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Guest micah

I Am Having A Weird New Symptom..

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Guest micah

5 days ago, after being gluten free (as far as I know) since 6/19/07, and having seen some improvement in symptoms, right below my belly button it feels like I can feel something moving inside. I know that sounds really really weird and I promise I'm not crazy, but could it be a spasm for 5 days? It doesn't move from the same spot. Please tell me I don't have some tapeworm or something cause that's what I'm starting to think! Has anyone had this - am I missing a vitamin or something?

Micah

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Celiac.com Sponsor (A8):

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5 days ago, after being gluten free (as far as I know) since 6/19/07, and having seen some improvement in symptoms, right below my belly button it feels like I can feel something moving inside. I know that sounds really really weird and I promise I'm not crazy, but could it be a spasm for 5 days? It doesn't move from the same spot. Please tell me I don't have some tapeworm or something cause that's what I'm starting to think! Has anyone had this - am I missing a vitamin or something?

Micah

When I first started I felt butterflies right below my belly button for about 2 or 3 weeks. Now it's only once in a while. Nausea is also common it will pass as well. I read every post and am still at it (up to page 79 at this time) and found every new or odd symptom that I was experiencing was felt by someone else. It helped to know I wasn't nuts.

Yellow Rose


27 years of misdiognoses

seziures summer of 1979 lasted 10 years had maybe a dozen in that time Dr.s never could find what was causing them blamed it on lack of sleep and maybe nutrasweet

rheumatoid arthritis May 1980

wrist joint replacement Jan 1984

fibromyalgia May 1980

insomnia since the 80's

diarrhea 1995-2000 blamed on arthritis meds

Crohn's 1998 after two operations to fix fissures caused by the diarrhea

Other symptons over the last 27 years that have been treated for symptoms not causes:

depression, anemia, constipation, tooth discoloration, tremors in hands, tingling and numbness in feet and hands, fatigue, high blood pressure due to arthritus meds, flushing in face, severe muscle pain and thinking I was going crazy thanks to Dr.'s attitudes.

After diognoses my mother tells me I have an aunt and a cousin with Celiac. Mother tested negative but thinks she is intolerant to wheat and is changing her diet.

Suspect all three of my children have it as well but still trying to convince them to go get tested.

In answer to my prayer, "Lord Please Heal My Broken Body". May 2007 Celiac antibody test positive

Matthew 7: 8 Ask and ye shall receive, Seek and ye shall find, Knock and it shall be opened unto you.

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I also had some mild spasms in my abdomen the first couple weeks of gluten-free. It wasn't in just one spot, but it was kind of the "butterfly" feeling too. It felt like my intestines were starting to work or something. I have the big "C" rather than "D" so just thought it was a good sign of improvement.


4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

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Dear Micah,

I have had that, too! When I get glutened, I get that after the other horrible stuff. I get violently ill, so I have to be very paranoid careful about it. I know something that should really be useful. I have a little present for you to welcome you to the forum!

I have a list that should really help. This is overwhelming. I went through this with myself eight months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Guest micah

Thanks so much!! I do feel better knowing others have had this symptom. My problem has been C also, so perhaps I've never had working intestines!

Thanks for the list of safe foods, that'll really come in handy.

Micah

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Dear Micah,

You are very welcome for the list! I want to simplify this for anyone I can! It can be exhausting doing this. Make sure you are not getting cross-contaminated, either. Do not use utensils, cookware, or anything that has been used for gluten in the past. Soaps, shampoos, toothpaste, mouthwash, and many other things could hurt you. Watch out for all of those. When in doubt, do not use it until you call the manufacturer.

As far as your intestines go, you are probably right. You probably never did have working intestines. I spit up every formula as an infant, and had to be placed on 2 percent milk. I think a lot of people probably were born with it, but they only find out they are Celiac later on in life. People really did not know anything about it until more recently.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Micah, what happened to me with the big "C" after going gluten-free was first the symptoms you are having, then at about 10 days, had daily bms for the next 10 days, Since then it hasn't been consistent but that was my first sense that gluten-free might be going to help.


4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

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