Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain After Diagnosis


MJS

Recommended Posts

MJS Rookie

I was diagnosed last summer, and after starting the diet I immediately began gaining weight. It was strange because for the last two years before I was diagnosed, I had been losing weight steadily.

All of a sudden, over a course of two months, I gained almost 20 pounds. It has been a year since the diagnosis, and I have only been able to lose 10 of the pounds.

Did this happen to anyone else? What did you do?

I have been eating healthy food and maintained a good excercise regimen. I wish my body would just go back to normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cmom Contributor

I have been fighting the same problem for the past 2 years. I go to a personal trainer once a week, exercise, am positively gluten-free, and honestly feel like I do not eat excessively. At this time, I weigh the most I ever have in my life. I must be absorbing everything I look at! I still have the bloating and spent 30 minutes a couple weeks ago trying on clothes before I could find something that fit. I was in tears by that time. I am miserable!

bsb6 Newbie

I too was diagnosed last summer and now weigh 20 lbs more than I had. I lost 40 lbs

after hip surgery, that is when the Celiac kicked in, then gained back the 40 + another 20.

You say you want to go back to "normal", but it wasn't normal. That was why you

were losing weight. I too feel like my body grabs every single calorie it take in and

long for the "good old days". I eat better & excersize more than ever, walking about

4 miles 5-6 days a week, which got me out of my osteoperosis.

It is a lot to handle, but your not alone. The support group out here in the western suburbs

of Chicago has a number of people fighting the same battles. There aren't any easy answers.

I'm still so thankful that I didn't have to start this 5-10 years ago, when it had to have been

much more difficult.

Good Luck

maryhult Newbie

[

maryhult Newbie

I understandi your frustration. I was diagnosed about a year and a half ago, and since then I've gained about 40 lbs. I'm miserable and am looking for a diet that will help me to shed these extra pounds. I've been trying to use Weight Watchers, but I feel hungry all the time, and have been very unsuccessful. If anyone has any suggestions, please post them. I've got to find a way to get this extra weight off.

Carolyn17 Newbie

Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

celiac-mommy Collaborator
Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hornbeck0920 Apprentice
What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle

Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

celiac-mommy Collaborator
Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

I would be so happy to help! You let me know the easiest way to keep in touch with you and I'm there for you! There are a few things that I will need to know to get started- Current height and weight, activity level, amount of exercise and what type, and a basic weekly schedule-wake, sleep, work, etc... just to give me an idea on where/how to start you. Also are you just gluten-free or are there other restricitons? You can personal message me if you feel more comfortable.

-Rachelle

  • 2 weeks later...
cindy lou Newbie

Eating gluten free is certainly necessary for us all, but make sure you are also not missing any other allergies. I highly recommend metabolic typing- it has worked wonders for me and I realized I spent my entire life not only poisoning myself (favorite foods of mac and cheese, pasta, Vienna sausages, etc) but also eating completely wrong for my body. A short little free test is at:

Open Original Shared Link

Try it out and see what you are. I am an extremely strong protein type but my fiancee is a complete carb type! We have double/separate meals most of the time, but soups and flax bread-based pizza work great- you can add whatever suits your body more- veggies and grains or meats/proteins.

PosNrg Newbie

Hi

I also rapidly gained weight after going gluten-free. My Dr.'s response "Well, you have to learn to eat less!" At first I was mad, I thought he was being smart with me, but he went on to explain that for years (even though I was thin) I was actually over eating because my body was demanding it. (The need for nutrients not being properly absorbed) Of course I never felt I was an overeater but this had logic to it. I tried to reduce my portion quantities and snacking (all habits for years). I had always been a person to exercise but I also increased that. I can report that progress is slow but weight is coming off. Hope this helps

PosNrg

  • 2 weeks later...
NWLAX36Mom Rookie

I too have been fighting this problem. I am an athlete and have always been lean and muscular. I became gluten freen in February and can hardly fit into clothes that I have worn for years. I miss seeing any definition in my muscles. It is so frustrating!

Lately I have been trying to eat very few refined/processed foods. I'm trying to rely on fresh fruits, vegetables and lean proteins. Hopefully, that will make a difference because I definitely do get enough exercise.

7-cody Apprentice

I'm 6' and only weight 170...

I'd love to gain 30 lbs. Hopefully that'll happen now that I'm starting my gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,254
    • Most Online (within 30 mins)
      7,748

    Linds9
    Newest Member
    Linds9
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.