I went to buy the Daily T/Gel formula it has wheat protien in it..

lynn

Lisa Mentor

Lynn, why don't you write the company and demand a clarification. Perhaps that might change their listing. We all need to be proactive. I will do it.

rbh Apprentice

Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouth Enthusiast
Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.

Hi, thanx for the help. No, it was not a list. It was an actual email and it was incorrect also!!

I am going to have to call them..

Thanx,

lynn

jerseyangel Proficient

I've had conversations in the past week with several different customer service people at Neutrogena.

The first lady actually denied the exsitence of a gluten-free list (!). (In the 2 years I've been on this board, I've only seen it posted about a half dozen times <_< ) She said that her supervisor told her that we had to call about individual products, and they would check on them for us. After hearing my question as to whether their defination of gluten-free meant gluten or just wheat, she put me on "hold" and eventually the call was disconnected....

The gentleman I spoke to after this was very nice. He said that there "was" a gluten-free list (but he used a tone that sounded like it was something he was not supposed to tell me about), and that he would email it to me (he never did). He told me that they test for gluten "as in wheat, oats, barley and rye."

A day or two later, I called and asked about 2 products that I wanted to try. One was deemed gluten-free, and one wheat free. I asked this lady about gluten vs. wheat and she said that not all of their products were checked for gluten--some are, but some are just tested for wheat. I asked her if any gluten ingredients, such as oats, would be clearly listed and she said that they would.

Each conversation yielded slightly different information. I would suggest calling them about any product that you are considering and talk to them about the ingredients.

Gentleheart Enthusiast

I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

mouth Enthusiast
I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

Know what? I think you are right. I will just have to look for something else to use on her. Thats is all. Maybe I will write a "real" letter and let them know about their "poor" customer service in helping people that "really" need their help.

Crystalkd Contributor

What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

blueeyedmanda Community Regular
What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

Crystal, I really liked your response. It is true, they should provide lists about everything. :)

Crystalkd Contributor
Crystal, I really liked your response. It is true, they should provide lists about everything. :)

It's just so hard! I know I'm still new to everything but I mean sheesh! I'm southern. I love food and it's such a darn chore to go to the store now! I dread it!!!! It would be easier if lists were readily available. I get tired of peoples attitude already! It's not like we do this because we WANT to. This stuff really makes us sick. It's just as serious as Dieabetes! I'll get off the soap box now! (Sorry I'm in the anger stage right now!) I'm not angry at my diease or my diet change. I'm very thankful to have an answer. I'm angry at others in general for making it so hard or not caring at all. Even when we can find something we can eat we have to worry about CC all the time. EEERRRRR

mouth Enthusiast
Crystal, I really liked your response. It is true, they should provide lists about everything. :)

Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

Crystalkd Contributor
Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

There is a support group here but they usually meet for dinner once a month and I don't drive because of the CP so there are places I can't get to. I'll figure everything out it just takes time. I go see my GI in the morning so I'll see what he has to help but this is the one who doesn't think I have celiac disease.

mouth Enthusiast

Dear Crystal:

Were you looking for makeup? If so, Mary Kay has some gluten-free products, but the following has alot. The name of the company is NU SKIN. web: www.nuskinusa.com or you can Call Kathy at 757-206-7140 her web is www.executive-concepts.com Tell her that somebody gave you the info from the Gluten Free Fair at SUNY FARMINGDALE COLLEGE IN NY. They have tons of gluten-free products. I am ordering lipstick for my daughter, even some for myself because I really liked some of the colors they have.

Good luck. Lynn

Crystalkd Contributor

Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

mouth Enthusiast
Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

Dear Crystal,

Feel free to tap my brain. And of course anybody else's here. Any question you have can be answered. Ok for Soap, Tone is gluten-free, right now, dove is gluten-free, Alot of people say they use Aussie for shampoo. I also let my daughter use it. Where do you live? Or at least what state? That helps also. You can put up a message stating where you live and can anybody help you for shopping in the area you live in. You may have to travel to shop. It stinks, I know, but to get what you need is what you have to do. You also have to do the change slowly, dont let anybody fool you about doing it all at once. The quicker the better, but its very hard to do all at once. Cookies? Pamela's, enjoy life, pasta? My daughter likes the Tinkydaya. It is made of Stone ground Rice and water. That is all. Land o Lakes butter is gluten-free. Skippy if gluten-free. Welches jelly. If you can not call a company, email them. Most will answer promptly. If you want, send me a letter here, with your email and i will send you any info that i have. MOST Orida fries are gluten-free, Some Friendlies Ice Creams, Some Edys, and alot of companies will also send you coupons if you ask for them and they have them. Columbo yougart, Yo Crunch w/ M& M's and reeses pieces are the gluten-free. The other Yo Crunch are not. NO Nestles'. Hersheys choc syrup is gluten-free, plain hersheys choc is gluten-free. Know what? Email me and I will send all info I have. Ok? Good Luck. OH as summer is here, I am told that Coppertone is gluten-free....

Good Luck,

sincerely,

Lynn :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    2. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    3. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    4. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.