Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy Tomorrow

anerissara

Recommended Posts

anerissara Enthusiast
anerissara
Posted

Ugh, I have a colonoscopy tomorrow and I'm really nervous about it! I don't know what I'm more worried about...the nasty prep I'm in for starting at 6 tonight or the procedure itself or the possibility of finding something really scary going on in my digestive tract. I'm sort of a mess!

The good news is that I really like my new gi doctor. I had to wait *months* to get in to see her, but she's really good. She listened to all my issues and she was very knowlegable about celiac's. She said that judging from my symptoms it was probable that I do have Celiac's and she's not recommending (at least at this point) that I go back on wheat to dx for sure. She said that she thinks the gluten-free diet is a really good one for anybody with gi issues, so if I'm doing OK on that she thinks I shouldn't change it. I'm hoping she can help get rid of the D that I still have even on the diet....but at this point as long as I don't have anything serious going on in there I really am at a point where I'm ready to accept the fact that I'll just always have digestive issues and leave it at that. I'm so sick of the whole thing!

Anyway, if it turns out OK tomorrow I will be so relieved. I just wish I could fast forward time and have it over with...I am so nervous!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Yeah, I had my colonoscopy (and an endoscopy at the same time) last year. I had D and blood, but my colon was very healthy. They thought maybe I had C.Diff, or diverticulitus or polyps or something, but it was clean. The blood cleared up, but the D continued up until just a week or so ago. I did have a stomach polyp though and some esophagial damage.

And, yeah, the prep isn't much fun, lol! The thing I was most nervous about was the car ride over to the surgicenter LOL. The actual procedure itself wasn't too bad. Even the IV wasn't as bad as I thought it would be. I was sedated enough throughout the procedure that I remember nothing from the time they wheeled me into the room until I woke up in the recovery area. Apparently I was well sedated cuz it took me at least 30 minutes once I was "awake" to really wake up, lol.

Cruiser Bob Newbie
Cruiser Bob
Posted

Well, I get to start my prep. at noon and go in for a scope on both end tomorrow also. I however am not too comfortable with the GI doc, as they screwed up my initial interview and now medical record. They had no idea they were doing a colonoscopy until I called them this morning to verify and I've got a strange feeling the diagnosis will by Chron's no matter what my insides look like, because that appears to be their big marketing push at this time.

We'll see, I still need to get my insides looked at to see what's going on. It's been 7 years gluten-free, 6+ diary & egg free (98%), 4+ years with almost no nightshades. Something is going on between the two ends that affects my whole being.

So tonight there will be at least two of us not having much fun, then tomorrow, then the wait for results, then getting a proper interpretation, then doing my own verfication, etc., etc.

Bob

anerissara Enthusiast
anerissara
Posted
  • Author

I'm nervous about the ride there, too...it's only a few blocks luckily but they have me taking the stuff starting again at 6 a.m., so hopefully I'll make it. dlp252, I'm glad everything turned out OK for you! I've had bleeding, too...it's been traced to an internal hemrroid, but I'm nervous that they'll find something else, too. I'm wondering if they'll say Chron's, for the same reason Cruiser Bob mentioned...it seems to be a popular dx right now. It's comforting that I won't be the only one sleeping in the bathroom tonight...what time is yours scheduled for? Mine's at 10:00. I'm praying that at this time tomorrow we'll both have a clean bill of health...at least as far as they can tell at the time. I am not looking forward to waiting for results, either.

dlp252 Apprentice
dlp252
Posted

Well, I'll certainly be thinking of both of you! I think I had to get up at 3:00 a.m. the day I did mine because my appointment was early, lol. That's why I was so nervous about the ride. I think I took a towel with me to sit on just in case. :lol:

I thought I would get Chron's too, but nope, they couldn't even do that for me. :P I DID get the dreaded IBS tag though. :P

anerissara Enthusiast
anerissara
Posted
  • Author

I'll be sooooooooooo happy if I get the IBS tag, at least that means it's nothing serious and then I can go about trying to find ways to make it better.

But I share your frustration that there isn't a quick or easy fix! I wonder how many other people have IBS *and* Celiac's?

Ugh, here we go....I'm on the first cup of white grape juice and what appears to be liquid dish soap. Same basic ingredients, anyway, according to the label. It doesn't taste as bad as I expected, but then again I'm only 1/2 way through the first cup and I haven't experienced the nasty results as of yet. Wish me luck!

dlp252 Apprentice
dlp252
Posted

Good luck! As I recall, I started getting worried because mine didn't kick in right away, but they had me start the morning OF my procedure! Keep some reading material in the bathroom and don't do anything that you can't drop in a hurry. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anerissara Enthusiast
anerissara
Posted
  • Author

Ugh, I can't wait. So far I don't feel anything except slightly sick from the salty taste and the fruit juice, which I never drink because it makes me sick. Sigh. I guess that I won't miss white grape juice after I get through tonight and tomorrow and never want to see it again, since I don't really like it anyway!

Teacher1958 Apprentice
Teacher1958
Posted

I have a colonoscopy in less than three weeks and am really nervous already. My friends say they're a piece of cake, but I don't care for needles or anything invasive. I want to have things checked, though, because I've had symptoms since 1965- nope, that wasn't a typo- 1965. If everything in there is clear, I will be so happy, but once I get a gastroenterologist, he will probably recommend an endoscopy, too.

I had a bone scan today. I asked the technician when I'd receive the results, and she let me see the line graphs resulting from the scan. She emphasized that there's more to it than just the graphs, but at least they were well within the normal (green) range. Maybe my bones have not been affected.

Good luck tomorrow. Let us know how things went. Just think, 24 hours from now you'll be relaxing and it will be behind you.

anerissara Enthusiast
anerissara
Posted
  • Author

WhoooooHoooo! It's over!

And so far everything looks OK. There was an area of inflammation that the dr. thinks could be either just due to the procedure itself or maybe a bacterial thing (microscopic colitis maybe?) but other than that things looked OK. Whew!

And I have to say, the whole process was not nearly as bad as I thought it would be! The prep wasn't fun, but it wasn't that bad either. I was *totally* out for the whole thing and don't remember anything at all. The gas afterwards hasn't been bad either...I guess maybe because of my IBS that I've had for so long having D and gas is just no biggie.

Anyway thanks for all of your support and help, it was good to have some BTDT advice yesterday!

Cruiser Bob, how did it go for you?

dlp252 Apprentice
dlp252
Posted

Glad it went okay for you and that things look good!!! Yay!

Teacher, good luck to you as well!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.